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#Nmosd Reel by @theblindcook (verified account) - My time on MasterChef taught me a lot about cooking, but it also taught me the importance of speaking up for myself. #ad ​ Through open discussions w
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@theblindcook
My time on MasterChef taught me a lot about cooking, but it also taught me the importance of speaking up for myself. #ad ​ Through open discussions with the producers, my doctor and those closest to me about my needs living with neuromyelitis optica spectrum disorder (#NMOSD), I was able to get the proper accommodations to compete – and subsequently win!​ Getting the support you need from colleagues, doctors, family members or friends requires some very honest conversations – but it’s worth it. ​ Hear meaningful discussions between others living with NMOSD and their loved ones and explore resources to start your own conversations by visiting the link in my bio. ​ #NMOSDWontStopMe #AmgenPartner @amgenbiotech
#Nmosd Reel by @weareillmatic - So many of us didn't get the right diagnosis the first time. Before MS, NMOSD, or lupus was ever named, we were told it was stress. Anxiety. Migraine
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@weareillmatic
So many of us didn’t get the right diagnosis the first time. Before MS, NMOSD, or lupus was ever named, we were told it was stress. Anxiety. Migraines. Aging. Being “too busy.” Being “too sensitive.” Or our personal favorite, nothing at all. We knew something was wrong, but we were dismissed, misdiagnosed, or told to wait it out. And that waiting cost time, energy, and sometimes our trust in the healthcare system. This isn’t rare in our community. It’s a pattern. Especially for Black women navigating chronic illness, where being believed often feels like an uphill battle. So let’s talk about it. Before you were diagnosed, what were you first told it was? Drop it in the comments. Your story might help another sister feel less alone 🧡 #WeAreILLMatic #MultipleSclerosis #NMOSD #Lupus #ChronicIllnessJourney BlackWomenHealth
#Nmosd Reel by @theblindcook (verified account) - #ad I had never heard of neuromyelitis optica spectrum disorder (NMOSD), the rare autoimmune disease that caused my vision loss, until my diagnosis. 
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@theblindcook
#ad I had never heard of neuromyelitis optica spectrum disorder (NMOSD), the rare autoimmune disease that caused my vision loss, until my diagnosis.    It took four scary and lonely years to get correctly diagnosed.    This #NMOAwarenessMonth, I’m sharing a few important facts about NMOSD so that others can find the answers they need sooner and advocate for their health.    @amgenbiotech
#Nmosd Reel by @mountsinainyc (verified account) - Did you know that 3-10% of multiple sclerosis (MS) patients develop symptoms before age 18? Almost all children with MS have the relapsing-remitting f
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@mountsinainyc
Did you know that 3-10% of multiple sclerosis (MS) patients develop symptoms before age 18? Almost all children with MS have the relapsing-remitting form, where periods of symptoms alternate with recovery. If untreated, MS can lead to disability over time. Led by Dr. Rachel Zolno, the pediatric MS program at Mount Sinai takes a collaborative, multidisciplinary approach, combining neurology, neuropsychology, and education for personalized care. Pediatric MS differs from adult MS, causing more frequent relapses and affecting cognitive development, so the team works closely with families and schools to provide tailored support. This holistic approach helps children manage MS and thrive in daily life. #WeFindAWay #multiplesclerosis #pediatricms #MOGAD #NMOSD #neurology
#Nmosd Reel by @felipessimas (verified account) - Hoje, vim compartilhar com vocês um momento que afetou nossas vidas de forma inesperada. Eu, Felipe Simas, fui diagnosticado e enfrentei a neurite ópt
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@felipessimas
Hoje, vim compartilhar com vocês um momento que afetou nossas vidas de forma inesperada. Eu, Felipe Simas, fui diagnosticado e enfrentei a neurite óptica, uma condição que pode ser um dos primeiros sinais da doença do espectro da neuromielite óptica (NMOSD) - uma doença autoimune rara que afeta o sistema nervoso central, principalmente o nervo óptico e a medula espinhal. Foi assustador lidar com sintomas como perda de visão e dor ao mover os olhos. Aquelas sensações despertaram um alerta dentro de mim, um sinal de que algo não estava bem. Buscar ajuda médica foi crucial, e só assim pude começar a entender o que estava acontecendo. Minha jornada destacou a importância de não ignorar os sinais que nosso corpo nos dá. É vital prestar atenção imediata a esses sintomas e buscar um diagnóstico correto. Fazer parte da campanha Iluminando Caminhos na NMOSD, da AstraZeneca, tornou-se uma forma de compartilhar minha experiência e incentivar outros a cuidarem de sua saúde e procurar assistência médica. Se você quer saber mais sobre essa condição e como buscar ajuda, confira: bit.ly/iluminando-nmosd. Juntos, podemos iluminar caminhos e espalhar a conscientização sobre a NMOSD. #IluminandoCaminhosnaNMOSD #NMOSD #DoençaRara *PUBLI Referências: 1. Shumway CL, Patel BC, Tripathy K, De Jesus O. Neuromyelitis Optica Spectrum Disorder (NMOSD). 2024 Jan 8. In: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2024 Jan–. PMID: 34283474. 2. Faisal M, Matarneh A, Alshahwani I, Al-Allaf O, Al-Allaf AW. Neuromyelitis Optica Spectrum Disorder and Autoimmune Rheumatological Diseases: A Report of Two Cases and Literature Review. Cureus. 2022 Jun 20;14(6):e26138. 3. Wingerchuk DM, Banwell B, Bennett JL, Cabre P, Carroll W, Chitnis T, et al.; International Panel for NMO Diagnosis. International consensus diagnostic criteria for neuromyelitis optica spectrum disorders. Neurology. 2015 Jul 14;85(2):177-89.
#Nmosd Reel by @theblindcook (verified account) - #ad Despite experiencing vision loss due to neuromyelitis optica spectrum disorder (#NMOSD), I haven't stopped doing the things I love. This Vision
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@theblindcook
#ad Despite experiencing vision loss due to neuromyelitis optica spectrum disorder (#NMOSD), I haven’t stopped doing the things I love. This Vision Awareness Month, remember to take care of your eyesight, but know you can still live a full life and achieve amazing things with vision loss. ​  ​ For helpful resources on navigating vision changes and NMOSD, go to NMOSDWontStopMe.com or visit the link in my bio. ​ ​ #VisionAwarenessMonth​ #NMOSDWontStopMe ​
#AmgenPartner ​
@amgenbiotech
#Nmosd Reel by @bottlebee - Today marks one year since I was suddenly paralysed. I was diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD) and have had 3
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@bottlebee
Today marks one year since I was suddenly paralysed. I was diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD) and have had 3 relapses in the past 12 months so I thought today’s ’anniversary’ would be an apt day to post about it again. I want to raise awareness of MOGAD so please do spread the word just to make people aware of a rare disease like mine. This will probably be my last post about this as I want to concentrate on getting back to making jewellery and being creative. Please do share this or tag anyone going through something similar, so they know they are not alone. . . . #mogad #myelinoligodendrocyteglycoproteinantibodydisease #nmosd #lifeisforliving #bottlebee
#Nmosd Reel by @amgenbiotech (verified account) - Neuromyelitis optica spectrum disorder (NMOSD) is a rare and devastating disease that can lead to vision loss or paralysis. Like all rare diseases, it
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@amgenbiotech
Neuromyelitis optica spectrum disorder (NMOSD) is a rare and devastating disease that can lead to vision loss or paralysis. Like all rare diseases, it poses a tremendous challenge not only for patients, but also their caregivers. Hear from more caregivers like Holly who tirelessly support their loved ones as they navigate life with a serious illness. 🔗 Tap the link in our bio.
#Nmosd Reel by @joycekitamura (verified account) - #NMOSD (Doença do Espectro de Neuromielite Óptica) é uma doença autoimune que afeta o sistema nervoso central, e atinge em sua maioria mulheres negras
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@joycekitamura
#NMOSD (Doença do Espectro de Neuromielite Óptica) é uma doença autoimune que afeta o sistema nervoso central, e atinge em sua maioria mulheres negras e asiáticas. Da play no vídeo e simbora espalhar essa mensagem! A conscientização pode salvar vidas, e a @astrazenecabr está junto com a gente espalhando essa mensagem ✨ @fazbem_astrazeneca ✨ #ReescrevendoHistorias com todas as letras. Referências; 1. Jarius S, Paul F, Weinshenker BG, Levy M, Kim HJ, Wildemann B. Neuromyelitis optica. Nat Rev Dis Primers 2020;6(1):85. 2. Bukhari W, Prain KM, Waters P, et al. Incidence and prevalence of NMOSD in Australia and New Zealand. J Neurol Neurosurg Psychiatry 2017;88(8):632–8. 3. Papadopoulos MC, Bennett JL, Verkman AS. Treatment of neuromyelitis optica: state-of-the- art and emerging therapies. Nat Rev Neurol 2014;10(9):493–506. 4. Papp V, Illes Z, Magyari M, et al. Nationwide prevalence and incidence study of neuromyelitis optica spectrum disorder in Denmark. Neurology 2018;91(24):e2265–75. 5. Jarius S, Wildemann B. The history of neuromyelitis optica. J Neuroinflammation 2013;10:8. 6. Mealy MA, Boscoe A, Caro J, Levy M. Assessment of Patients with Neuromyelitis Optica Spectrum Disorder Using the EQ-5D. Int J MS Care 2019;21(3):129–34. BR-42207 - Material destinado ao público geral. Agosto/2025
#Nmosd Reel by @ansthetics_ (verified account) - 2016 → 2026 🔁 My 10-year transformation is unique so let's rewind to 2016 ⏮️ The year everything changed. Diagnosed with a rare autoimmune disease
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@ansthetics_
2016 → 2026 🔁 My 10-year transformation is unique so let’s rewind to 2016 ⏮️ The year everything changed. Diagnosed with a rare autoimmune disease (NMOSD) that affects the nervous system and can take vision , movement , even life. 🍃 2026. Still here. Grateful. Running for those who don’t get a choice 🏃🏻‍♂️ This year I’m fundraising with @wearemsplus, supporting vital research and services for people living with neurological conditions, while chasing a spot at the @sydney_marathon this August 🏅 If you’re able to donate, you’re helping fund hope and a future with fewer limitations 🤍 Please check the link in bio and thank you for your support 🙌🏻 #msplus #neurological #nmosd #tcssydneymarathon2026 #running
#Nmosd Reel by @fab_nmo (verified account) - Hi, I'm Aldelly aka fab_nmo. I live with a rare disease and I'm here to shed light on what life with a rare disease looks like. From the everyday stru
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@fab_nmo
Hi, I’m Aldelly aka fab_nmo. I live with a rare disease and I’m here to shed light on what life with a rare disease looks like. From the everyday struggles to the wins—let’s navigate this together and raise awareness! #fabnmo #nmosd #neuromyelitisopticaspectrumdisorder #nmosdawareness #spooniesupport
#Nmosd Reel by @visus.formacion - Neuromyelitis Optica Spectrum Disorder (NMOSD). Neuromyelitis optica spectrum disorder is a severe autoimmune inflammatory disease of the central ne
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@visus.formacion
Neuromyelitis Optica Spectrum Disorder (NMOSD). Neuromyelitis optica spectrum disorder is a severe autoimmune inflammatory disease of the central nervous system that predominantly affects the optic nerve and spinal cord. Unlike multiple sclerosis, NMOSD is primarily an astrocytopathy, driven by antibodies against aquaporin-4 (AQP4)located on astrocytes. Optic neuritis in NMOSD is typically more severe, may be bilateral, and often involves the posterior optic nerve, optic chiasm, or optic tract. Spinal cord involvement is characteristic, producing longitudinally extensive transverse myelitis, usually extending across three or more vertebral segments on MRI. Early recognition is essential because the disease may lead to significant neurological disability if not treated promptly. 📚 Key reference: Wingerchuk DM et al. International consensus diagnostic criteria for neuromyelitis optica spectrum disorders. Neurology. 2015. 🔬 What it demonstrated: Defined modern diagnostic criteria and confirmed the central role of AQP4-IgG antibodies in NMOSD. 🧠 Clinical implication: Distinguishing NMOSD from multiple sclerosis is essential because management and prognosis differ significantly. 💡 Clinical pearl: Severe optic neuritis that is bilateral, posterior, or associated with longitudinal spinal cord lesions should raise suspicion of NMOSD. B.F. Sánchez-Dalmau, MD, PhD @bernardosanchezdalmau Educational content. Not medical advice. #neuroophthalmology #opticneuritis #neuromyelitisoptica #ophthalmology #medicaleducation

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