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Trending Reels

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#Curefa Reel by @kiersten.riggs - Day in the life of living with Friedreich's Ataxia ❤️💪🏼 #friedreichsataxia #raredisease #cureFA
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@kiersten.riggs
Day in the life of living with Friedreich’s Ataxia ❤️💪🏼 #friedreichsataxia #raredisease #cureFA
#Curefa Reel by @tif.fa.nys_ataxia - FA doesn't define me, I define FA! If you can see past the mobility you'll find that I'm so much more than my disability. ☀️ #curefa #friedreichsata
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@tif.fa.nys_ataxia
FA doesn’t define me, I define FA! If you can see past the mobility you’ll find that I’m so much more than my disability. ☀️ #curefa #friedreichsataxia #ataxiaawareness
#Curefa Reel by @kellyandfa - "I've given a lot of thought to what softness means to me.  I think softness is intertwined with feminine energy.  The more I live in my feminine ener
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@kellyandfa
“I’ve given a lot of thought to what softness means to me.  I think softness is intertwined with feminine energy.  The more I live in my feminine energy, the softer I become. I’ve narrowed it down to living with grace, accepting help, and showing compassion towards my body.” Read the full blog post at the link in my bio x I always get so many questions about my mobility aid – this is from @rollzint and I absolutely love it! It’s a 2-in-1 Rollator and wheelchair. You can use the code KELLYANDFA for $100 off a rollz motion! Let me know any questions 🦓🤍 #raredisease #curefa #friedreichsataxia #mobilityaid #disability #ataxia
#Curefa Reel by @bionews_rare - If you or a loved one has Friedreich's ataxia, and you're comfortable sharing - drop your age and where you're from in the comments! 💬 Let's connect,
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@bionews_rare
If you or a loved one has Friedreich’s ataxia, and you’re comfortable sharing — drop your age and where you're from in the comments! 💬 Let’s connect, support each other, and keep building this amazing FA community. Huge thanks to @curefasoiree for bringing so many of us together. Want to meet more people living with FA? Tap the link in bio to explore personal stories in our FA columns! #FriedreichsAtaxia #FACommunity #RareDisease #ChronicIllnessSupport #DisabilityAwareness #CureFA #Bionews #FriedreichsAtaxiaNews
#Curefa Reel by @walkernotwalking - Rolling is something that has gotten really hard for me the last few years as FA has progressed. Today in physical therapy, I had to roll onto each si
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@walkernotwalking
Rolling is something that has gotten really hard for me the last few years as FA has progressed. Today in physical therapy, I had to roll onto each side (I had to roll all the way to my hip or it didn’t count) and tap the cone with the opposite hand. I did this for a minute 4x and got to 22 rolls in one minute! And yes, those are weights around my wrists to make it harder. Next step is to try to keep my legs out instead of folding them in. I show a lot of walking and weight lifting, but this functional part of PT is often the most important part for me. #physicaltherapy #functionalpt #strength #disabledcreator #wheelchair #disability #raredisease #neuromusculardisease #friedreichsataxia #curefa
#Curefa Reel by @lifewithahasi - One of the best things I could have done was to try out #OccupationalTherapy ! They give you skills which you never knew you needed! Highly recommend
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@lifewithahasi
One of the best things I could have done was to try out #OccupationalTherapy ! They give you skills which you never knew you needed! Highly recommend trying an OT #WheelchairLife #CureFA
#Curefa Reel by @inaontour (verified account) - Anzeige | Friedreich-Ataxie ist eine seltene Erkrankung, bei der das Gleichgewicht und die Bewegungskoordination gestört sind. Viele Betroffene werden
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@inaontour
Anzeige | Friedreich-Ataxie ist eine seltene Erkrankung, bei der das Gleichgewicht und die Bewegungskoordination gestört sind. Viele Betroffene werden falsch eingeschätzt – oft als „tollpatschig“ oder sogar „betrunken“.   Wenn du so etwas schon erlebt hast oder jemanden kennst, der damit kämpft – Unter http://www.biogen.de/hab-ich-fa findest du weitere Infos und Anlaufstellen.   #FriedreichAtaxie #DiseaseAwareness #SelteneErkrankungen #curefa @biogen_deutschland
#Curefa Reel by @coffey_house (verified account) - Social media shows the highlights, the smiles between the hard parts. But real life lives in the in-between. It lives in the fear, the heartbreak, the
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@coffey_house
Social media shows the highlights, the smiles between the hard parts. But real life lives in the in-between. It lives in the fear, the heartbreak, the grit, the love that shows up anyway. Having a child with a rare disease asks more of you than you ever imagined. I choose to be here honestly, because imperfect lives still have incredible beauty. #raredisease #curefa #liveauthentic #childhoodunplugged #medicallycomplex
#Curefa Reel by @fittofunctionrecovery - "The path of the exceptional person is one of an exception." We have so many athletes who come through these doors, each one unique in their experien
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FI
@fittofunctionrecovery
“The path of the exceptional person is one of an exception.” We have so many athletes who come through these doors, each one unique in their experience, challenges, goals, limitations, and desires. All walks of life, stories vast and varied, and yet somehow so similar. 
There is something so uniquely special about having these two, with the same rare disease, #friedriechsataxia estimated to affect 1 in 50,000 people in the United States and 1 in 40,000 people globally, a part of this program. And on this day, here together, training at the same time. Their disease processes and stages are different, their limitations similar but with a different scope. Their training goals are different, one staying functionally fit for life, the other training competitively, though overall the very same thing is at the heart of it all: to live, train, and be #betterthangoodenough in all that they do. Fitness is merely an expression of how they can achieve more than anyone thought possible. 
I’m honestly humbled just to be surrounded by these athletes every day. Someone once said “every excuse not to - none taken.” And that is them, no excuses, just #betterthangoodenough through and through. Thanks for being here @joeymullaney1 and @yoitscurly - with this content leveled up by a cameo from the one and only @legless_liz 💪🏼 🎥 @tabathaskeltonphoto #recoveryknowsnolimits #recoverbetter #fittofunctionrecovery #functionalfitness #crossfit #fa #curefa #neuromusculardiseases #adaptiveathlete #adaptivecrossfit #crossfitisforeverybody 🔗 contact information available via the link in bio 🔗
#Curefa Reel by @curefa_org - Every discovery in FA research begins with support like yours. Donate today to make a difference in honor of FA Awareness Month. Thank you for your s
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@curefa_org
Every discovery in FA research begins with support like yours. Donate today to make a difference in honor of FA Awareness Month. Thank you for your support — this May and always. Help fuel FA research progress by making a donation at curefa.org/breakthrough. #CureFA #FAAwarenessMonth
#Curefa Reel by @neobycejna_rodina - Pracoval Kuba někdy ? 👀🤗👨‍🍳 @janminha @dalibor_krivanek @jirkahor @chefkamu @oldriches @_jana__jelic_ @jirasek30 @marekpilat @josefvotocek @ptr_br
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@neobycejna_rodina
Pracoval Kuba někdy ? 👀🤗👨‍🍳 @janminha @dalibor_krivanek @jirkahor @chefkamu @oldriches @_jana__jelic_ @jirasek30 @marekpilat @josefvotocek @ptr_brts @cibulak @kure001 @otto.vasak @petrbrnak_chef #kuchar #gastro #ladegustationbohemebourgeoise #michelinstar #friedreichsataxia #curefa #prace #workhard
#Curefa Reel by @fishingformd - Wonderful evening supporting our friends, the Maugee family, at the Runway to a Cure to benefit @friedreichataxia a form of #musculardystrophy. Raisin
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@fishingformd
Wonderful evening supporting our friends, the Maugee family, at the Runway to a Cure to benefit @friedreichataxia a form of #musculardystrophy. Raising awareness and funds to support cures and treatments. #ffmd #freidrichsataxia #musculardystrophyawareness #fara #runwaytoacure #curefa

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