#Sclerodermaawareness

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#Sclerodermaawareness Reel by @sclerodermaus - Scleroderma can cause painful skin tightening and jaw stiffness - but SheShutes has found a way to fight back. In this video, she shares the simple m
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@sclerodermaus
Scleroderma can cause painful skin tightening and jaw stiffness - but SheShutes has found a way to fight back. In this video, she shares the simple mouth stretches that help relieve her jaw pain and improve mobility. She also opens up about how our Foundation gave her the guidance and resources she needed to take control of her health. 💙 You're not alone in this. There is help, and there is hope. #SclerodermaAwarenessMonth #SclerodermaAwareness
#Sclerodermaawareness Reel by @justcpnotspecial (verified account) - Hey guys, meet my incredible friend, Luisa! @sclerolu We've been friends since high school, went to college together, and Lulu was always my shield-we
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@justcpnotspecial
Hey guys, meet my incredible friend, Luisa! @sclerolu We’ve been friends since high school, went to college together, and Lulu was always my shield—we never took 'no' for an answer. Not too many people know about Cerebral Palsy back then, in one of our college classes she made a whole presentation about Cerebral Palsy to teach our peers about my condition. Life pulled us apart for a while, but when I moved back from DC a couple years ago, we reconnected. I learned that she was/is now battling scleroderma, a progressive autoimmune disease that causes hardening and tightening of the skin and connective tissues. I've followed her journey with admiration, and today, after all these years, we finally got together. So glad that we reunited! This is a friendship that truly stands the test of time and circumstance. ❤️ Follow my friend Luisa to learn more about her journey 💪 @sclerolu #disabilityawareness #disabilityadvocate #cerebralpalsyawareness #scleroderma #sclerodermaawareness #sclerodermawarrior
#Sclerodermaawareness Reel by @sheshutes_shescores - It's World Scleroderma Day! Together with the National Scleroderma Foundation, we are raising awareness for this rare disease that all 5 of us have.
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@sheshutes_shescores
It’s World Scleroderma Day! Together with the National Scleroderma Foundation, we are raising awareness for this rare disease that all 5 of us have. Currently there is no cure for Scleroderma. We hope that will change in the future. But until we have a cure, we will raise awareness and continue to push for research. Happy World Scleroderma Day! #WorldSclerodermaDay #SclerodermaAwareness #RealPeopleRealStrength #RareButReal #chronicallyill #InvisibleIllness #IAmNotMyDiagnosis
#Sclerodermaawareness Reel by @rheum.md - Ever heard of nailfold capillaroscopy? 👀 We use this simple, noninvasive test to look at the tiny blood vessels at the base of your fingernails. It c
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@rheum.md
Ever heard of nailfold capillaroscopy? 👀 We use this simple, noninvasive test to look at the tiny blood vessels at the base of your fingernails. It can help us tell the difference between benign Raynaud’s and Raynaud’s associated with autoimmune diseases like scleroderma. Sometimes the clues are right at your fingertips — literally. 💅 #RaynaudsPhenomenon #SclerodermaAwareness #Capillaroscopy #SystemicSclerosis #Rheumatology #AutoimmuneDisease #ColdHands #InvisibleIllness #MedEd #NailfoldCapillaroscopy #RheumTok #MedicalReels
#Sclerodermaawareness Reel by @srfcure - A long road to answers: watch Rosa D. (dx 2019) tell her story of navigating her scleroderma diagnosis 🔍 For years, Rosa struggled with alarming sym
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@srfcure
A long road to answers: watch Rosa D. (dx 2019) tell her story of navigating her scleroderma diagnosis 🔍 For years, Rosa struggled with alarming symptoms, and like many people living with scleroderma, she was given several misdiagnoses before finally receiving an explanation. Today, Rosa is sharing her experiences to help raise awareness around scleroderma and the challenges that so many people encounter on the path to diagnosis. At the Scleroderma Research Foundation, we are dedicated to advancing innovative research that can help promote earlier diagnosis, inform better treatments, and ultimately, bring us closer to a world without scleroderma. Learn more about how scleroderma is diagnosed, treatments, and more at the link in the first comment below. #sclerodermaresearch #scleroderma #srfcure #awareness
#Sclerodermaawareness Reel by @alex.santana91 (verified account) - I GOT MY OWN SKATES!! ⛸️ Guys my feet are in AGONY! However today was my first skating session of 2026 and I got my own pair of skates thanks to @st
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@alex.santana91
I GOT MY OWN SKATES!! ⛸️ Guys my feet are in AGONY! However today was my first skating session of 2026 and I got my own pair of skates thanks to @streathamskatebooth for your recommendations and banter please go check them out if you are at any level skating for advice. It was a bit scary going back on however it doesn’t stop me raising awareness for @wearesruk and this is part of my marathon training/fundraising. The link is in the bio for any donations 🫶🏽 #adulticeskater #fundraisingforacause #sclerodermaawareness
#Sclerodermaawareness Reel by @sclero_cocoon - Everything still feels like a fever dream, but my heart is bursting with love and gratitude for every soul who helped raised Scleroderma awareness thi
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@sclero_cocoon
Everything still feels like a fever dream, but my heart is bursting with love and gratitude for every soul who helped raised Scleroderma awareness this weekend. Sending love, light, and blessings to all of you 🤗💙 ✟ #scleroderma #sclerodactyly #MPKSugatHilom
#Sclerodermaawareness Reel by @violetemor_onitsha (verified account) - Some external parts of my body Scleroderma affected 😌🤦🏻‍♀️ it can disable someone and it also affects the internal organs. #scleroderma #scleroderm
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@violetemor_onitsha
Some external parts of my body Scleroderma affected 😌🤦🏻‍♀️ it can disable someone and it also affects the internal organs. #scleroderma #sclerodermawarrior #sclerodermaawareness
#Sclerodermaawareness Reel by @junnapamela - Scleroderma Awareness: What skin symptoms can you see? 🩵 In this reel I'm showing some of the skin changes you can see… and reminding you there's so
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@junnapamela
Scleroderma Awareness: What skin symptoms can you see? 🩵 In this reel I’m showing some of the skin changes you can see… and reminding you there’s so much you can’t see, too. Thick, tight, shiny skin. Color changes. Swelling. Pain. If you notice these on yourself or someone you love, don’t ignore them. Early check-ups matter. Share this to help more people recognize the signs of scleroderma. 💙 #SclerodermaAwareness #AutoimmuneDisease #InvisibleIllness #ChronicIllness #RareDisease #SclerodermaWarrior #SclerodermaStrong #SclerodermaSupport #ChronicIllnessCommunity #KnowTheSigns #SpreadAwareness #HealthAwareness #AutoimmuneWarrior #SkinChanges #ChronicIllnessAwareness
#Sclerodermaawareness Reel by @metamorfosatanti (verified account) - Autoimun Scleroderma memungkinkan penyintasnya mengalami perubahana dalam bentuk wajah. Mba Yancy menceritakannya lebih lanjut mengenai penyebabnya.
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@metamorfosatanti
Autoimun Scleroderma memungkinkan penyintasnya mengalami perubahana dalam bentuk wajah. Mba Yancy menceritakannya lebih lanjut mengenai penyebabnya. Mba Yancy juga menyampaikan pesan untuk sahabat autoimun. Silakan menyimak. 🦋 #scleroderma #sclerodermaawareness #sclerodermawarrior #sclerodermafighter #autoimune #autoimmunewarrior #autoimunindonesia #tantidamayanti #bundaautoimun #metamorfosa
#Sclerodermaawareness Reel by @amanda_ferrin (verified account) - "It will sound crazy… until it happens." Just over a week ago, I was in a rollover accident. My car lost power and flipped across three lanes of traf
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@amanda_ferrin
“It will sound crazy… until it happens.” Just over a week ago, I was in a rollover accident. My car lost power and flipped across three lanes of traffic before landing in the median of the highway. I sustained multiple broken bones and have been hospitalized due to complications… but miraculously, I survived. If you know my story, this might just sound like another crazy miracle. And it is. But one of the thoughts that has lingered since the accident is how I move forward now without a vehicle. When you are living with a terminal illness, a fancy vehicle is not the priority. My small SUV was purchased simply to get me to and from appointments for a couple of years. We carried basic liability coverage. I expected that one day it might leave me broken down on the side of the road… but never imagined it would leave me upside down on the side of the road. Over and over again, I have been amazed by the way people have come together to move this miracle story forward. So I need your help. I don’t want to launch another fundraiser. I am deeply grateful for the ways people have already shown up, and I do not want to burn out that goodwill. But we really believe SOMEone knows someONE. Someone with a connection to a car brand. A local dealership. Or an individual willing to donate a safe, small SUV. Not luxury. Just dependable enough to get me to and from medical appointments I travel to across the state. Location is not a huge factor, though Florida, Colorado, or California would be ideal. What wild “you can’t make this up” moment could be written this time? Maybe sharing this is what sparks the story. Maybe you are that someone. I am believing for a miracle. Will you help me see it? Let’s let hope roll. Please share this. Like it. Comment. (I never say things like that— but we gotta bust the algorithm somehow, right? #runnersofinstagram #sclerodermaawareness #rundisney #cardonation
#Sclerodermaawareness Reel by @lungchicago (verified account) - June is Scleroderma Awareness Month! Meet Demi as she shares her experience with this rare disease during our "Living with Interstitial Lung Disease"
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@lungchicago
June is Scleroderma Awareness Month! Meet Demi as she shares her experience with this rare disease during our "Living with Interstitial Lung Disease" webinar. You can watch this prerecorded event at your convenience. 💙 https://on.lung.org/4aVShuB #SclerodermaAwareness

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