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#Cnbccures Reel by @cnbc (verified account) - Today we're introducing CNBC Cures, an initiative bringing together families, doctors, investors and regulators with one goal in mind: helping to rais
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@cnbc
Today we're introducing CNBC Cures, an initiative bringing together families, doctors, investors and regulators with one goal in mind: helping to raise awareness of, and improve patient outcomes for, the 30 million Americans suffering from rare diseases. It's an initiative that hits close to home for CNBC's Becky Quick. Quick's 9-year-old daughter, Kaylie, has a rare genetic disease called SYNGAP1. Read more about how Quick's family has navigated the path after Kaylie's diagnosis, at the link in bio.
#Cnbccures Reel by @cnbcevents (verified account) - Next week, the CNBC Cures Summit convenes in NYC, and we're bringing top investors, medical experts, policy makers and leaders in biotech to the stage
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@cnbcevents
Next week, the CNBC Cures Summit convenes in NYC, and we’re bringing top investors, medical experts, policy makers and leaders in biotech to the stage to talk about the future of rare disease. Learn about our speakers, check out the agenda, and reserve your spot for the free livestream at the link in bio. #CNBCCures
#Cnbccures Reel by @cnbctv (verified account) - As part of CNBC Cures, we're spotlighting the biggest barriers facing the rare disease community. Biotechnology Innovation Organization CEO John Crowl
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@cnbctv
As part of CNBC Cures, we’re spotlighting the biggest barriers facing the rare disease community. Biotechnology Innovation Organization CEO John Crowley shared his journey as both a rare disease parent and as a CEO fighting for change within the industry, and he said science isn’t the problem, but policy is. Crowley warned that outdated U.S. drug regulations are slowing innovation, driving up costs, and pushing capital overseas. “We’re in the golden age of medicine,” he said, “but the biggest challenges are manmade.” Watch more at the link in bio.
#Cnbccures Reel by @cnbcevents (verified account) - Former FDA Commissioner Scott Gottlieb told CNBC's Becky Quick at the #CNBCCures Summit on Tuesday that the challenge for health insurers is that "uti
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@cnbcevents
Former FDA Commissioner Scott Gottlieb told CNBC’s Becky Quick at the #CNBCCures Summit on Tuesday that the challenge for health insurers is that “utilization is increasing” and more people are using specialty drugs. #raredisease
#Cnbccures Reel by @curesyngap1 - Becky Quick launches CNBC Cures, Finding Your Voice & Key Talking Points for SRD! #S10e194 Friday, January 9, 2026 - Week 2 Big news in SYNGAP-land,
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@curesyngap1
Becky Quick launches CNBC Cures, Finding Your Voice & Key Talking Points for SRD! #S10e194 Friday, January 9, 2026 - Week 2 Big news in SYNGAP-land, Becky Quick and Matt Quayle have a beautiful SynGAPian named Kaylie & they are launching CNBC Cures! - Wonderful to have more awareness of SYNGAP1, I hope it leads to more diagnoses. - My two favorite quotes from the episode and podcast: “There is no Mission without Money”-BQ & “She has reset our whole life plan…one day I’m going to be gone and is Kaylie going to be ok?”-MQ - Here is our page with all the links! https://www.linkedin.com/posts/curesyngap1_syngap1-curesyngap1-cnbccures-activity-7415094066675216387-32wF https://curesyngap1.org/kaylie It's important for us all to remember that it can take time to find our voice. And then use it. Speaking of using our voice, what can you say? We worked yesterday on Key Talking points which will live here and I will talk about them in the next episode. https://docs.google.com/document/d/1lXaDQEVwF1K_yAU-RicaJibxb8xoJtldSvnVgopwu00/edit?usp=sharing First paper of 2026, Challenges of Caregiving in SYNGAP1, STXBP1, and TSC. https://pubmed.ncbi.nlm.nih.gov/41405416/ PUBMED is at 1 for the year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2026&timeline=expanded&sort=date SOCIAL MATTERS 4,546 LinkedIn. https://www.linkedin.com/company/curesyngap1/ 1,500 YouTube. https://www.youtube.com/@CureSYNGAP1 11.2k Twitter https://twitter.com/cureSYNGAP1 45k Insta https://www.instagram.com/curesyngap1/ $CAMP stock is at $6.20 on 8 Jan. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10/ Episode 194 of #Syngap10 #CureSYNGAP1 #Podcast
#Cnbccures Reel by @cnbcevents (verified account) - Alexander Harstrick, Co-founder and Managing Partner J2 Ventures, shared how he thinks AI will positively impact those managing a rare disease at the
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@cnbcevents
Alexander Harstrick, Co-founder and Managing Partner J2 Ventures, shared how he thinks AI will positively impact those managing a rare disease at the CNBC Cures Summit. #CNBCCures #ai #raredisease
#Cnbccures Reel by @cnbc (verified account) - Jeff Allen took home the largest cash prize in game show history when he won $10 million competing on "Beast Games," where he was able to shine a ligh
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@cnbc
Jeff Allen took home the largest cash prize in game show history when he won $10 million competing on “Beast Games,” where he was able to shine a light on his son’s rare disease on a public stage. Find more from CNBC Cures at the link in bio.
#Cnbccures Reel by @cnbcevents (verified account) - Where does great innovation come from? Dr. Stan Crooke, @nloremfoundation Foundation Chairman & CEO and widely regarded as the father of antisense oli
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@cnbcevents
Where does great innovation come from? Dr. Stan Crooke, @nloremfoundation Foundation Chairman & CEO and widely regarded as the father of antisense oligonucleotide (ASO) medicine shared his thoughts on medical innovation and AI at the CNBC’s Cures Summit. You can watch his session at the link in bio. #CNBCCures #ai

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