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#Cmv Reel by @keirascmvjourney (verified account) - Never underestimate the power of the right therapists. Trust your gut! #nonverbal #disabilityawarenessmonth #cmv #ccmv #CapCut #ccmv
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@keirascmvjourney
Never underestimate the power of the right therapists. Trust your gut! #nonverbal #disabilityawarenessmonth #cmv #ccmv #CapCut #ccmv
#Cmv Reel by @theransomefam (verified account) - CMV results & other updates! This week we had a few appointments with Sully-his usual transplant clinics and blood draw, a kidney ultrasound and a f
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@theransomefam
CMV results & other updates! This week we had a few appointments with Sully—his usual transplant clinics and blood draw, a kidney ultrasound and a follow up with his urology team for the first time post-transplant. First off, from his labs we learned he is still positive for the CMV infection, but the amount showing up in his body is decreasing a lot. He should beat this very soon! Woohoo! Secondly, all other kidney labs remain stable which is music to our ears. Today, we also had a kidney ultrasound done. This was the first ultrasound since our stay in the ICU for the transplant. Again, a huge praise report that everything still looks perfect and they have zero concerns about the kidney. Finally, we met with our urologist (who we adore!) and all agreed that for now the system we have in place—Sully’s vesicostomy—is sufficient. It is safest to keep his new kidney decompressed, and prevents the issue that cause all of this from happening (urine backing up into the kidney) to happen again. We will continue to see urology, but a bit less frequently for now, every six months or so. In the meantime we will wait and pray for Sully’s bladder to grow with him. How his bladder changes with age/growth will determine the path we take for the future when it comes time for closing his vesicostomy up. There’s a lot of options, and we just need more time to find the best and longest lasting solution for him! But right now, the vesicostomy is working perfectly and causing zero issues. All in all very good news! We are so excited that he has a kidney and it’s working—still can’t believe it!!! #sullystrong #sullystransplantjourney #update #news #results #infection #kidneytransplant #pediatrics #ultrasound
#Cmv Reel by @nationalcmv - Don't be ridiculous! Everybody deserves to know about congenital CMV! The Devil Wears Prada #dontberidiculous
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@nationalcmv
Don’t be ridiculous! Everybody deserves to know about congenital CMV! The Devil Wears Prada #dontberidiculous
#Cmv Reel by @marchofdimes (verified account) - Do you know what Congenital Cytomegalovirus (CMV) is? Most of the time CMV doesn't cause any symptoms, which means you may not know for sure if you ha
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@marchofdimes
Do you know what Congenital Cytomegalovirus (CMV) is? Most of the time CMV doesn’t cause any symptoms, which means you may not know for sure if you had it or not. Before you try to get pregnant, find out if you’ve ever been infected with CMV. Ask your health care provider for a blood test to know your CMV status. Thank you Shantel, for raising #CMVawareness and sharing your story! #CMV #CMVawarenessmonth Statistics from the Centers for Disease Control & Prevention (#CDC) 🎬 @maddox.and.shantel on TikTok
#Cmv Reel by @drshannyndc (verified account) - CMV (HSV-5) doesn't get nearly as much attention as EBV - but it's part of the same herpesvirus family and can behave in similar ways. It can remain
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@drshannyndc
CMV (HSV-5) doesn’t get nearly as much attention as EBV — but it’s part of the same herpesvirus family and can behave in similar ways. It can remain in the body long term, and there’s often no clear outward sign to point you toward it. That’s why testing matters. CMV has been associated with: • Ongoing fatigue • Neurological symptoms • GI-related conditions • Immune suppression patterns • Increased cardiovascular risk It’s also not uncommon to see CMV and EBV together. When symptoms don’t fully resolve or feel layered, sometimes it’s because more than one virus is involved. Awareness creates options. Comment below if you want to keep following this series. Educational purposes only. Always consult your healthcare provider.
#Cmv Reel by @leckeydotcom - Try candy floss for the first time 🥰 10/10 from Caroline @carolines_cmv_journey #disabilityawareness #cmv #sen #senparenting #inclusion
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@leckeydotcom
Try candy floss for the first time 🥰 10/10 from Caroline @carolines_cmv_journey #disabilityawareness #cmv #sen #senparenting #inclusion
#Cmv Reel by @koco5news (verified account) - A four-year-old boy from Oklahoma, born with congenital CMV, experiences the world of sound for the first time after receiving cochlear implants. More
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@koco5news
A four-year-old boy from Oklahoma, born with congenital CMV, experiences the world of sound for the first time after receiving cochlear implants. More here: https://tinyurl.com/4u9vs4f2
#Cmv Reel by @marchofdimes (verified account) - If you are pregnant or planning to become pregnant, it's important to know about Congenital Cytomegalovirus (CMV). CMV is a common, usually harmless,
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@marchofdimes
If you are pregnant or planning to become pregnant, it’s important to know about Congenital Cytomegalovirus (CMV). CMV is a common, usually harmless, viral infection that most of us get at some point in our lives. But if you are pregnant and get CMV for the first time, your baby can get the infection, leading to serious illness and lasting disabilities in some babies. Before getting pregnant, ask your health care provider for a blood test to know your CMV status. Thank you @candice.__._ for raising awareness and sharing your story!
#Cmv Reel by @dr.platanito_usmle - CMV Tx: 🐛 💊Cidofovir 💊Foscarnet 💊Gancyclovir Make Gains! #drplatanito #usmlementor #usmle #usmletutor #usmlecoach
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@dr.platanito_usmle
CMV Tx: 🐛 💊Cidofovir 💊Foscarnet 💊Gancyclovir Make Gains! #drplatanito #usmlementor #usmle #usmletutor #usmlecoach
#Cmv Reel by @nyehomegrownspeech - About 1 in 200 babies (0.5%) are born with congenital CMV in the U.S., making it the most common infectious cause of birth defects (information from c
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NY
@nyehomegrownspeech
About 1 in 200 babies (0.5%) are born with congenital CMV in the U.S., making it the most common infectious cause of birth defects (information from childrenshospital.org) At 22 weeks, the first question we were asked before we knew any other information or had an updated ultrasound to see what was going on: “Have you thought about termination?” Her response back when she realized we were so taken back by the question was that legally in CT, you can only abort until the 24th week, and she wanted to essentially save us the “hassle” of needing to go to another state who terminates up until later on in the pregnancy if we decided to change our minds… 🤯 I wish this was something we had been warned about and or taught growing up CMV, Cytomegalovirus, often looks like a mild cold, but when it’s contracted before birth, the impact can be life-changing for the baby ✔️ 1 in 200 babies are born with congenital CMV ✔️ 1 in 5 may face long-term challenges like hearing loss or developmental delays What’s hard to process is how preventable some exposure can be with simple awareness and education! This post isn’t about blame, it’s about information. It’s about parents being empowered before it’s too late. If you’re pregnant, planning to be, or love someone who is, please read, save, and share with them! 🫶🏼💛 Knowledge truly is power! #slp #speechtherapist #languagedevelopment #holistic #cmvawareness
#Cmv Reel by @lifewithcmvandasd - Another great year working with @cbrteam1 ! Can't wait to kick more goals next year. Great work team! - #journey #cmv #disability #hypotonia #lowtone
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@lifewithcmvandasd
Another great year working with @cbrteam1 ! Can't wait to kick more goals next year. Great work team! - #journey #cmv #disability #hypotonia #lowtone stopcmv asd cytomegalovirus autism nevergive disabilityawareness hiddendisability

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