#Rarecancer

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#Rarecancer Reel by @hannahbloomlifestyle - Today we shared Bens story about being diagnosed at 28 with a rare cancer. Today, we're stronger than we were 8 months ago when it was first diagnosed
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@hannahbloomlifestyle
Today we shared Bens story about being diagnosed at 28 with a rare cancer. Today, we’re stronger than we were 8 months ago when it was first diagnosed. Today, Ben is doing well. Everyday we have together is a blessing 💜 • • #GIST #gastrointestinalstromaltumor #sarcoma #sarcomaawareness #rarecancer #cancerawareness #cancersucks #sarcomasucks #cancerfighter #liferaftgroup
#Rarecancer Reel by @louiseglover (verified account) - Time to regain my life - Specialists at Oxford just removed my rare adrenal gland tumour, 8cm+ a Pheochromocytoma. 1 in a million rare disease. It can
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@louiseglover
Time to regain my life - Specialists at Oxford just removed my rare adrenal gland tumour, 8cm+ a Pheochromocytoma. 1 in a million rare disease. It can be life-threatening if undiagnosed. I’m sharing my story to raise awareness—trust your instincts and get checked. #pheo #illness #pheochromocytoma #rarecancer
#Rarecancer Reel by @__flamingo_florence__ - Yesterday was my #ampuversary Four years ago I was diagnosed with a rare cancer called Epitheliod sarcoma. Months later I had my leg amputated at the
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@__flamingo_florence__
Yesterday was my #ampuversary Four years ago I was diagnosed with a rare cancer called Epitheliod sarcoma. Months later I had my leg amputated at the hip, freeing me from cancers grip. It has been one heck of a ride, but I feel like I have discovered a new and exciting version of me and I’m soaring with it! What ever obstacles you may face, please keep going friends, you never know what’s on the other side of a terrible situation! . . . #epitheliodsarcoma #hemipelvectomy #cancer #cancersucks #positivelife #persevere #hipamputee #flamingoflorence #thisisme
#Rarecancer Reel by @moving_through_cancer - Hi, I'm Cat - mummy, wife and physiotherapist At the start of the year I was diagnosed with a myxoid liposarcoma - a rare cancer on my leg. Safe to
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@moving_through_cancer
Hi, I’m Cat - mummy, wife and physiotherapist At the start of the year I was diagnosed with a myxoid liposarcoma - a rare cancer on my leg. Safe to say the past few months have been a bit of a whirlwind! As a young (ish), active and healthy person the whole thing has been a shock and very surreal! I have always loved to exercise both for my physical and mental health. Last year I ran two marathons, the second, unbeknownst to me, with cancer and a stress fracture (whoops!). I never thought I would find myself in this position at this time of my life and now, more than ever, exercise has been my therapy and my way of coping. My physio and exercise brain went into overdrive and I initially channeled my energy into things I could control - mainly diet and exercise. A very interesting talk at @maggiescentreedinburgh “Being Active During and Beyond Cancer” by @anna.campbell_canrehab inspired me both professionally and personally on how to cope with my journey through cancer treatment. Having made my way through 25 sessions of radiotherapy, many scans and hospital appointments relatively unscathed I’m proud of how my body has coped and strongly feel that my drive to continue exercising pre, during and hopefully after (!) has played a huge part in this. I have more surgery coming up and am using my wee break to prepare my body the best I can for the next bit. This page is a platform to help those, like me, who’ve experienced cancer understand the amazing benefits of exercise during and beyond cancer treatment and to document my journey.
#Rarecancer Reel by @bri_mahon (verified account) - Blake has beat a rare cancer twice He was diagnosed at 7 years old. And cancer came back when he was 16. Not many partners can say they have been
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@bri_mahon
Blake has beat a rare cancer twice He was diagnosed at 7 years old. And cancer came back when he was 16. Not many partners can say they have been through and understand a cancer diagnosis a journey, the fear- all of it especially at the ages we were both diagnosed. not many people understand. but when you have gone through cancer when you have fought so hard and you get to come out the other side together? it is pretty miraculous. I sometimes fear my cancer will come back. but I trust If it ever does I will once again face it Proud to fight For this beautiful Life I have and just like my husband I’ll get through to the other side because the best parts of life are waiting for me 🩵 #cancer #coloncancer #chemotherapy #folfox #cycle11 #stage3 #healing
#Rarecancer Reel by @markjburk (verified account) - Allow me to reintroduce myself: My name is Mark and I'm beginning the process of grieving, processing, and sharing the three years I spent as a caregi
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@markjburk
Allow me to reintroduce myself: My name is Mark and I'm beginning the process of grieving, processing, and sharing the three years I spent as a caregiver for my wife Paige as she battled a rare, hyper aggressive cancer that would eventually claim her life. We recorded EVERYTHING. Our goal was to give a real, on-the-ground account of a cancer battle. We wanted to begin sharing together, but as she got sicker, and the pain took over, it just never happened. Maybe we couldn't face it together, maybe we just wanted to exist in solitude together till the end. I promised her in the final weeks that I would share all of it. The love, the disease, the doctors, the realities of pain and pain management and watching your loved one waste away, and how we managed to find hope and love amongst it all. And now, for me, how I am grieving, processing, and beginning to live the next chapter that Paige always told me she wanted me to have. If you're going through something similar, or anything at all, follow along and let's live on together. #cancerjourney #cancer #cancerawareness #cancerjourney #caregiver #grief #love #death #mentalhealth
#Rarecancer Reel by @_beyondthediagnosis (verified account) - I beat rare cancer in 84 days over 4.5 years ago and counting!! Want to see the things I did to actually heal? I'm happy to share it with anyone wh
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@_beyondthediagnosis
I beat rare cancer in 84 days over 4.5 years ago and counting!! Want to see the things I did to actually heal? I’m happy to share it with anyone who would like to see it. I put as much detail as I could and it’s completely free. There is no charge… Comment LIST and I’ll send you the LIST. From one survivor to another—I’m sending you love and strength 💕 You’re not alone—let’s keep moving forward together 🦋
#Rarecancer Reel by @dms_momma - 💔 Our Story: Fighting Appendix Cancer 💔 On February 26, 2024, my husband went to the ER with nonstop abdominal pain. We thought it was a burst appe
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@dms_momma
💔 Our Story: Fighting Appendix Cancer 💔 On February 26, 2024, my husband went to the ER with nonstop abdominal pain. We thought it was a burst appendix. But when they opened him up, they found tumors spread across the lining of his abdomen. It was Stage 4 cancer. At first, we fought his diagnosis with hope. We trusted medicine and treatment plans. We believed that doing everything “right” would lead us back to a normal life. At first, we were told it was colon cancer with peritoneal metastasis. Later, we learned it actually started in his appendix—appendiceal cancer. There is a difference. Even though both can involve the peritoneum, the origin matters—it affects treatment, prognosis, and which specialists should be involved. This rare cancer is often misdiagnosed, and even colonoscopies can appear normal. Symptoms like bloating, abdominal pain, bowel changes, and blood spotting can mimic other digestive issues. Some key facts: • Appendiceal cancer affects ~1–2 people per million per year • Over 50% of patients are diagnosed at Stage 4 • Colonoscopies often do not detect appendiceal tumors • Specialized centers with HIPEC + cytoreductive surgery improve survival outcomes • Many community hospitals may see zero cases per year My husband fought harder than anyone I’ve ever known. He never gave up hope, never wanted a prognosis, and fought for our son every day. Nutrition, holistic care, prayers, pleading, and love were never enough to stop the disease, but we did everything we could, including TPN during his final months. I share this story with his consent—not for likes, sympathy, or clout—but to honor the strongest man and the best dad I have ever known. I want our son to know how proud he should be of his dad. If sharing this saves another hero, another widow, or another child from losing their best friend, then it is worth it. Awareness can save lives—listen to your body, push for answers, understand your cancer, and seek specialists. 💔 #cancer #appendixcancer #rarecancer #widow #caregiver
#Rarecancer Reel by @thepatientstory - Cassandra was 5 ½ months pregnant with her first child when she was diagnosed with a rare cancer: adrenal cortical carcinoma. She shares what it was
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@thepatientstory
Cassandra was 5 ½ months pregnant with her first child when she was diagnosed with a rare cancer: adrenal cortical carcinoma. She shares what it was like navigating a diagnosis so few people get—while also being young, expecting, and terrified. #rarecancer #thepatientstory #AdrenalCorticalCarcinoma #cancerawareness #thepatientstory #rarecancerdiagnosis #cancer #cancerdiagnosis #pregnant #pregnantwithcancer
#Rarecancer Reel by @9newsmelbourne (verified account) - At just 24 years old, Isabella Alexander was diagnosed with a rare ovarian cancer. A new decade-long, Australian-led program is now aiming to make mo
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@9newsmelbourne
At just 24 years old, Isabella Alexander was diagnosed with a rare ovarian cancer. A new decade-long, Australian-led program is now aiming to make more treatment options available for younger ovarian cancer patients, like Bell. #9News
#Rarecancer Reel by @arijfatymajafri (verified account) - For the past few months, I've gone back and forth about whether or not to share my journey with my Instagram family. The reason is simple- not everyon
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@arijfatymajafri
For the past few months, I’ve gone back and forth about whether or not to share my journey with my Instagram family. The reason is simple— not everyone who follows you is truly happy for your happiness, sad for your sadness, or grieving for your grief. Sincerity can be rare. Still, I decided to share this because I believe it’s important to educate those who may not know about this condition so they can take their health seriously. I was diagnosed with choriocarcinoma cancer—and it was caught very early, which is a huge blessing. I’m so thankful because, in most cases, it’s discovered too late. Choriocarcinoma is a very aggressive cancer that spreads quickly. It often develops after a molar pregnancy, which happens when abnormal tissue grows in the uterus instead of a normal pregnancy. While molar pregnancies themselves are uncommon, in very, very, very rare cases, they can turn into choriocarcinoma—like mine did. Alhamdulillah, I am blessed to be living what feels like a second life. Alhamdulillah for my family. Alhamdulillah for everything that happened—because this illness was written in my destiny, yet Allah helped me overcome it and brought me closer to Him in ways I can never thank Him enough for. Even though I now have years of follow-up tests ahead of me to make sure it doesn’t return, I’m still deeply grateful. In fact, the thought of it coming back keeps me grounded, reminds me of death, and makes me live more intentionally. Please educate yourself. Don’t take your health lightly. Get yourself checked regularly. I didn’t have many symptoms, but Alhamdulillah, my cancer was diagnosed early. Please keep me and my family in your prayers. In moments when you’re face-to-face with death, nothing matters more than your family—and the thought of how you will stand before God. #Cancer #molarpregnancy #choriocarcinoma
#Rarecancer Reel by @natashaallen - cancer doesn't discriminate. it takes and it takes… diagnosed at 23 with a rare cancer and the cause? bad luck. you can be vegan, work out, and do eve
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@natashaallen
cancer doesn’t discriminate. it takes and it takes… diagnosed at 23 with a rare cancer and the cause? bad luck. you can be vegan, work out, and do everything right. please go to the doctor (if you are able to) if you find suspicious lumps or detect weird changes to your body! don’t dismiss things just because you are “too young” to have cancer. there is no too young! #ayacancer #cancer #ayacancerawareness #synovialsarcoma

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