529.1K
LINot sure where Tate thought he was going…but we went to support the Preds and celebrate “Hockey has Heart” night! Happy Valentines Day! ❤️ @brightforbrett #hockeyhasheart #chdawareness
@linabryan3
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7.7K
BEWe didn’t know it,
until we were at a “heart” family reunion and we were told how high the rate of divorce was for parents of a child with CHD. It was over 50%. Over half of couples divorce from having a child with a congenital heart disease. The emotional and financial toll can just become too much.
But I know our love and our faith kept us grounded. Trials shape you, and in doing so they also do break you, but it didn’t break “us” and I’m forever grateful for that.
#chd #chdawareness #chdwarrior #tgababy #chdparent
@bebraveryfit
24.2K
JENot how we’d imagine bringing you home sweetie. We miss you so much Stellie💔
#chdawareness #pulmonaryveinstenosis #pulmonaryhypertension
@jemila.hu
258.4K
AMI can’t believe I’m finally writing these words…. Broken Hearts Club FIRST CAPSULE!!! Dropping 2.13.23 💔❤️
After Russell’s open heart surgery as a newborn, I wanted a way to spread awareness for CHD’s (congenital heart defects) and for those going through something similar to feel a little less alone and a little more comforted and comfortable when they might need it most…
From heart surgeries to heartbreak and everything in between. For every cancer patient, heart warrior, abuse survivor. Those battling mental health and grief, or fighting alongside someone who is, there is strength from struggle. You are on the path that leads to resilience and growth. You are not alone. Welcome to the club 💔❤️
#chdawareness #chdwarrior #amberandruss #BHC💔
@amberlancaster
6.4K
UPCHD + OHS changes how our bodies respond
even when everything is “fine”.
On the outside: calm
On the inside: forever reliving heart failure, OHS, ICU days/nights, and worst-case scenarios.
#chd #ldnont #heartwarrior #downsyndrome #chdawareness
@uptownchic_london
3.4M
FOThe sound we thought was "just gas" was actually her heart failing. 💔
Looking back at this video of Alice at 9 days old breaks my heart. We were doing what every parent does—rocking her, trying to soothe what we thought was trapped wind or colic.
We were wrong.
That unusual, rhythmic cry wasn't discomfort from feeding. It was the sound of a baby retaining fluid because her heart was enlarged and struggling to pump. Alice eventually needed a heart transplant, and tragically, we lost her while she was waiting.
I am sharing this because I don’t want another parent to feel the haunt of "what if."
PLEASE WATCH FOR THESE SIGNS:
The Cry: An unusual, weak, or "grunting" sound that happens with every breath.
Breathing: Rapid breathing or seeing the chest suck in deeply under the ribs (retractions).
Feeding: Tiring out quickly during feeds or sweating while eating.
Weight: Sudden "puffiness" or rapid weight gain (fluid retention).
If your gut tells you your baby’s cry is "odd," do not let it be dismissed as colic. Ask for a pulse oximetry check, a chest X-ray, or an ultrasound.
Alice’s life was short, but her legacy can be the life of your child. Please share this. You never know whose feed this needs to land on today. 🕊️
#fblifestyle #chdawareness #neonatalhealth #heartwarrior #pediatriccardiology #babysafety #infantloss #listentomoms
@for_alice_always
11.5K
BRThis week, we celebrate Brett’s 9th birthday. And we celebrate you - our incredible community of supporters who help carry Brett’s legacy forward.
More research could have led to more options for Brett and our prayer is to give more options to other families so that their children can live a long and happy life.
Today, your continued support means more life-saving research, more comfort for families in and out of the hospital, more joy, hope and love spread in Brett’s name, and, of course, more birthdays for the 1 in 100 battling CHD.
Make a gift today in honor of Brett and help us continue this mission of hope. 💛🐝#brightforbrett #thebrettboyerfoundation #brettsninthbirthday #fyp #battleon #chd #chdawareness
@brightforbrett
5.4K
MAIn honor of it being CHD Awareness week!!🫀🤍 #chdawareness #chd #openheartsurgery
@madisonncouture
1.6K
DE1 in 100. That’s how many babies are born with a congenital heart defect (CHD).
That’s 40,000 tiny hearts each year in the U.S. alone.
And 1 in 4 of those need surgery in their first year of life.
Let’s raise awareness—because every heartbeat matters 🫶🏻
#CHDawareness #1in100 #HeartWarrior #TinyHeartsBigFights #CongenitalHeartDefect
@develop_by_play
7.5K
CARaising awareness for Wolff-Parkinson White syndrome. 🫀
You can apply for free heart screening at https://www.testmyheart.org.uk
@cardiacriskintheyoung @sadsfoundation
#chdawareness #invisibleillness #alternativestyle #raisingawareness
@catarinaxjane
26.2K
SIHearing that something is wrong with your child’s heart can be one of the most devastating moments in a caregiver’s life. Whether before birth, after or later in their lives - the world stops spinning and it can be hard to go on.
SickKids’ Labatt Family Heart Centre is here for you.
They have resources from clinical experts, as well as patient and families.
This #HeartMonth, and every day, know that you are not alone. ❤️
Tap the 🔗 in bio to check out the Labatt Family Heart Centre’s video series made by heart families, for heart families. 🫀👆
#CHDAwareness #CongenitalHeartDefect #HeartHealth #SickKids #SickKidsVS #SickKidsHospital #Pediatrics #ChildrensHospital #Healthcare #HeartWarrior
@sickkidstoronto
3.8K
JE7 months ago today my angel baby graced the earth. In the 54 days that you were here you taught me how to be strong, have faith and experience a love that expanded my heart in ways I would’ve never imagine possible. I am so grateful that you chose me to be your mama Stellie and I believe with all my heart that your beautiful soul will return to us one day. You’ll forever be my baby and my heart will forever yearn to hold you and and show you how much I love you. Sleep in peace my sweet love until we meet again! ♥️👼🏻
#infantloss #chdawareness #tapvr #pvs #mamamissyou
@jemila.hu
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