#Csfleaks

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csfleak

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#Csfleaks Reel by @csfleakassociation - 🎥 Bern reflects on key moments from #Hydrocephalus2025 �We're deeply grateful to everyone who contributed to this vital dialogue on CSF leaks, build
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@csfleakassociation
🎥 Bern reflects on key moments from #Hydrocephalus2025 �We’re deeply grateful to everyone who contributed to this vital dialogue on CSF leaks, building bridges across disciplines and uniting clinicians, researchers, and patients to improve outcomes for those affected 💙� #CSFleaks #PatientVoice #standingupforleakers #csfleakassociation
#Csfleaks Reel by @aleeta_jo (verified account) - Fall in love with your life, even on the hard days. I'm still learning to see the good through being sick, to push myself a little, to show up for mys
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@aleeta_jo
Fall in love with your life, even on the hard days. I’m still learning to see the good through being sick, to push myself a little, to show up for myself, and stay surrounded by the best people. 🤍 It’s not always easy, and sometimes I pay for it later, but I’d rather live than just exist. <3 #inspire #reels #cowgirl #health #healthissues #chronicallyill #chronicpain #compressionsyndromes #mals #nutcracker #csfleaks #seizures #maythurner #smas #pots #surgeries #majorsurgery #mcas
#Csfleaks Reel by @naughtcouture - This is real life, it isn't always pretty and it can truly suck a bag of D!ck$. People often forget that the end result rarely matches up with what it
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@naughtcouture
This is real life, it isn't always pretty and it can truly suck a bag of D!ck$. People often forget that the end result rarely matches up with what it took to get there. And, with ablism being ingrained in the foundation of our every fiber (from birth) it's hard for people to understand the added struggle. It isn't addressed enough. #Invisibleillness #InvisibAwareness #CSFLeaks #Leaker #Disabled #DisabledBlogger #DisabledNotDead #DisabledMami
#Csfleaks Reel by @therapydogyuta - 優ちゃんとの散歩、今年は2回目かな？ いつもパパと散歩する優ちゃん、 ママも一緒に外出できて 目がキラキラ🤩🤩🤩 優ちゃんとパパだけいっぱい歩いて 最後に車椅子でちょろっとやってみた😆😆😆 100歩後退からの、はじめの一歩❗️ #ドッグスタグラム #マルプー #ドッグダ
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@therapydogyuta
優ちゃんとの散歩、今年は2回目かな？ いつもパパと散歩する優ちゃん、 ママも一緒に外出できて 目がキラキラ🤩🤩🤩 優ちゃんとパパだけいっぱい歩いて 最後に車椅子でちょろっとやってみた😆😆😆 100歩後退からの、はじめの一歩❗️ #ドッグスタグラム #マルプー #ドッグダンス #ドッグトリック #ドッグトレーニング #マルプー連合 #マルプーフワモコ隊 #マルプー男子 #マルプー倶楽部 #犬芸 #まるぷー #犬動画 #犬芸動画 #脳脊髄液減少症 #慢性ライム #眼瞼痙攣 #dogstagram #doglovers #dogsofinstagram #maltipoodle #maltipooofinstagram #dogdance #dogtricks #chroniclyme #csfleaks
#Csfleaks Reel by @a_spoon_filled_lifellc (verified account) - I cannot count how many times someone has asked me a version of this question: "If you could wake up tomorrow and not be Disabled, would you?" Sometim
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@a_spoon_filled_lifellc
I cannot count how many times someone has asked me a version of this question: “If you could wake up tomorrow and not be Disabled, would you?” Sometimes it is just genuine (albeit insensitive) curiosity, but the implied ableism in the question hurts. My life is made more challenging because of my disability and medical conditions, yes, to say otherwise would be a lie. But that symptoms themselves are not my biggest challenges. Far from it, actually. Living with a disability is not a burden. Living in a world, however, that allows for some to exist with (relative) ease, and others with invisible (and sometimes unintended) hardship is not fair, nor is it okay. If I’m going to an unknown location I goggle accessibility to determine which one of my mobility aids I’m bringing, not necessarily because it’s the one I need but the one that can be accommodated. I am not blaming anyone. I’m not punishing my able-bodied peers for their ability, either. But inaccessibility, in ‘23, should be the exception rather than the rule. #chronicillness #disability #spoonie #mobilityaids #wheelchair #ehlersdanlossyndrome #chronicpain #csfleaks #autoimmune #CSFleaks #EDS #flare #hypermobility #POTS #orthostaticintolerance #MCAS #spoonie #orthostatichypotension #syncope #zebra #dysautonomia
#Csfleaks Reel by @neurosurgeryconnect - 👨🏻‍⚕️CSF leaks occur when the cerebrospinal fluid surrounding the brain and spinal cord escapes due to trauma, surgery, or medical conditions. They
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@neurosurgeryconnect
👨🏻‍⚕️CSF leaks occur when the cerebrospinal fluid surrounding the brain and spinal cord escapes due to trauma, surgery, or medical conditions. They are categorized as cranial (from the skull base, through the nose or ear) or spinal (along the spine). Symptoms include clear fluid discharge, headaches, vision changes, and dizziness. Cranial leaks increase meningitis risk, while spinal leaks cause headaches that improve when lying down. Common causes include trauma, lumbar punctures, and connective tissue disorders. Stay tuned for upcoming insights on diagnosis and treatment!📚✨ [CSF leaks, cranial leaks, spinal leaks, cerebrospinal fluid, trauma, surgery, meningitis, headaches, tinnitus, neurosurgery] #CSFLeaks #Neurosurgery #CranialLeaks #SpinalLeaks #BrainHealth #MedicalInsights #StayTuned
#Csfleaks Reel by @samgosserr - There is no better way to end #DuraDash2022!!! Our sweet baby girl took her first steps today 😍😭 Our family completed 150 minutes of activity in t
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@samgosserr
There is no better way to end #DuraDash2022!!! Our sweet baby girl took her first steps today 😍😭 Our family completed 150 minutes of activity in the last 12 days in honor of spinal CSF leaks! If you don’t know what that is… I urge you to do your research. Because more than likely, at one point in your life, you may be faced with a procedure or surgery that puts you at risk for one. Any time there is a needle near your spine, you are at risk for a spinal csf leak. Some procedures that put you at risk include: epidurals, spinal blocks, lumbar punctures, steroid injections, intrathecal pain pumps, and more. I tell you this because I signed consent to have a spinal block almost a year ago, and was not informed that a spinal csf leak was a known risk. I suffered for 4 months; completely bedridden and unable to care for my children until I was seen by a csf leak specialist; who thankfully, was able to give me my life back 🙏🏼❤️ I am still rebuilding my life almost a year later. This condition is absolutely heartbreaking… there are many people who get sealed and get their lives back but there are also many who have been suffering for years. If you ever have any questions & want to chat… my DMs are always open. If you feel called to help bring awareness to this heartbreaking condition, please check out the link in my bio. I haven’t met my goal yet & could use your help! Any donations I received go directly to @spinalcsfleakusa where they are striving to bring awareness to patients and doctors around the world. They are dedicated to help reduce the suffering of those who suffer from spinal csf leaks! Thank you to anyone who has donated so far. It means the absolute world to me ❤️ #CsfLeaks #SpinalCsfLeaks #DuraDash #DuraDash2022 #LeakWeek #LeakWeek2022 #CsfLeakAwareness #RaisingAwareness #FirstSteps
#Csfleaks Reel by @painwrappedinpetals - Hi everyone! 🙋‍♀️ I'm Briana, creator of @painwrappedinpetals. Welcome to my page - a space where pain and beauty can coexist. 🌹 For years, I hav
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@painwrappedinpetals
Hi everyone! 🙋‍♀️ I’m Briana, creator of @painwrappedinpetals. Welcome to my page — a space where pain and beauty can coexist. 🌹 For years, I have been navigating a long, incredibly complex medical journey and I’ve finally felt called to share it — honestly, openly, and vulnerably — in hopes of helping people understand that just because you see someone smiling, doesn’t mean that all is well. The name @painwrappedinpetals reflects what it feels like to live with invisible illnesses — wrapped in chronic pain, yet still seeking and savoring the small, beautiful things that make life worth living. 🌻 Here, I’ll be opening up about: • EDS, CCI, Endo, IC, POTS, Dysautonomia & more • Long roads to diagnosis and misunderstood symptoms • Traumatizing procedures & surgeries • Medical gaslighting, misdiagnoses & resilience • Learning to be your own advocate • The weight of chronic pain — physically, emotionally, spiritually, mentally But also discussing: • The healing power of nature and mindfulness • Shifting toward gentleness and gratitude • Embracing softness, slowness, and small joys • Doing the things that bring you joy, when able • Honoring all that makes you YOU • Taking every day one moment at a time • Healing on your own terms • Trying to find the good in even the hardest days This page is for anyone who has ever felt unseen in their pain — and for those who carry strength in silence. My hope is to raise awareness for the many layers of living with chronic illness, and to remind us all that we are more than our diagnoses. This is a space for truth-telling and tenderness. For both the grief and the gratitude. The heaviness and the healing. The broken pieces and the beauty. You are not alone here. 🫶 #ehlersdanlossyndrome #heds #ehlersdanlosawareness #cranialcervicalinstability #atlantoaxialinstability #venouscongestion #dysautonomia #pots #pelvicfloordysfunction #degenerativediscdisease #vascularcompressionsyndromes #csfleaks #intracranialhypertension #interstitialcystitis #endometriosis #invisibleillnessawareness #rectocele #bladderpain #cci #aai #sibo #audhd #anxiety #jointpain #patentforamenovale #chronicillnessawareness #butyoudontlooksick
#Csfleaks Reel by @elizabethcpruett - This will forever be a core moment that I look back on at the wedding. 🥹 When Love Story started playing and being a massive @taylorswift fan everyo
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@elizabethcpruett
This will forever be a core moment that I look back on at the wedding. 🥹 When Love Story started playing and being a massive @taylorswift fan everyone made this super special. From @tildaliketherice putting us into the middle, people putting on the torches on their phone thanks to @mollyloughman ,@jrowlatt27 saying to Jack to get on his knees as well Tilda 😹 Everyone screaming along to the lyrics as well as myself 🙊 @_jackp95 sorry for being the biggest embarrassment of your life but I love you and also this song😹 @cosmic.events thank you for doing the sound for our wedding and making it amazing! Also biggest thanks to @km_jc_ for capturing this core moment!
#Csfleaks Reel by @entflashcards - The answer to yesterday's MCQ was: a) Beta-2 transferrin But there's more to it than that... Watch the short clip above before checking out our full
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@entflashcards
The answer to yesterday's MCQ was: a) Beta-2 transferrin But there's more to it than that... Watch the short clip above before checking out our full video on Anterior Cranial Fossa CSF Leaks on YouTube! Follow us for the next MCQ on this topic later this week! #ENT #FRCS #MedicalEducation #Finals #MRCS #CSFLeaks
#Csfleaks Reel by @emilydilbeckart - TW: Suicide This may look like a "oh she's healed, she's painting." Im very far from healed, however I know how fortunate I am that I can get out of
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@emilydilbeckart
TW: Suicide This may look like a “oh she’s healed, she’s painting.” Im very far from healed, however I know how fortunate I am that I can get out of bed and go on a walk some mornings. Painting standing up is also a gift, it isn’t for long at all but any time is better than none. I don’t take any upright time for granted. Standing is a gift. If you’re also a #csfleaker that cannot get out of bed, and haven’t for months, I hope if nothing else this is encouraging that things can change even while still leaking. I’ve been leaking since Feb 2023. All leak patients have a different story and experience of a #csfleak but if I can be encouragement for anyone in a dark place, goodness I want that! Some leakers die by suicide - and I get it, I really do - it is a living hell and I wish this on no one. I remember scouring the internet for healed stories or at least functional #csfleak stories. I thought I’d always be in bed in a dark room spinning in dizziness, noises, nausea, unable to see much, and unable to do anything for myself - not living. I am not healed, I cannot sit, or stand for long, I can’t drive, etc. but I can get out of bed and be in the light, and no doubt I am still hoping for healing one day…more living…and for now I can say it’s gotten different over time. If you are a #csfleakpatient and you need someone to talk to, please DM me. It’s a lonely journey and really no one gets it until they live it…please know it can get different. Sending love, and I hope an itty bit of hope. 💜💜💜 It was leakweek and #csfleakawareness is so needed. #suicideprevention #suicidesurvivor #csfleaks #pleasestay #somehope #diedbysuicide #diedbysuicidenotcommittedsuicide #suicideprevention #leakweek #csfleakweek #therapyiscool #therapyiscoolswag
#Csfleaks Reel by @virtualheadachespecialist - Anything and everything to know about CSF leaks! CSF leak symptoms, CSF leak causes, CSF leak treatments. https://virtualheadachespecialist.com/ csf
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@virtualheadachespecialist
Anything and everything to know about CSF leaks! CSF leak symptoms, CSF leak causes, CSF leak treatments. https://virtualheadachespecialist.com/ csf-leak-cerebrospinal-fluid-leak-symptoms-causes-testing-treatments/ #csfleak #CSF #csfleakwarrior #csfleakjourney #csfleaks #SpinalLeak #csfleaker #cerebrospinalfluidleak #PositionalHeadache #OrthostaticHeadache #Spine #CSFFistula #ENT #Sinus #Radiology #MRI #InterventionalRadiology #Migraine #ChronicMigraine #Neurology #ChronicDailyHeadache #Headache #NeuroInstagram #MedInstagram #Neuro #blogger #blog #Medical

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