1.9K
AUOkay 👀 you convinced me. Let’s do THE series you’ve been asking for 🤍
#autoimmunehealing #linearmorphea #morphea #scleroderma #autoimmuneremission
@autoimmune.babe
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THIf you are living with scleroderma, these questions are very common. Let us walk through them together.
1️⃣Will I pass this on to my children?
It is extremely unlikely. Even identical twins who share the same DNA only have about a 5 percent chance that both will develop scleroderma if one twin has it. That tells us genetics alone do not explain this disease. There are many other environmental and immune factors involved.
2️⃣If my antibody test is negative, does that mean I do not have scleroderma?
No. You can still have scleroderma without a disease specific autoantibody. There are more antibodies identified today than in the past, and sometimes only one or two are checked. Diagnosis is based on the full clinical picture, not one lab result.
3️⃣Can stress trigger flares?
Based on my clinical experience, yes. Overwhelming stress can worsen symptoms, including skin changes, lung symptoms, and gastrointestinal flares. This is why supporting the mind body connection is not optional. It is part of caring for your immune system.
What other questions do you have for me about living with scleroderma?
#Scleroderma
#SystemicSclerosis
#SclerodermaAwareness
#AutoimmuneDisease
@the_holistic_rheumatologist
1.9M
SCHi my loves!
Guess who got a fresh cut 😇 I feel so good. I’ve been postponing this cut as much as possible but happy it finally happened. Even though the weather doesn’t really change in Florida I’m ready for fall 🍁
Is nice to get out to get pampered. Definitely a confidence boost 🥰
Cheers 🍻 to not giving up!
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#sclerodermia #disabledcreator #dogmom #wheelchairuser #spoonie #disability #chronicillness #spoonielife #transformation #scleroderma #feedingtube #chronicfatiguewarrior
@sclerolu
17.9K
VIBefore i knew i have Scleroderma 😔
@violetemor_onitsha
2.5K
AUIf you’ve ever Googled scleroderma, the antibody list alone can feel overwhelming.
Here’s the part Google often misses 👇
These labs do not diagnose scleroderma by themselves. They help rheumatologists understand patterns and risk — always in clinical context.
The 3 main antibodies we look at include:
• Anti-centromere — more often associated with limited systemic sclerosis (sometimes called CREST)
• Scl-70 (anti–topoisomerase I) — more often linked with diffuse systemic sclerosis and lung involvement
• RNA polymerase III — associated with faster skin changes and the need for closer blood pressure and kidney monitoring
In certain situations, rheumatologists may also check overlap antibodies, especially when symptoms suggest features of more than one connective tissue disease. These are not screening labs for everyone.
What actually matters most:
✔️ Your symptoms
✔️ A careful physical exam
✔️ How findings evolve over time
✔️ Targeted screening when appropriate (lungs, heart, kidneys)
This is why Googling labs alone creates unnecessary fear — and why rheumatology looks at the full picture, not a single result.
💬 Comment TESTS if you want a breakdown of the standard imaging I order when I suspect scleroderma next.
Education only.
#scleroderma #systemicsclerosis #autoimmunediseaseeducation #rheumatology #patienteducation
@autoimmuneglow
1.8M
NAI'm transformaning right before my own eyes. 👀🧐
🧬Living life with...
1. Asthma
2. Vitiligo
3. Multiple Sclerosis
4. Scleroderma
5. Sclerodactyly/Flex bontaire contracture
6. Alopecia
7. Interstitial lung disease
8. Osteopenia
9. Raynaud Syndrome
10. And the list goes on...along with more chapters of my life💪🏾
I praise the Lord🙌🏾
and I say thank you!
You better
Know HER Story!📖📚
#transformation #hairloss #chronicillness #scleroderma #storytime
@naysnetwork
90.8K
QUAbout a week ago, I woke up to these words running through my mind.
I wasn’t coming up with them myself, they were given to me by my Savior, the one who gives me clarity.
My Savior, the reason I experience joy every day.
My Savior, the author and finisher of my faith (Hebrews 12:2)
#savior #jesus #hope #clarity #joy #autoimmunedisease #scleroderma #systemicsclerosis #health #healthchallenge #churchofjesuschrist #lds #thechurchofjesuschristoflatterdaysaints
@quietheart_emma
215.1K
THWhat is the likely diagnosis?
Positive findings are
#1.Skin Tightening & Thickening
• Shiny, bound-down skin
• Loss of skin folds
2. Sclerodactyly
• Tight, shiny fingers
• Flexion contractures
3. Raynaud’s Phenomenon
• Triphasic color change (white → blue → red)
4. Digital Pitted Scars & Ulcers
• From ischemia at fingertips
5. Acro-osteolysis
• Resorption of distal phalanges
6. Calcinosis Cutis
• Chalky calcium deposits in skin/subcutis
7. Telangiectasia
• Dilated capillaries on face, lips, hands, chest
8. Salt-and-Pepper Pigmentation
• Mottled depigmentation with perifollicular pigment retention
9. Mask-like Facies
• Reduced expression due to skin tightening
• Beak-like nose, perioral furrows, microstomia
Special thanks to Dr @dr_chandan_909 @soorj1111 @saurabh_snehil @somya_katyayane
#raynaudsdisease #raynaudsphenomenon #scleroderma #autoimmune #systemicsclerosis #médico #nursingstudentlife #neetpg #neetug
@the_littmann_doc
19.4K
MIOne thing I do a lot and need to break the habit of, is telling myself that I’m not seeing growth especially in my arms. I spent most of twenties with “sticks for arms” (what a dumb metaphor btw) because of weight loss and muscle wasting, and the “aunties” would love to grab them and comment on how I need to eat more.
Progress often shows when we aren’t looking for it so when I watched these clips back to check my PB form and instead noticed my arms, it felt like a real Hozier’s yell moment for my fitness journey.
And yes, I did hit that goblet squat PB too! 🤌🏾
#scleroderma #weightlifting #weightgainjourney #health #happiness
@miff_lifts
455.4K
MAadakah sesama survivor hipeetensi paru di sini? yuk sharing kalian PH apa? karena apa?
aku survivor Hipertensi Arteri Pulmonal (PAH) Terkait Penyakit Jaringan Ikat (CTD-PAH): Ini adalah bentuk paling umum dari hipertensi paru yang dipicu oleh autoimun, di mana peradangan merusak pembuluh darah paru, menyebabkan penyempitan dan kaku.
@mamacucit
2.8K
SH9 years, 5 rheumatologists, and I’m still a “medical mystery” 🤔
Or maybe the system just doesn’t care enough to dig deeper?
Every appointment they change my diagnosis - lupus, scleroderma, undifferentiated connective tissue disease. The confusion is exhausting when you don’t know what’s causing your symptoms.
But what if there’s actually a way to understand what’s happening in YOUR body? I’m about to find out and documenting the whole journey 📱
If you’re tired of being a medical mystery too, I’m using @diadiahealth to get real answers. Use code SHELBY25 for $25 off at diadiahealth.com 💕
#medical #WomensHealth #Autoimmunewarrior #ChronicIllness #DiaDiaHealth #lupuswarrior💜 #lupusawarenessmonth #autoimmunehealing
@shelbyelizabethforman
3.5M
SCSorry I’ve mostly been posting non-verbal content. Long story short, it’s a bad time (so I’m self-isolating 🤧)
Hope y’all are having better days than me 💐
#sclerodactyly #scleroderma #sclerodermaliving #sclerodermadiaries #sclerodermaawareness #chronicillness #autoimmunehealing #disabledcreators #disabledlife #disabledfashion #disabledbeauty #raredisease #rarediseaseawareness #wheelchairuser
@sclero_cocoon
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Instagram hosts 115K posts under #Scleroderma, creating one of the platform's most vibrant visual ecosystems. This massive collection represents trending moments, creative expressions, and global conversations happening right now.
Discover the latest #Scleroderma content without logging in. The most impressive reels under this tag, especially from @sclero_cocoon, @sclerolu and @naysnetwork, are gaining massive attention. View them in HD quality and download to your device.
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💡 Top performing posts average 1.9M views (2.9x above average). High competition - quality and timing are critical.
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🔥 #Scleroderma shows high engagement potential - post strategically at peak times
✨ Many verified creators are active (33%) - study their content style for inspiration
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Explore Scleroderma#skin face scleroderma#morphea scleroderma#face scleroderma#scleroderma and raynaud phenomenon#scleroderma wajah#scleroderma symptoms face#scleroderma pictures face#scleroderma research breakthroughs 2026