460.9K
DOVictoria Olympia 🩷🩵 is pumped up to watch the Women’s Team final at the World Championships! #Antwerp2023 #gymnastics
#cardiacsurgery #congenitalheartdefect #tapvr #heartwarrior #chdwarrior
@dominiquemoceanu
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9.3K
WILet us all roll into this New Year with the energy of @_valentinasworld 💖 Bringing the Williams Wednesday energy this week!
Don’t forget to tag us in your #williamswednesday posts!
#williamssyndrome #williamssyndromeawareness #chdwarrior
@williamssyndrome
8.5K
FRBeing a heart mom means holding more than one truth at the same time.
Grieving the beginning you thought you’d have, while loving your child more than you ever knew possible.
The story changed.
The love didn’t.
#chdawareness #chdawarenessmonth #chd #heartmom #chdwarrior
@fromminitomoose
258.5K
AMI can’t believe I’m finally writing these words…. Broken Hearts Club FIRST CAPSULE!!! Dropping 2.13.23 💔❤️
After Russell’s open heart surgery as a newborn, I wanted a way to spread awareness for CHD’s (congenital heart defects) and for those going through something similar to feel a little less alone and a little more comforted and comfortable when they might need it most…
From heart surgeries to heartbreak and everything in between. For every cancer patient, heart warrior, abuse survivor. Those battling mental health and grief, or fighting alongside someone who is, there is strength from struggle. You are on the path that leads to resilience and growth. You are not alone. Welcome to the club 💔❤️
#chdawareness #chdwarrior #amberandruss #BHC💔
@amberlancaster
1.0K
DAHe performs wonders that cannot be fathomed, miracles that cannot be counted ❤️Job 5:9
Graham will be 12 this year, playing competitive soccer and doing things doctors once weren’t sure would be possible. God is faithful.
#chdwarrior #heartmonth #chdawareness
@daniellecotronewills
8.0K
BEWe didn’t know it,
until we were at a “heart” family reunion and we were told how high the rate of divorce was for parents of a child with CHD. It was over 50%. Over half of couples divorce from having a child with a congenital heart disease. The emotional and financial toll can just become too much.
But I know our love and our faith kept us grounded. Trials shape you, and in doing so they also do break you, but it didn’t break “us” and I’m forever grateful for that.
#chd #chdawareness #chdwarrior #tgababy #chdparent
@bebraveryfit
10.1K
THHelping siblings understand congenital heart defects (#CHDs) just got easier! ❤
Do you have a little one with big questions about their Heart Warrior sibling? This fun and informative video from our friends at the @american_heart breaks down congenital heart defects in a way kids can understand—helping them learn, empathize, and support their heart sibling in the best way possible. Watch now and start the conversation! 💕
#HeartWarrior #CHDSiblings #HeartHealth #HeartMonth #CHDawareness #CHDwarrior #1in110 #congenitalheartdefects
@thechf
23.5K
KAOn the 9th of February, the journey to Pali’s corrective 🫀 surgery began.
The first day wasadmission followed by a meeting with the surgeon and anesthetists who explained everything to us and answered our questions. They told us that Pali is first on the list so that meant she will be going into theatre at 7:30 am.
They did a few blood tests and an X-ray as well.
Follow along to see the rest of our journey❤️
#chdawarness #chdwarrior #openheartsurgery
@kavishagovender
915.6K
TAWe planned a trip—about 9 hours away to South Dakota.
Tanvi was doing well, and that gave us the confidence to go. We packed everything she might need and planned for 3 days.
Day 1 went beautifully. She was happy, active, enjoying everything.
Day 2, we visited a state park up in the mountains. She was playful, smiling… everything felt perfect. On our way back down, I was talking to her, even taking a video. She drank some water… and within seconds, she went unconscious.
Our world stopped.
Her oxygen saturation dropped to the 30s. We panicked and called emergency. The ambulance arrived, checked her ECG—everything looked normal for her. Slowly, she regained consciousness with oxygen support.
They gave us a choice—go to the hospital there or leave if we felt she was stable.
All we wanted was to get her back to her doctors… back home.
We drove 9 hours straight, stopping only briefly, constantly watching her oxygen levels.
At 1 AM, we reached home.
That moment… felt like we got our life back.
The next morning, her doctors did an echo—everything looked okay. They said it could be due to altitude… or possibly a seizure.
Another scary chapter in Tanvi’s journey.
But with every experience, we’re learning… learning how to care for her better, how to stay stronger for her. #trip✈️ #chdwarrior #familytime #chronicillnessawareness #reelsinstagram
@tanvithefighter
15.6K
CHSo why are we keeping the ductus open?
This is a generalized way to view ductal dependent lesions. It’s all about understanding your patient’s anatomy and physiology and the NUANCES that come with their defect!
CHDs are on a spectrum- we need to support their individual needs.
There are other defects where the PDA is kept open (like DTGA) that I do not mention here.
Not medical advice, educational purpose only.
I do my best to break down complex and highly nuanced topics- so please keep that in mind! ☺️
#chd #chdwarrior #chdawareness #hlhs #heartmonth
@chd_doodles
2.3K
HEHeartCharged was blessed to be able to place this beautiful AED with the extremely beautiful @liv.cheer.dance and her family.
Olivia has Long QT syndrome, an abnormality within the heart’s electrical system.
Long QT can cause life-threateningly fast heartbeats when the two lower chambers of the heart beat fast and out of rhythm. The heart then can’t pump out enough blood and doesn’t get enough oxygen to the brain and the patient can faint without warning. The dangerous rhythm may self-correct, but if it doesn’t, it can lead to a full-body seizure, ventricular fibrillation, and, very very sadly, even sudden cardiac death. Young people who have appeared healthy and even nonsymptomatic have passed away from Long QT. Along with fainting and seizures, it can lead to drownings.
Long QT can be diagnosed from an EKG.
In other words:
If something goes boo in the night and you faint, get your heart checked.
If something goes boo in the night and you don’t faint, get your heart checked.
Fainting when frightened, excited, angry, hearing a sudden loud noise, or exercising, can be a sign of Long QT syndrome.
And then again Long QT can occur without warning signs.
So, yes, let’s all get our hearts checked. We’d love to see young people getting theirs checked every two years with well-child check-up’s.
@heartcharged
467
FOHappy Heart Awareness Month and I couldn’t think of a better way to kick it off with # StolleryNoBounds Week where Addison & Addley got to take over @official_wem as Mayors of the Mall!! 💙💙
Addison has had 6 admissions to stollery her 4th admission being her #openheartsurgery at 14 months old. Addison has had many serious infections her in lungs like RSV, Pneumonia etc. She has chronic lung disease. Addison is also hard of hearing and wears two hearing aids to help her hear the world around her. ❤️
Addley has had a few surgeries one being her broken arm and other surgeries. She is also hard of hearing and has lung disease too.
Words cannot describe this day and just how magical fun and exciting this day was not only to the girls but to our whole family!!! Thank you to each and every partner and person who contributed and collaborated to making this day so special 🥰
Dancing and all the cool moves with Dr. Patch Up, to shopping, eating at our favorite place, to skating on the ice at the ice palace, to being up close with the sea lions to such an incredible overnight stay at the fantasyland hotel in the space them room 💜💜
Forever grateful for moments like these and for the incredible care at the Stollery.
@fourlittlebunnies_mom
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