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Most people don't see the reality of ME - our BBC Lifeline Video is helping to change that πŸ“Ή Thank you to @montytrackstar for presenting, helping bring these stories to life and shine a light on wh
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πŸ“’ Major funding secured for Sequence ME & Long Covid, a DecodeME project. On #WorldMEDay, we are thrilled to share that our landmark research study, Sequence ME & Long Covid, has received Β£4.75 mil
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Thank you so much to everyone who has taken part in this year’s Blue Sunday Tea Party for ME πŸ’™ Together, you’ve helped make a real difference to people with ME across the world πŸ’™ We also want to s
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πŸ«– Today is the #TeaPartyForME2026! 🍰 This fantastic yearly event created by incredible fundraiser @theslowlane.me helps raise vital funds and awareness for ME charities around the world, as well as
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Happy Blue Sunday! πŸ’™ Our wonderful and dedicated staff here at Action for ME held their own virtual Tea Party for ME earlier in the week! Donate now via the link in our bio and help us provide supp
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πŸŽ‰ Today is the Blue Sunday #TeaPartyForME! Join us and @theslowlane.me to raise vital funds and awareness for ME and help break the isolation that people with ME so often experience. Here’s how to
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Thanks to our wonderful supporters, we can provide our vital support services to people with ME and their families. Last year, over 75% of people who accessed our Information and Support Service felt
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πŸ“Ή Behind the scenes of our BBC Lifeline appeal - only two days left of our campaign! Over the past few months, people with ME, families, carers, crew and staff all came together to help tell the rea
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What does ME really take away? For many people, it means losing the ability to work, study, socialise, exercise or even leave the house. For some, it means being unable to sit upright, eat properly,
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What does yesterday's funding announcement for Sequence ME & Long Covid mean for the future of ME research? In his latest blog, Simon McGrath explores why this landmark Β£4.75 million investment matte
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Do you know what ME feels like? ME is a debilitating, serious illness, yet people affected by ME face stigma and a lack of understanding. Together, we can change this 🧑 Turn awareness into action
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Around 25% of people with ME are severely or very severely affected. They are often left house or bed bound, unable to speak or tolerate light and sound, need assistance with daily care and may expe
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About @actionform.e

Action for ME is a verified Instagram nano influencer in the Nonprofit organization category. With 7.3K followers and 12 posts, actionform.e's account shows a follower-to-following ratio of 22.7:1. View all content anonymously on Pictame - no login required.

actionform.e's engagement rate sits at 2.37%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow β€” though every community is unique.

Out of the last 12 posts, 8% are videos and 92% are photos. Notably, photos tend to get 1.3x more engagement than videos. New content goes up pretty much every day β€” a very consistent posting habit. Captions lean detailed, averaging 750 characters.

2.37% engagement rate β€” room to grow compared to average for 1K-10K follower accounts.
8% videos, 92% photos. Photos get 1.3x more engagement here.
Posts every day β€” very consistent.
22.7:1 follower-to-following ratio.

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actionform.e
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@actionform.e

Action for ME

PublicNonprofit organization
Posts
12
Top Hashtags
#MECFS#pwME#MyalgicEncephalomyelitis#MyalgicE#BBCLifeline#BlueSunday2026#TeaPartyForME2026#WorldMEDay

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#nofilter#flowers#amazing#hair#foodie#travelphotography#sky#nails#moda#video#naturephotography#photographer
Followers
7.3K
Following
321
Avg. Likes
170
Avg. Comments
3
Engagement
2.38%

Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC0...

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