7.6K
ARComment for your ARVC team next Remember the more comments your team has, the more likely they get picked!
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SAShare to spread awareness! ARVC (also known as ACM or ARVD) is caused by a defect in the tiny proteins that hold your heart muscle cells together. These proteins can be disrupted in ARVC, leading to areas of scar and fat deposits. This scarring can lead to abnormal heart rhythms, which, left untreated, can cause #SuddenCardiacArrest.
For more information about #ARVC, visit https://sads.org/sads-conditions/arvc-arvd/
What’s your experience living with ARVC? Let us know in the comments! ⬇️
[video voiceover and educational content presented by Dr. Lisa Albertini]
🏷️ #heartfailure #hf #cardiomyopathy #heartfailuresurvivor #hearttransplant #hearttransplantsurvivor #arvc #arvd #acm
We are grateful to Tenaya Therapeutics for their sponsorship of ARVC Awareness Week.
@sadsfoundation
3.5K
MIPart 1: Discovering the diagnosis ❤️🩹 I will do my best to document this and keep in my highlights under ARVC. My hope is to raise awareness because this came as a total shock to me and my family. My procedure is in a couple of days and I plan to share some of that as well. If you or someone you know feels ANY out of the ordinary symptoms, do not dismiss them. Ask questions, push your doctor if you have to. I was fortunate to have a physician who listened intently to my health history and performed a battery of tests and bloodwork. I am forever grateful ❤️🩹🙏#arvc #hearthealth❤️ #womensheath #heartdisease #heartdiseaseawareness
@mindbodybespoke
436
MOI potentially have ARVC which would make running a death sentence for me. 😭 #arvc #heartheath #heathjourney #heartmonitor #ultrarunning #enduranceathlete #arvcheart
@moonmomjamie
5.5K
RAABOUT ME ❤️🩹
Smiling, waving, running my last UTA50, with no idea what was coming. 💥
Less than a year later, I was diagnosed with #ARVC, a heart condition that ended my running life, to save my actual life! 💔
Most days I’m okay. But some days, I’d give anything to be back flying along the trails. 🏃♀️
So, my message to you is, if you love running, or have been thinking about giving it a crack, don’t hold back. One day it could be your last start line. ❤️🔥
I’m happy to help guide you. JUST START! 🫶
….
#RachelsRunners #yesyoucan #ARVC #trailrunning #lovetorun #runnersofinstagram #runwithheart #invisibleillness #resilientrunner #runningmotivation #runningcoach #runcoaching
@rachels_runners
2.4K
CLFourteen years ago, while training for my 4th marathon, I experienced a cardiac arrest due to ARVC (Arrhythmogenic Right Ventricular Cardiomyopathy). The journey since then has been challenging, especially finding a physical activity that is both physically demanding and gentle on my heart.
As women, it’s crucial to prioritize our heart health and be our own advocate when something isn’t feeling right.
Tomorrow, I’m attending the @heartsinrhythm (Canadian Hearts in Rhythm)conference to learn more about ARVC research in Canada. Talking about this often makes me want to crawl into a ball and cry because the fear of disease progression is overwhelming, uncomfortable, and just scary. I tell my kids often that FEAR is just a perceived negative outcome that hasn’t happened. Sharing our stories is essential for growth and healing and evidence based research is always cool.
Today’s workout is from @pvolve. It’s hard AF but gentle on my heart.
Are you taking to prioritize your heart health? Have you had to drastically shift your levels of physical activity due to health concerns? Love to chat!👇🏻
Or drop: HEART HEALTH in the comments and I’ll share the tips that I follow (or try to follow) to strengthen my heart health behaviours. #2 is the hardest one for me to follow 🤓😁
#HeartHealth #WomenHeartHealth #ARVC @heartandstroke #CanadianHeartsInRhythm #ProactiveHeartCare @pvolve #StayHeartStrong @heartsinrhythm #cardiacarrestsurvivor
@clomeandco
21.7K
AN🚨Ever wondered what it feels like to survive death and be jolted back to life with an ICD🚨
I’ll make more videos on this. If you have an S-ICD or ICD, shoot me a message.
#icd #arvc #sicd #pacemaker #heartcondition #vt #ventriculartachycardia #fitness #reels #tonedbody #fitnesstransformation #bodybuilding #diet #sleep #fitnesstips #health #gym #weightloss
@andydoesfit
9.6K
TH“Pain doesn’t kill you” but arrhythmias can!
Meet Leslie, a fellow FLNC Cardiomyopathy patient. I had the privilege of interviewing her and asking her all my questions about living life with arrhythmogenic cardiomyopathy and a defibrillator.
I recently found out that I carry a genetic mutation (FLNC) that causes ACM, the same condition that likely took my mom’s life. That’s why I’ll be getting an ICD (implantable cardioverter defibrillator) placed next week. ⚡️💪🫀
It feels a little surreal to move from teaching about cardiomyopathy to now having it myself.
🎙️This week’s episode of the podcast is pretty personal… it’s all about how I came to this diagnosis, answering the question, “what is arrhythmogenic cardiomyopathy?”, and an inside look at how I’m navigating this diagnosis and my plan of care moving forward.
I’ll be documenting my ICD journey here—everything from the procedure itself to recovery and life with a defibrillator. If you’re curious, want to learn more, or are walking a similar path, I’d love for you to follow along. 🥰⚡️🫀
And if you have been shocked by an ICD, I want to hear all about it!
Please share your experience in the comments!
#ICD #cardiomyopathy #SCD #arrhythmogeniccardiomyopathy #ARVC #ACM #defibrillator #ejectionfraction #geneticcardiomyopathy #SICD #EVICD
@therapidresponsern
8.3K
ABHeart Disease Woes Pt. 2 ❤️🩹
This is one of the 4 tests I have to do to see what’s going on with my heart; 24-Hour Holter Monitor.
I’m hoping these missed beats will be recorded so we can figure out why they’re happening, and chart a way forward 🤞🏾🙏🏾
📍 Nothing that happens with my heart is taken lightly, especially because my condition is so rare, and it’s progressive.
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#thisizabz #Mission109 #arvd #arvc #heartdisease #heartdiseaseadvocate #heartdiseaseawareness #pulmonaryembolism #bloodclots #bloodclotsurvivor #bilateralpulmonaryembolism #bilateralpulmonaryembolismsurvivor #advocate
@abzsmythe
687
PAArrhythmogenic Cardiomyopathy/ARVD/ARVC/ALVC
#prehospital #ems #paramedicine #emtlife #cardiac #cardiology #ekg #arvc #arvd #alvc #arrhythmogeniccardiomyopathy #cardiomyopathy #suddencardiacdeath #heart #nurse #doctor #emergency #criticalcare #electrophysiology #athlete #exertion #young #icd #hearttransplant #arrhythmia #ventriculartachycardia #rightventricularoutflowtracttachycardias #youcandoit #awareness #adenosine
@paramedmovement
1.8K
VEHere’s a tight, straight-to-the-point set of sentences — nothing sugar-coated:
In English Bulldogs, ventricular tachycardia associated with right ventricular cardiomyopathy is clinically important because it can progress to syncopal episodes and sudden cardiac death. The arrhythmia typically presents as rapid, wide-complex tachycardia originating from structurally diseased right ventricular myocardium. Diagnosis relies on Holter ECG, echocardiography, and exclusion of secondary causes. Treatment focuses on ventricular rate suppression using sotalol or mexiletine, and in severe or refractory cases, combination therapy is often required to reduce the risk of fatal arrhythmias.
#arvc #dogarrhythmia #ventriculartachycardia #felinecardiology #dogcardiology #köpekaritmi
@vetkardiyo
1.9K
RACase 21: Contributed by Dr. Shubhi Agarwal (Chief Senior Resident, Dept of Radiodiagnosis, KGMU)@shubhi_13agarwal
🫀💡 Cardiac MRI: ARVC & ALVC (Arrhythmogenic Cardiomyopathy Spectrum) 💡🫀
A striking Cardiac MRI case demonstrating hallmark features of Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) — a rare, inherited cardiomyopathy marked by fibrofatty replacement of the right ventricular myocardium. This condition predisposes patients, especially young adults and athletes, to ventricular arrhythmias and sudden cardiac death.
🔍 MRI Findings in ARVC:
• Right ventricular dilation and regional akinesia/dyskinesia
• Fibrofatty infiltration (appears hyperintense on T1-weighted imaging)
• Late Gadolinium Enhancement (LGE) indicating fibrosis
• Thin, aneurysmal RV free wall in advanced cases
🔍 ALVC: The Left-Sided Sibling of ARVC
Arrhythmogenic Left Ventricular Cardiomyopathy (ALVC) is increasingly recognized as a part of the Arrhythmogenic Cardiomyopathy (ACM) spectrum, primarily affecting the left ventricle:
• LV wall thinning, particularly in the inferolateral wall
• Mid-wall or subepicardial LGE on MRI
• LV regional dysfunction with or without dilation
• May mimic myocarditis or dilated cardiomyopathy on imaging
• Common gene mutations include DSP, FLNC, LMNA, among others
📚 Diagnosed via the Revised Task Force Criteria, with cardiac MRI playing a pivotal role in detecting structural and tissue abnormalities.
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