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#Spoonielife

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#Spoonielife Reel by @izkaplan (verified account) - Note to self, and to anyone else who needs to hear it. You know who you are. Limiting my exertion - in any form, cognitive, emotional, physical - is
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@izkaplan
Note to self, and to anyone else who needs to hear it. You know who you are. Limiting my exertion - in any form, cognitive, emotional, physical - is antithetical to everything about who I am - or was. I have had to learn an entirely new way of thinking and being and doing. Learning to listen to my body, not my brain. Learning to try less, to stop earlier. Learning as if my life depends on it, because it does. It’s a work in progress. #longcovid #mecfs #pots #covid #spoonielife #healing
#Spoonielife Reel by @elijahoffiziell (verified account) - Ich bin ein autistischer Mensch. Mein Alltag bringt Herausforderungen mit sich - wie Schlafprobleme, Reizüberflutung, soziale Erschöpfung und das Bedü
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@elijahoffiziell
Ich bin ein autistischer Mensch. Mein Alltag bringt Herausforderungen mit sich – wie Schlafprobleme, Reizüberflutung, soziale Erschöpfung und das Bedürfnis nach Routinen. Das ist kein Defizit, sondern ein Teil von mir. Autismus ist Vielfalt, keine Störung. Was für andere „klein“ wirkt, kann für mich groß sein – und umgekehrt. Verständnis hilft mehr als Urteile. 💙 #AutismusAkzeptanz #Neurodivergenz #LebenMitAutismus #Reizüberflutung #Selbstakzeptanz #AutisticAndProud #Neurodiversität #RoutinenGebenSicherheit #UnsichtbareHerausforderungen #AutismusImAlltag #StimmingIstOkay #LautstärkeIstRelativ #AndersNichtWeniger #ReizarmutTutGut #SozialePause #AutismusErnstNehmen #Sinnesreize #SpoonieLife #AutisticCommunity #AutistischeStärke #MeltdownKeinDrama #NeurodivergentVoices #SchlafenIstSchwierig #UnterschiedlichUndWertvoll #RespektStattMitleid #MaskingIstAnstrengend #LebenMitAutismus #BarrierenAbbauen #IchBinAutistisch
#Spoonielife Reel by @kickoutlyme (verified account) - Chronic illness fatigue is NOT the same as being tired. #chronicillness #lymedisease #lymewarrior #chronicfatigue #invisibleillness #spoonie #spoonie
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@kickoutlyme
Chronic illness fatigue is NOT the same as being tired. #chronicillness #lymedisease #lymewarrior #chronicfatigue #invisibleillness #spoonie #spoonielife #chronicpain #autoimmunedisease #mentalhealthawareness #fatigue #brainfog #healingjourney #chronicillnesswarrior #butyoudontlooksick #lymeawareness #lymelife #lymesupport #exhausted #healthjourney
#Spoonielife Reel by @jessgrossman (verified account) - Another illness, another test, another day of hospital gown chic 😌 For those who haven't been following me on threads or seeing my stories, I've been
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@jessgrossman
Another illness, another test, another day of hospital gown chic 😌 For those who haven’t been following me on threads or seeing my stories, I’ve been battling pneumonia for over 2 months. It was at this week’s medical appointment and testing where the doctor told me that I could actually be suffering from Crohn’s Disease related lung issues - which, apparently, is a thing that could happen if you have IBD - a thing that no one’s ever told me about! So while I’m not having any direct Crohn’s related issues (thank you tummy), I’m left constantly battling the symptoms of what this autoimmune chronic illness is wreaking on my body 🫠 It doesn’t help that having an ostomy bag further lowers your immune system. Fingers crossed that all this is just an annoyingly long case of pneumonia, and that I’ll be over it soon. Until then, might as well look good in the gowns I’m given 💁🏼‍♀️
#Spoonielife Reel by @mills.liberty (verified account) - It's Lupus 🦋awareness month and I wanted to talk Lupus eye care. Many people with Lupus are on certain drugs that are not exclusive to the disease, s
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@mills.liberty
It’s Lupus 🦋awareness month and I wanted to talk Lupus eye care. Many people with Lupus are on certain drugs that are not exclusive to the disease, so take note if you are on the following: Hydroxychloroquine is commonly used in treatment of Lupus and is also used for some skin disorders and to treat arthritis and other inflammatory diseases. However, if like me your medical team didn’t explain some of the potential side effects listen up. This drug can leave you more vulnerable to eye deterioration. So it’s good to ask them if you need an OCT scan (Optical Coherence Tomography). As I was on a very high dose of this drug for nearly a decade I just had a check up. Depending on how long and what your dose of the drug is will depend on how often you will need the scan. Some guidance is within the first 6-12 months of taking the drug and then if all clear then annually after 5 years. But those on the higher dose or taking other drugs that may also effect the eye are suggested to go yearly. I went to @specsavers and it was only an extra £5. (Not an Ad if just where I go) I don’t demonise medication but we must be aware of how it may affect other areas of our body and check in on them to see they are all good too. 👀👀 #lupus #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #diabetes #invisibleillness #sle #rheumatoidarthritis #autoimmune #eyehealth #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #lupussupport #lupusproblems
#Spoonielife Reel by @nicolepedra (verified account) - Who else's chronic illness gives them attitude? . . . . #ChronicIllnessHumor #Ms #SpoonieLife #MultiplesclerosisAwareness #ChronicIllnessWarrior #Ch
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@nicolepedra
Who else’s chronic illness gives them attitude? . . . . #ChronicIllnessHumor #Ms #SpoonieLife #MultiplesclerosisAwareness #ChronicIllnessWarrior #ChronicallyIll #InvisibleIllness #ThisIsMs #MentalWellness
#Spoonielife Reel by @lupuschickofficial (verified account) - Do you feel alone, like, maybe you can't be honest fully with those around you of how terrible you're feeling, or you feel like you'll never get a str
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@lupuschickofficial
Do you feel alone, like, maybe you can’t be honest fully with those around you of how terrible you’re feeling, or you feel like you’ll never get a straight answer as to why your body seems to be freaking out every single day? Well, here’s a secret. I’ve been exactly where you are. over two decades ago, I was diagnosed with lupus after an array of horrific symptoms and then having a small stroke. Not everyone around me understood; not everyone around me even stayed in my life. And to be honest with you, this illness changed every single aspect of my life, and many for the better. I talk about this entire journey, and how I found my purpose through it in my memoir, chronically fabulous. You can read the first chapter for free at the link in my bio on Amazon. It’s perfect for autoimmune awareness month and for lupus awareness month or anyone that has gone through a difficult diagnosis or trial in their life. It even has some snazzy recipes in it, if you’d like to cook. I wanted to make some kind of meaning out of all the experiences I’ve been through, and you are the one that I wrote this book for. Xoxox, Marisa🤍 #lupus #memoir #chronicillness #spoonie #spoonielife #memoirist #writer #author #write #bookclub #reading #arthritis #stroke #aneurysm
#Spoonielife Reel by @belkiss.ortiz - I used to feel embarrassed bringing my own food to restaurants (especially my cereal 🥣), but honestly... I have to eat 😂 My body can only handle so
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@belkiss.ortiz
I used to feel embarrassed bringing my own food to restaurants (especially my cereal 🥣), but honestly... I have to eat 😂 My body can only handle so much, and it’s nobody’s business. So yes, I’ll happily sit with my parents, enjoy my yogurt or a homemade sandwich, and treasure the moment — because it’s not about what’s on the table, it’s about who’s sitting around it. 💛 If I’m paying and don’t order anything, I might look cheap 🤣 but hey, healing comes first. #gastroparesis #giissues #chronicillnesswarrior #viral #spoonielife
#Spoonielife Reel by @yourchronicpainbestie (verified account) - Chronic pain isn't just about the pain. It's the hiding. The proving. The performing. The life happening behind the version of her that everyone else
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@yourchronicpainbestie
Chronic pain isn’t just about the pain. It’s the hiding. The proving. The performing. The life happening behind the version of her that everyone else gets to see. Things women in chronic pain do when they’re alone (and never tell anyone about): • Walk out of a dr appointment and cry in her car because she was told it’s probably just stress • Strech her body every chance she gets, trying to relieve some of the tightness and burning • Start doubting her own pain because a test came back normal…again • Google the same symptoms over and over hoping this time the answer will be different • Downplay how bad it really is to her partner because she’s exhausted from feeling like a burden • Feel her whole body tense up before social plans, knowing she’ll have to perform “fine” for hours • Cancel those same plans and then spend the next hour drowning in guilt about it • Scan her body constantly, bracing for the next flare before it even comes • Lose whole pieces of herself…hobbies, friendships, goals because surviving takes everything out of her • Smile at family gatherings, deflect the questions and hold it together until she’s alone • Lie awake at 2am wondering if this is just what the rest of her life looks like • Carry the weight of proving her pain is real to a world that keeps telling her she’s fine If you felt that in your chest reading this... you’re not weak. You’re not broken. You’re not making it up. Your nervous system has been stuck in survival mode for so long it genuinely doesn’t know how to feel safe anymore and this is how you survive. That’s not a mindset problem or a willpower problem. That’s a body that has been carrying way too much for way too long without the right support. There is a way out of chronic pain and it starts with helping your nervous system finally feel safe enough to heal. DM me “HEAL” or link in bio to learn more🩷 #chronicpainawareness #chronicillnessawareness #selfhealingjourney #spoonielife
#Spoonielife Reel by @this.is.the.illness.m.e - A grief that's hard to explain to people who haven't felt it. Being ambitious. Having dreams. Wanting to do so much with your life… while living in a
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@this.is.the.illness.m.e
A grief that’s hard to explain to people who haven’t felt it. Being ambitious. Having dreams. Wanting to do so much with your life… while living in a body that simply can’t keep up ❤️‍🩹 It’s not a lack of motivation. It’s not a lack of willpower. Sometimes the hardest part is knowing exactly what you want to do, but not having the health to do it. And that kind of grief is hard to put into words. If you can relate to this, I’m sending you the biggest hug. You’re not alone in feeling this, and you’re always welcome here ❤️ ♡ #chronicillnessawareness #chronicillness #MEawareness #spoonie #spoonielife
#Spoonielife Reel by @inflammation.and.frustration - Don't get me wrong... stretching helps, hydration is elite, and optimism is cute… but my immune system did not read the inspirational Pinterest board.
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@inflammation.and.frustration
Don’t get me wrong... stretching helps, hydration is elite, and optimism is cute… but my immune system did not read the inspirational Pinterest board. I tried breathing through it. I tried manifesting health. I even bought the expensive water bottle for ✨commitment✨—and somehow I still woke up feeling like my joints spent the night in a demolition derby. Funny how chronic illness doesn’t disappear just because you really wanted it to. So tell me… what’s the most unhinged “have you tried…?” advice you’ve ever been given? Drop it in the comments cause I know I’m not alone. 👀⬇️ #chronicillness #autoimmunedisease #spoonielife #chronicpain #invisibleillness #chronicfatigue #healingjourney #healthhumor #chronicillnessawareness #spoonietok #disabledandproud #medicalgaslighting #patientsbelike #chronicwarrior #chroniccommunity #ankylosingspondylitis #ankylosingspondylitiswarrior
#Spoonielife Reel by @jenniejacques1 (verified account) - As we near the end of 2024, I'm approaching my 7th year living with an illness that completely turned my world upside down 🌎 Each year, as a new on
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@jenniejacques1
As we near the end of 2024, I’m approaching my 7th year living with an illness that completely turned my world upside down 🌎 Each year, as a new one approaches, I always hope to leave behind the struggles, but as many of us with #chronicillness know, it doesn’t always work that way. We learn to adapt, to survive, and to keep going. Heading into 2025, I’m grateful for the support I’ll be able to experience with @visible.health 💪 Although I am yet to experience the benefits, just knowing I will have this device (and the helpful app too!) has genuinely brought some comfort and brightness into my journey ❤️‍🩹☀️ Not everyone reacts to infection the same way, and for many, disability initiated by it certainly isn’t a new story. Sadly, it’s something that has only increased since the pandemic, particularly with #longcovidawareness. My heart goes out to all my fellow #spoonies who’ve lost so much to this monster of an illness 💙 and despite everything I remain grateful for gaining insight into the wonderful people who are the #mecommunity I’ll continue to share my story and be a voice for the #millionsmissing who are fighting this battle too. Here’s to hope, healing, and progress—no matter how slow. 🌿🤞🐌 @bake4me_ @visible.health @longcovidsos @meactnet #meawareness #potsawareness #orthostaticintolerance #chronicillnesscommunity #invisibleillness #spoonielife #hopeforhealing #keepfighting

✨ #Spoonielife Discovery Guide

Instagram hosts 1.2 million posts under #Spoonielife, creating one of the platform's most vibrant visual ecosystems. This massive collection represents trending moments, creative expressions, and global conversations happening right now.

The massive #Spoonielife collection on Instagram features today's most engaging videos. Content from @belkiss.ortiz, @this.is.the.illness.m.e and @kickoutlyme and other creative producers has reached 1.2 million posts globally. Filter and watch the freshest #Spoonielife reels instantly.

What's trending in #Spoonielife? The most watched Reels videos and viral content are featured above. Explore the gallery to discover creative storytelling, popular moments, and content that's capturing millions of views worldwide.

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🌟 Featured Creators: @belkiss.ortiz, @this.is.the.illness.m.e, @kickoutlyme and others leading the community

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✅ Moderate Competition

💡 Top performing posts average 2.7M views (2.9x above average). Moderate competition - consistent posting builds momentum.

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✨ Many verified creators are active (75%) - study their content style for inspiration

✍️ Detailed captions with story work well - average caption length is 930 characters

📹 High-quality vertical videos (9:16) perform best for #Spoonielife - use good lighting and clear audio

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