2.7K
TH#pppd #3pd #persistentposturalperceptualdizziness #vestibular #dizziness
@thedizzypt_amy
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1.9K
PPTravelling in a crowded train has been one of my biggest fears. After getting PPPD, I avoided trains completely for the past five years. But recently, I travelled for two days in a row with no issues. I felt the fear, but I controlled it and tried not to give any attention to the anxiety. After some time, everything felt normal. Today, I even stood in a crowded train for one straight hour. I’m proud of that.
This may be a normal task for many people, but for someone with PPPD, it’s a big achievement and a real step toward overcoming fears.
#pppd #vertigo #dizziness #earbalance #migraine
@pppd_vertigo
16.0K
REPPPD recovery is possible. 🎉
We have been chatting a lot about PPPD lately
And honestly, all of the learning I have had from our fellow community members that have helped me in many ways, including supporting through this case.
Imagine having a team to reach out to that can help you get someone better in just 5 visits. And not only that—the person who had trouble going to the grocery store is now doing aerial arts.
Wow!🤩
This is the power of the community!
Our Brain Bytes community is THE interdisciplinary community of neuroscience loving, big hearted and trailblazing therapists supporting one another in the most complex cases. We have therapists share their cases 24/7 in our private community and get all of the input and feedback! So if you are struggling with a tough case, join us today and get immediate feedback! (Like literally, share your case with us today—and get the whole team commenting and helping!)
Our doors close Thursday—we can’t wait to welcome you to the community!
Comment Brain Bytes below, I’ll send you the link!
#physiotherapy #physicaltherapy #physicaltherapist #physicaltherapystudent #occupationaltherapy #speechtherapy #speechtherapist #psychology #psychologist #onlinelearning #mentoring #community #pppd #fnd
@reactivept
2.0M
BEDo you feel “crazy” explaining these odd symptoms to your doctor? Do they look at your like you’re crazy 😳 (you’re not)….But what do they mean? Why is this one of the first times you’re seeing a video that finally explains some of the symptoms you’re feeling and no one seems to understand. Comment “soft” for info (and comment below any of the other odd things you feel) #mdds #pppd #dizziness
@berneruppercervical
45.8K
DR“What if I live like this forever?” “I’m never going to be able to work again” “I’m not going to be a good parent”......sound familiar?
This is what’s happening:
Chronic dizziness feels VERY out of control. Our bodies become totally unpredictable with symptoms and functionality. So, understandably, our brains try to gain some control over the situation....enter: rumination.
Constant worrying gives our brains a faulty sense of control and this sense of control releases dopamine in the brain. Dopamine makes you feel motivated to continue doing that behavior, and the constant loop continues.
The problem is that we cannot think our way out of uncomfortable feelings. The first step in calming this vicious thought cycle is to interrupt those thoughts. My favorite loop interrupter is:
A - acknowledge that you’ve gone down the same loop
C - connect with your body (maybe this is focusing on the breath or feeling proprioception)
E - engage with your 5 senses to bring you back to the present moment.
This requires A LOT of practice and in the beginning, you might feel like you spend all day trying to interrupt these thoughts.
What’s your favorite method for stopping the thought loop? Share below!
***
P.S. I’m Dr. Emily Kostelnik, Ph.D., both a Vestibular Warrior and a Vestibular Psychologist.
If you want educational, expert insights or easy-to-digest discussions about the vestibular system, dizziness, migraine, and anything that comes with vestibular disorders, follow along @dremilykostelnik !
Disclaimer: This is not therapy and does not replace therapy. Interacting through this medium does not constitute entering into a therapeutic relationship. This is for educational purposes only and is not intended as medical advice nor to diagnose or treat any medical condition.
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#rootedbehavioraleducation
#vestibularpsychologist
#dremilykostelnik
#vestibularsystem
#vestibularwarrior
#dizzinessrelief
#vestibularrehabilitation
#vestibularawareness
#vestibularmigraine
#vestibularmigraines
#vestibularmigraine
#migraineawareness
#pppd
#persistentposturalperceptualdizziness
#chronicdizziness
#vertigo
#neuroplasticity
#inflammation
@dremilykostelnik
5.6K
COFind out exactly how I recovered 👇🏼
✔️ COMMENT: NCD
And I’ll send you a masterclass I created to help people like you recover.
:
My chronic dizziness journey (PPPD/MdDS) started in 2019 and it has been the most difficult thing I’ve ever dealt with.
:
But I recovered, and now I want to help you do the same.
:
You are not alone or stuck!
#pppd #mdds #chronicillness #chronicdizziness #vestibularmigraine
@conscioushealing.uk
4.5K
SRPart #1 of symptoms: along with my regular content, I’ve been sharing some reels to create vestibular migraine awareness. this page on instagram has the prefect way of showing what exactly people like me go though during a vestibular migraine attack and sometimes even without an active attack because our bestie PPPD is stuck to us 🫶🏻
#vestibularmigraine #vestibularmigraines #pppd
@srl_irl
3.1K
THTesting for PPPD#dizziness #PPPD #vestibular #anxiety
@the_neuro_muscular_clinic
17.5K
THComment PPPD below!
PPPD can come from just about everywhere, which makes it really confusing. but the most common places PPPD comes from around here is vestibular migraine, BPPV, Ménière’s disease & vestibular neuritis!
Yes, it’s possible it’s ‘just’ from anxiety but it’s less common and less likely!
Comment PPPD below!
#vestibularmigraine #vestibularmigraines #pppd #migraine #migraines #bppv #vertigosucks #neuroplasticity #vestibulardisorder #persistentdizziness #chronicdizziness
@thevertigodoctor
15.7K
MOI’m Dr. Sina, chiropractor/global complex case consultant.
PPPD (persistent postural-perceptual dizziness) is real. The problem is how often it becomes a catch-all label, and the workup stops.
I see it constantly: chronic dizziness gets labeled “PPPD,” the plan becomes symptom coping for years (vestibular rehab, vision therapy, pacing, maybe meds), and if the patient plateaus everyone acts like the story is over. Plateau is not the end. Plateau is a diagnostic event.
PPPD is criteria-based. If the classic pattern is not clear (symptoms most days for months, reliably worse with upright posture, motion, and visually busy environments, usually after a precipitating event), I do not accept it as the primary explanation. “Normal” vestibular tests also do not automatically equal PPPD.
Here’s the blind spot: many persistent dizziness cases are not “just vestibular” and not “just psychological.” They are neck corridor cases.
When I say “cervicogenic dizziness,” I’m not only talking discs and joints. I’m talking the neck corridor as a systems hub:
• mechanics and proprioception (head-on-trunk input)
• spinal cord and brainstem signaling (myelopathy patterns can present without neck pain)
• arterial inflow and venous outflow patterns (positional intolerance matters)
• nerve tension and thoracic outlet syndrome patterns (NTOS/VTOS style compression)
• airway and breathing mechanics (sleep, CO2 tolerance, autonomics)
• upper aerodigestive factors (throat, reflux patterns) that keep the system irritated
Practical cues I refuse to ignore:
1. Dizziness reproducible with specific cervical positions.
2. Any abnormal neuro finding (gait change, reflex asymmetry, long-tract signs).
3. Symptoms that spike with head rotation/extension, or with sustained overhead arm use.
4. The “PPPD” patient who has done everything and still is stuck.
I just wrote up a case where a PPPD diagnosis persisted for years, until a full exam and systems screen exposed the real driver. I’m keeping the specifics inside the article because the reasoning process is the lesson.
Full Root Cause Breakdown is live in Movability Masterclass on Substack. The link is in our bio at the top of the page.
@movability
297.6K
COWe don’t believe that here💅💅💅
For context I’m talking about neuroplastic symptoms with NO evidence of structural issues.
Things like:
Fibromyalgia
Chronic dizziness
Chronic fatigue
Migraines
Tinnitus
Back pain
Shoulder pain
Foot pain
Joint pain
TMJ
Sciatica pain
Pelvic pain
Unexplained nerve pain and numbness
Etc …. (This is a non-exhaustive list!)
If you’re dealing with any of these diagnoses and a doctor has told you to just live with it… I’m so glad you found me😮💨
#chronicillness #chronicdizziness #dizzinessrelief #pppd #chronicpain
@conscioushealing.uk
1.4M
THI laughed watching them try… because this is the best way I can explain how walking feels for me every day. #vestibulardisorder #dizzy #invisibleillness #pppd #fyp
@thedizzymom
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