#Systemicscleroderma

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#Systemicscleroderma Reel by @sclerolu - Before & after my Scleroderma diagnosis 🌻

I'm going to make this a short post because it has been one of the hardest videos to make. 

On the positi
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@sclerolu
Before & after my Scleroderma diagnosis 🌻 I’m going to make this a short post because it has been one of the hardest videos to make. On the positive side it is good reminder that regardless of my Scleroderma diagnosis my body has been constantly changing. We tend to get attached to our looks forgetting that we are not going to be young forever. We are all going to change as we get older 😜 My transformation is just a little bit different. Systemic Scleroderma is an autoimmune disease that attacks the connecting tissue. Most of your body is made up of connective tissue so that means it can attack 99% of your body. Not everyone has the same progression. Some have more internal issues and others more external. The thing is that change is inevitable so it’s better to accept the reality of your condition than to keep fighting it. I think the saddest part about this post is knowing that the woman before my diagnosis was so insecure about her looks. I wish I could go back and hug her and let her know she was and is still beautiful 💕🌺 & she was stronger than she thought she was. Now I’m here and I’m still trying to get used to my new looks but I’m not angry anymore. I’m thankful and excited to learn this new side of me ☀️ • • • • • • • • • • • #systemicsclerosis #systemicscleroderma #sclerodermiasistemica #sclerodermia #scleroderma #raredisease #beutiful #selflove #loveyourself #chronicillness #chronicpain #jointpain #physicaltherapy #rehabilitation #spoonie #spoonielife #healingjourney #disability #disabled #electricwheelchair #wheelchair #rheumatoid #autoimmune
#Systemicscleroderma Reel by @lifewithjanorah - This was during one of the hardest seasons of my journey living with systemic scleroderma. I was hospitalized for almost two weeks, and during that ti
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@lifewithjanorah
This was during one of the hardest seasons of my journey living with systemic scleroderma. I was hospitalized for almost two weeks, and during that time, my family my village stepped in to care for my daughter. As a single mother, it was incredibly difficult to be away from her, not knowing what each day would bring with my health. But even in the middle of the pain and uncertainty, my faith carried me. I’m sharing this now because it’s part of my truth a reminder of what I’ve walked through, and of the strength that came from letting others hold me up when I couldn’t do it alone. If you’re in a hard season right now, please know you’re not alone. • #autoimmuneawareness #sclerodermawarrior #praisereport #testimony #sanantonioinfluencer #singlemomblogger #thinkaboutitthursday
#Systemicscleroderma Reel by @haley.moc - On Friday the 13th, I lost my dad. He ended his 14 year battle with Systemic Scleroderma. He fought longer than the average person. To say I'm proud i
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@haley.moc
On Friday the 13th, I lost my dad. He ended his 14 year battle with Systemic Scleroderma. He fought longer than the average person. To say I’m proud is an understatement. It’s difficult being an only child and watching one of your parents suffer for half of your life. He will never see me have children or walk me down the isle. There are so many things we won’t be able to do together but I know he’s by my side. He’s visited me when I needed it the most. He raised me to not take shit from anyone. He wanted me to learn how live on my own, take care of myself and always be kind to others. Little did he know, he was raising one hellfire of a child. I’m so happy to be his daughter and to carry his last name. I’m sad but I’m also relieved that he’s at peace and not suffering anymore. He will forever live on in my soul and I know he will be visiting again soon. I love you so much dad. Forever & Ever *que the three forehead kisses* 🥰🕊️🎣👼🏼✨ xo punkin
#Systemicscleroderma Reel by @running_with_lois - 🌻 This is my story; from fit, competitive Ultra-runner to an unexpected turn of health...
Diagnosed with Systemic Scleroderma in 2022 🌻

I originall
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@running_with_lois
🌻 This is my story; from fit, competitive Ultra-runner to an unexpected turn of health... Diagnosed with Systemic Scleroderma in 2022 🌻 I originally started this platform to advocate for races, bring people together through hiking and explore the great outdoors and all the fun trails it has to offer. I have also used it to inspire others and generate donations to support others diagnosed and their families through Scleroderma Australia. To learn more please check out - https://www.sclerodermaaustralia.com.au/ I hope my story is an educational one and if anything you listen to the last 2 minutes of the video. Life is precious. Live it! #scleroderma #autoimmuneawareness #sclerodermawarrior #livingwithautoimmune #inspireothers #livelife #runningwithlois #mystory #disease #ourdiseasedoesntdefineus #silverlining #Queensland #ultrarunner #run #runningforawareness
#Systemicscleroderma Reel by @boehringer_ingelheim (verified account) - Getting diagnosed with a rare condition like pulmonary fibrosis (PF) can be daunting at any age. This was especially true for Brittany, who was diagno
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@boehringer_ingelheim
Getting diagnosed with a rare condition like pulmonary fibrosis (PF) can be daunting at any age. This was especially true for Brittany, who was diagnosed with systemic scleroderma with pulmonary fibrosis at the age of 20. Join us for the latest episode of ‘Journeys Through Pulmonary Fibrosis’, to hear Brittany’s powerful story. Click the link in the bio.
#Systemicscleroderma Reel by @rheum.to.grow.tx (verified account) - 🩺🏥Did you know that changes in your nails can give us clues to an underlying rheumatic condition. 🩺🏥

🚑💡A few of the things that rheumatologists
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@rheum.to.grow.tx
🩺🏥Did you know that changes in your nails can give us clues to an underlying rheumatic condition. 🩺🏥 🚑💡A few of the things that rheumatologists look for includes: 1. Pitting 2. Ridging 3. Onycholysis 4. Capillary changes 5. Splinter hemorrhages🚑💡 👦🌡️Some conditions to consider if you have these includes: 1. Psoriatic arthritis 2. Psoriasis 3. Systemic Scleroderma 4. Lupus 5. Dermatomyositis #parentsofchildrenwithchronicillness #integrativerheumatologist #integrativepediatricrheumatologist #texasdoctors #houston #pedsdoctor #kidshealth #pediatrichealth #pediatricmedicine #pediatricra #pediatricarthritis #pots #supplements #rheumatoidarthritis #chronicpain #chronicpaininkids #kidschronicpain ✅Disclaimer - This is educational info only and not specific medical advice. #health
#Systemicscleroderma Reel by @naturallyintoxikated (verified account) - Would you prefer an Instagram video or a YouTube video? Let me know in the comments or poll👇🏻

I want to go into more depth on how I healed my autoi
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@naturallyintoxikated
Would you prefer an Instagram video or a YouTube video? Let me know in the comments or poll👇🏻 I want to go into more depth on how I healed my autoimmune disease Linear Scleroderma over 15 years ago because I’m sure this would help so many of you! My Instagram has allowed me to connect with so many beautiful people who also have Scleroderma and autoimmune diseases (when I thought for the longest time I was one of the only ones), because you don’t often see scars like mine and most people don’t talk about chronic illnesses because it can be so touchy.💗🌷🌞 Please let me know what kind of a video you would prefer, and I will make it with as much detail as I can 🩷 #autoimmunedisease #linearscleroderma #scleroderma #systemicscleroderma #encoupdesabre #scars #healingautoimmune #naturalhealing #naturopathicmedicine #heavymetals #healthylifestyle #confidence #facialscar
#Systemicscleroderma Reel by @candacelauren_stylist - I don't take days off very often but when I do, they are usually filled with medical appointments. I am diagnosed with Hashimotos and systemic sclerod
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@candacelauren_stylist
I don’t take days off very often but when I do, they are usually filled with medical appointments. I am diagnosed with Hashimotos and systemic scleroderma. It’s not something I talk about often on here but it’s definitely a big part of my life and affects my day to day. #autoimmune #417hairstylist
#Systemicscleroderma Reel by @adventures_in_norderland - Systemic scleroderma awareness month! 
#chronicpain #chronicillnessawareness #systemicscleroderma #scleroderma
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@adventures_in_norderland
Systemic scleroderma awareness month! #chronicpain #chronicillnessawareness #systemicscleroderma #scleroderma
#Systemicscleroderma Reel by @sclerodermaflpr - Sharing Strength & Raising Awareness 🩵

Michelle is 16, from Florida, and going into her senior year of high school. At just 11, she was diagnosed wi
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@sclerodermaflpr
Sharing Strength & Raising Awareness 🩵 Michelle is 16, from Florida, and going into her senior year of high school. At just 11, she was diagnosed with systemic scleroderma—along with several other rare autoimmune conditions. Pediatric scleroderma is extremely rare, with only about 300 cases in the U.S. Today, Michelle is using her voice to raise awareness during this important month, for scleroderma and all rare diseases. #SclerodermaAwarenessMonth #SclerodermaAwareness #NationalSclerodermaFoundation #FLPRChapter #juvenilescleroderma #StoriesOfStrength @michellethegentlefighter
#Systemicscleroderma Reel by @davispeaks_ (verified account) - 🎥 Being in the studio with @constancejonestv 💕💚 was surreal! I had goosebumps the entire time 🤦🏽‍♀️. Normally, nothing throws me off my game, but
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@davispeaks_
🎥 Being in the studio with @constancejonestv 💕💚 was surreal! I had goosebumps the entire time 🤦🏽‍♀️. Normally, nothing throws me off my game, but today, I was both honored and nervous sharing my heart with Constance. I still can’t believe I fumbled over my words due to my internal giddiness. Any producer, photographer, or videographer who’s worked with me would vouch that I’m usually a one-take wonder 🫠. Today was a gentle reminder that even the pros have off days, especially while grieving. #WonderTwinzActivate Today’s NBC 6 News visit was a big step as I prepare for the resurgence of The WonderTwinz 5K Walk|Run in honor of Demetria Williams and World Scleroderma Day at the Betty T. Ferguson Recreational Complex on June 29, 2024, from 8-11am. Click the link in my bio to register or donate to National Scleroderma Research Efforts! We wear Teal for Scleroderma 🩵 For More Information on Scleroderma:  Scleroderma is a chronic autoimmune disease characterized by the thickening and hardening of the skin. Some forms of the disease also affect the blood vessels, muscles, bones, and other internal organs. There are two broad categories of scleroderma. Localized scleroderma affects the skin and subcutaneous tissue (the deepest layer of the skin) and sometimes the underlying muscle or bone. This is the most common type of scleroderma. Systemic scleroderma, also called systemic sclerosis, affects the skin and internal organs, such as the heart, lungs, gastrointestinal tract, kidneys, and blood vessels. Systemic scleroderma is usually more serious than localized scleroderma and can cause damage to internal organs, which may lead to health complications or even death. Scleroderma is a rare condition. According to the National Scleroderma Foundation, the condition affects around 300,000 people in the United States. (Around 200,000 people have localized scleroderma, while about 100,000 have systemic scleroderma.)
#Systemicscleroderma Reel by @therealwondertwinz - #TransformationTuesday Walking into my future unapologetically! My time at Afro Television Studios was life changing. Demetria Williams Systemic Scler
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@therealwondertwinz
#TransformationTuesday Walking into my future unapologetically! My time at Afro Television Studios was life changing. Demetria Williams Systemic Scleroderma Awareness reached Black and Brown households worldwide 🙌🏽🙏🏽 June is Scleroderma Awareness Month and Deme declared she was the Face of Scleroderma. It's still my hope that June 29th will be The WonderTwinz World Scleroderma Day in Miami Gardens and for The State of Florida. Deme planted the seed 🙏🏽 in 2016. #DaviSpeaks #LateNightWithDavi #DaviTheeRealtor Dressed in PattiMoiselle Boutique Patricia Burton Hair Cut by Jonathan Eugene Managed By Tye Live Ent Tylisha Tye Live Marie

✨ دليل اكتشاف #Systemicscleroderma

يستضيف انستقرام thousands of منشور تحت #Systemicscleroderma، مما يخلق واحدة من أكثر النظم البصرية حيوية على المنصة.

#Systemicscleroderma هو أحد أكثر الترندات تفاعلاً على انستقرام حالياً. مع أكثر من thousands of منشور في هذه الفئة، يتصدر صناع المحتوى مثل @sclerolu, @naturallyintoxikated and @boehringer_ingelheim بمحتواهم الفيروسي. تصفح هذه الفيديوهات الشائعة بشكل مجهول على Pictame.

ما هو الترند في #Systemicscleroderma؟ أكثر مقاطع فيديو Reels مشاهدة والمحتوى الفيروسي معروضة أعلاه.

الفئات الشعبية

📹 اتجاهات الفيديو: اكتشف أحدث Reels والفيديوهات الفيروسية

📈 استراتيجية الهاشتاق: استكشف خيارات الهاشتاق الرائجة لمحتواك

🌟 صناع المحتوى المميزون: @sclerolu, @naturallyintoxikated, @boehringer_ingelheim وآخرون يقودون المجتمع

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