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#Pws Reel by @pwskorea - 한국에서 최연소 PWS 챔피언 탄생! 난리난 현장을 확인해 보세요 텐션업! 별빛나루! 다음 이벤트! 2월 21일 장미의 유혹! 인터파크 NOL 절찬리 판매! 첫번째 스페셜 게스트 : 재패니즈 버즈소우, 타지리
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@pwskorea
한국에서 최연소 PWS 챔피언 탄생! 난리난 현장을 확인해 보세요 텐션업! 별빛나루! 다음 이벤트! 2월 21일 장미의 유혹! 인터파크 NOL 절찬리 판매! 첫번째 스페셜 게스트 : 재패니즈 버즈소우, 타지리
#Pws Reel by @mike_abz (verified account) - Confidence. Courage. Consistency. 💙 Jim was born with PWS, but he refuses to be defined by limits. Week after week he shows up, works hard, and bel
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@mike_abz
Confidence. Courage. Consistency. 💙 Jim was born with PWS, but he refuses to be defined by limits. Week after week he shows up, works hard, and believes. Today he completed his box step — and reminded us all: ✨ Every child deserves a chance ✨ Progress is progress ✨ Anything is possible One step at a time. 💪💙
#Pws Reel by @yua_luv_____ - . ✩࿐⋆* pwsのなかでも さらにのんびりなゆあさん でも目標に向かって 粘り強く進んでいく姿は 私も見習わないと…って 思わされるくらい 本当に頑張り屋さんです！ 最近は癇癪もパワーアップしていますが それもきっと成長の証(だと言い聞かせて) 親子ともにのんびり過ごしていきます🪽
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@yua_luv_____
. ✩࿐⋆* pwsのなかでも さらにのんびりなゆあさん でも目標に向かって 粘り強く進んでいく姿は 私も見習わないと…って 思わされるくらい 本当に頑張り屋さんです！ 最近は癇癪もパワーアップしていますが それもきっと成長の証(だと言い聞かせて) 親子ともにのんびり過ごしていきます🪽 #3歳#男の子ママ#子育て#プラダーウィリー症候群#プラダーウィリー症候群の親と繋がりたい#15トリソミー
#Pws Reel by @mike_abz (verified account) - Link in a bio :👆 We've launched a GoFundMe to help us build a gym where children with special needs can train for free. Jim has Prader-Willi Syndrom
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@mike_abz
Link in a bio :👆 We’ve launched a GoFundMe to help us build a gym where children with special needs can train for free. Jim has Prader–Willi Syndrome (PWS), a rare and complex genetic condition that can affect muscle tone, metabolism, and appetite regulation. These challenges can make maintaining a healthy weight and building strength more difficult, which makes Jim’s commitment and progress even more impressive.
#Pws Reel by @praderwillicalifornia - Your walk prep doesn't have to be perfect - it just has to be yours 💙💚 This is how we're getting ready for the PWS Walk… how are you preparing? Ta
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@praderwillicalifornia
Your walk prep doesn’t have to be perfect — it just has to be yours 💙💚 This is how we’re getting ready for the PWS Walk… how are you preparing? Tag @praderwillicalifornia in your walk prep and let’s fill this feed with color, joy, and awareness to celebrate PWS Awareness Month with us! #pws #pwsawareness #praderwillisyndrome #pwswalk #walkforpws #pwscommunity #disabilityawareness #awarenesswithjoy #pwsawarenessmonth #familyforpws #joyinawareness #blueandgreenforpws #25yearsofwalking
#Pws Reel by @everydaywithjoy (verified account) - Riding a trike! We tried something new at Physical Therapy this week. Emery actually HAS a trike, but because of her hip pain and hip surgery last yea
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@everydaywithjoy
Riding a trike! We tried something new at Physical Therapy this week. Emery actually HAS a trike, but because of her hip pain and hip surgery last year, she hasn’t been on it in FOUR years! We tried out the trike at our PT gym and it was amazing! Emery was so sore the rest of the day, but I’m so proud of her for doing something so incredibly difficult! Instead of fighting us and ending the appointment in tears, she was laughing, smiling and asking to go faster! All these little wins make all the hard work and consistency worth it. | physical therapy for Brain stem stroke | #strokesurvivor #disability #pws #medicalmama
#Pws Reel by @natalya_sharifzyanova - Если вашему ребёнку поставили диагноз синдром Прадера-Вилли?! При этом ваш ребёнок уже имеет морбидное ожирение. Вам просто срочно нужно его спасать.
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@natalya_sharifzyanova
Если вашему ребёнку поставили диагноз синдром Прадера-Вилли?! При этом ваш ребёнок уже имеет морбидное ожирение. Вам просто срочно нужно его спасать. Искать специалистов, которые помогут его худеть. Так как при синдроме Прадера-Вилли и морбидном ожирении очень высокая смертность у детей. Любая, даже самая легкая вирусная инфекция - может стать летальной для таких детей. Легкие задохнутся, сердце остановится. 💔 И это не будет внезапно. Вы шли к этому все годы, что набирали лишний вес своему ребёнку. Может пора остановиться?! И начать худеть? 🙏🏻 Синдром Прадера-Вилли не равно ожирение. Просто знайте об этом. И пока ваш ребёнок жив - многое можно исправить. Обнимаю! ❤️ #синдромпрадеравилли #pws #прадеравиллисиндром
#Pws Reel by @pubgesports_kr - 아직도 PWS 참여 안했니? 프로필 링크 눌러서 지금 바로 참가 ㄱㄱ #PWS #지금바로참가 #이노닉스 #피오
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@pubgesports_kr
아직도 PWS 참여 안했니? 프로필 링크 눌러서 지금 바로 참가 ㄱㄱ #PWS #지금바로참가 #이노닉스 #피오
#Pws Reel by @dailyvictorylifegoals - Dr. Miller trips are always amazing! Thankful for a doctor that cares about Catalina's health and the complexities that come along with PWS. Thankful
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@dailyvictorylifegoals
Dr. Miller trips are always amazing! Thankful for a doctor that cares about Catalina’s health and the complexities that come along with PWS. Thankful for the support of Dietitian Michael Tan! I deeply appreciate the insight on how to care for my child’s need more appropriately as she ages. The knowledge that can be shared amongst parents and doctors really does help! And more than anything I appreciate the help of my partner, best friend, love of my life! You make the best out of life everyday! You wake up happy and your soul is just pure love! I appreciate your help, your love, and your presence and the fact that you’re totally a Disney Dad! ❤️ Super grateful for this experience! No detail was missed 🙏
#Pws Reel by @valiant_vivian_ - 2024 broke me. Between pregnancy, a shocking and traumatic birth, an unexpected diagnosis of our child, and finding our footing caring for our daughte
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VA
@valiant_vivian_
2024 broke me. Between pregnancy, a shocking and traumatic birth, an unexpected diagnosis of our child, and finding our footing caring for our daughter - it was by far the most difficult year. 2025 felt like a rebirth of myself. Myself as a mother and an individual. Vivian has blown me away in multiple aspects, and I’ve learned not to limit her. Her pure joy despite all challenges melts everyone’s hearts. She now gives me hugs and kisses on command and I seriously can’t handle it🥹 She’s absolutely thriving. This year, I started enjoying activities that I liked again. I found strength in myself to persevere despite the circumstance, no matter how difficult. I’ve become part of a powerful community that fights HARD for their kids, and it’s beyond inspiring. I’ve found passion in advocacy for a cause that’s important and directly affects my daughter and our family. I still have anxiety and fear of the unknown with what our future holds. Grief still strikes when I least expect it. However, my mindset has shifted by witnessing my daughter give all the love she receives right back to us. Vivian is a true inspiration and my greatest joy. My 2024 self wouldn’t have believed I could have written this post. Hard times are often blinding of a happier future. For anyone in the depths of grief and difficult times, hold onto that seemingly unattainable hope that good times are just beyond the fog💜 #praderwillisyndrome #pws #raredisease #2025newyear #hope
#Pws Reel by @reagan.baylee (verified account) - YEAR 29 (reagan's version) 🥹🎂 forever in love w the words of @josiebalka ✨ 🫶 here's to the last year of my 20's!! eeep!
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@reagan.baylee
YEAR 29 (reagan’s version) 🥹🎂 forever in love w the words of @josiebalka ✨ 🫶 here’s to the last year of my 20’s!! eeep!

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