#Chronicallyjenni

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#Chronicallyjenni Reel by @sweet.honeyed.bones - It was hard at first not seeing people like me in public, but seeing other disabled folk online makes me feel a little less alone and I hope I can mak
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@sweet.honeyed.bones
It was hard at first not seeing people like me in public, but seeing other disabled folk online makes me feel a little less alone and I hope I can make someone else feel that way #disability #dynamicdisability #spoonie #chronicallyill #disabled
#Chronicallyjenni Reel by @wheeliechronic (verified account) - There's a strange double standard when it comes to talking about difficulty in life. Parents can talk about how hard toddlers are. Athletes talk abou
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@wheeliechronic
There’s a strange double standard when it comes to talking about difficulty in life. Parents can talk about how hard toddlers are. Athletes talk about brutal training schedules. People complain about work stress, exams, commuting, or renovating a house. All of those things can absolutely be difficult and society accepts that people are allowed to talk about it. But when disabled people say that living with chronic illness or disability is difficult, suddenly it’s treated as “complaining.” That reaction reveals a lot about how society expects disabled people to behave; quiet, grateful, and invisible. The reality is very different. Around 1 in 6 people globally live with a disability (World Health Organisation). Disabled people are significantly more likely to experience barriers in employment, healthcare, and everyday life. Many people with chronic illnesses also spend years trying to get a diagnosis, often being dismissed or misdiagnosed before receiving the support they need. So when disabled people talk about their lives, we’re not complaining. We’re describing our reality. Sometimes it’s advocacy. Sometimes it’s education. Sometimes it’s simply honesty. And honesty shouldn’t make people uncomfortable. But if it does, maybe that says more about society than it does about disabled people. 📚Sources: 👉🏻 World Health Organisation – Global Disability Statistics 👉🏻UK Office for National Statistics – Disability employment gap 👉🏻 The Lancet Commission on Disability and Health #disabilityawareness #chronicillness #ableism #disabilityrights #disabledvoices
#Chronicallyjenni Reel by @arie.rosee - Disability doesn't have to be a negative word! #disability #chronicillness #disabilitypride
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@arie.rosee
Disability doesn’t have to be a negative word! #disability #chronicillness #disabilitypride
#Chronicallyjenni Reel by @nevergiveuporg - This is a nuanced discussion. For the most part, people's intentions are well meaning and supportive of disability. However, our collective responsibi
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@nevergiveuporg
This is a nuanced discussion. For the most part, people’s intentions are well meaning and supportive of disability. However, our collective responsibility as a society has evolved and our language and expectations should too. I hope my non disabled friends watch this and let it resonate so we can all collectively grow and learn. Sharing @chronicallyjenni Inclusion Isn’t Inspiration. You’ve seen it before: A disabled kid gets asked to prom. A Deaf baby reacts to a hearing aid. A wheelchair user finishes a race. And the comments? - “So inspiring.” - “This made me cry.” - “Well I’ve got no excuses now!” But here’s the thing: Existing as a disabled person, or getting access to basic tools. isn’t inspirational. Going to school, doing sport, reacting to sound… these aren’t “incredible” just because we’re doing them disabled. We don’t exist to make non-disabled people feel grateful or motivated. That’s not inclusion. Real inclusion means making sure we’re part of the story, on our own terms. It means celebrating our achievements because we value them, not because they make others feel good. So next time you’re tempted to say “you’re so inspiring” for something you’d never say if a non-disabled person did it, pause and ask: Is this about them, or about how it makes me feel? Let’s move from inspiration to inclusion.
#Chronicallyjenni Reel by @psyv - 🎥 💬 video transcript below only once has someone said the word disability after i've talked about being disabled (and that it sucks). #Repost @chr
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@psyv
🎥 💬 video transcript below only once has someone said the word disability after i’ve talked about being disabled (and that it sucks). #Repost @chronicallyjenni The Things No One Talks About When You Become Disabled Here are the things nobody talks about when it comes to being disabled. The quiet things. The things you often only realise years later. 1. It’s unlikely that anyone is going to explicitly tell you that you’re disabled. You might get a diagnosis or told you can’t do certain things like be able to see or walk again. But Disability is an identity that you have to discover and own for yourself. Because there is no handbook. 2. The little internal voice that questions everything. Even when you know your disability is real, there is still that small voice asking if you are exaggerating, if you really need this aid or that support, or if you should just push through. It is internalised ableism and it takes time to unlearn. 3. The shock of realising how much you masked before.When you finally accept being disabled, you look back and realise how long you were already adapting, avoiding, adjusting, and pretending. You were already experiencing the barriers that disability brings but without the language for it. 4. The grief that shows up in tiny, unexpected moments, not dramatic. Just a quiet sadness when you realise something that used to be easy now needs planning, energy, or an aid. It is normal. It is human. It is part of adapting. 5. How long it takes to feel allowed to rest. Even on the worst days, there is guilt for sitting down, guilt for cancelling, guilt for choosing the chair. You have to teach yourself that rest is not optional. It is survival. 6. The way other people stop mentioning it because they do not know what to say. It’s not out of malice. Just awkwardness. And it can make you feel like you have to downplay everything to keep other people comfortable. What is one quiet truth about disability or chronic illness that you wish someone had told you earlier? The things we say out loud help others feel less alone. #DisabilityEducation #ChronicIllness #DisabilityAwareness
#Chronicallyjenni Reel by @riizzyray (verified account) - When people ask me what my 5 year plan is, I never seem to have a good answer. I've been reflecting on this recently and I've realized that me being
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@riizzyray
When people ask me what my 5 year plan is, I never seem to have a good answer. I’ve been reflecting on this recently and I’ve realized that me being disabled has a lot to do with this. Because when you’re disabled, you live an unpredictable life. Things are always changing. New caregivers, new schedules, new symptoms, new doctors appointments, new medical equipment, and just the general chaos of the world. I feel like any semblance of stability will always get ripped out from under me. And it’s so hard living like that. Feeling like you have such little control over your life. But that’s the unfortunate reality of being a disabled person. Anyone else?
#Chronicallyjenni Reel by @torimosser - grateful through it all ♡ #disability #chronicillness #spoonie #dynamicdisability #disabled
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@torimosser
grateful through it all ♡ #disability #chronicillness #spoonie #dynamicdisability #disabled
#Chronicallyjenni Reel by @robynlambird - "Let me guess… you've got some rare illness that stops you from contributing to society." That was the comment. And it says more about how we define
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@robynlambird
“Let me guess… you’ve got some rare illness that stops you from contributing to society.” That was the comment. And it says more about how we define worth than it does about me. So let's talk about it Underneath this commeny is the belief that disability is an excuse. That people are choosing not to contribute. That value = productivity. It's a belief that a lot of us grapple with on a daily basis. And we’ve spent our entire lives trying to prove we are enough, in a system that already assumes we’re not. Eventually that pressure gets internalised. It shapes how we see ourselves. How hard we push. What we think we’re allowed to be proud of. But Disability Justice reminds us: our worth is inherent. Not something we earn through output or independence. So maybe the real question isn’t “are you contributing?” Maybe it’s: " How can we care for each other" Because care, connection, and interdependence are the foundations from which real contribution can flourish.
#Chronicallyjenni Reel by @gumandnuts - Disability is the only community you can become a part of at any time. And if you live long enough, you definitely will. #disability #disabilityawaren
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@gumandnuts
Disability is the only community you can become a part of at any time. And if you live long enough, you definitely will. #disability #disabilityawareness
#Chronicallyjenni Reel by @seated.perspectives - Starting something brand new has been a lesson in trusting myself. Not waiting until I feel "ready enough" or "qualified enough" - just starting from
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@seated.perspectives
Starting something brand new has been a lesson in trusting myself. Not waiting until I feel “ready enough” or “qualified enough” — just starting from the thing I know to be true: disabled joy deserves more space in the world. I’m creating a community for that. A place where we get to be more than our access needs, more than our diagnoses, more than inspiration for strangers on the internet. It’s still taking shape, and I’m building it in the open because that feels right too. If this is something you want to be part of, comment JOYLIST or 💛 and I’ll send you the link to join the waitlist.
#Chronicallyjenni Reel by @acceptedmeets - Accepted Meets! Networking and resources for people with disabilities world wide.
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@acceptedmeets
Accepted Meets! Networking and resources for people with disabilities world wide.

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