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CAI’ve been thinking a lot about how I’ve shared my experience with ALS throughout the years. I’ve always tried to be honest, and that honesty has come from a vulnerable place. But I worry that in trying to express how difficult this illness can be, I may have unintentionally made it sound terrifying—like something only defined by fear and loss.
The truth is, ALS is incredibly hard. There’s no way around that. But it’s also not just the illness itself—it’s the people, the moments of connection, the unexpected strength that shows up even in the hardest days. There’s still beauty, love, and life here.
I don’t want my story to scare people or make them feel hopeless. I want it to help others understand what ALS really is—not just the medical side, but the human side. The messy, emotional, real side that still holds meaning.
If my words have made the disease feel overwhelming, I hope this helps bring some balance. I’m still here, still me, still finding light in the dark—and that matters just as much as the struggle.
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#alsawareness #alssucks #kissmyals #nowhiteflags #mnd #als #wheelchair #♿️
@carbajalphoto
