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This Lupus Awareness Month, the data points to a major gap in cardiovascular care. Patients with lupus nephritis face more than 4 times the risk of a cardiovascular event compared to people without lu
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May is Lupus Awareness Month 💜⁠ ⁠ Lupus is often called the "Great Imitator" because it can look like a dozen other things before it’s finally identified. For millions of people, the journey to a dia
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May is Lupus Awareness Month, but "lupus" doesn’t look the same for everyone.⁠ ⁠ From the biology of trauma to systemic disparities, systemic lupus erythematosus (SLE) is shaped by much more than just
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May is Lupus Awareness Month — and the numbers make clear why the diagnostic journey needs to change.⁠ ⁠ An estimated 1.5 million people in the United States have lupus, and 90% of them are women. Yet
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April is Sjögren's Awareness Month — and the most powerful thing you can do is share your story.⁠ ⁠ Too many patients spent years being dismissed, misdiagnosed, or told their symptoms weren't serious.
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An estimated 4 million Americans have Sjögren's disease and many may be undiagnosed.⁠ ⁠ It's potentially the second most common autoimmune disease in the US — and there is still no FDA-approved treatm
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📣 THIS Thursday: How to build a rare disease nonprofit from the ground up.⁠ ⁠ John Muller started GettingUp.org to fight for a disease most doctors have never heard of. He'll share what actually work
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If you have lupus and you're already taking a statin for cholesterol, there may be more good news than you know.⁠ ⁠ A new meta-analysis of 12 studies found statin use is associated with reduced inflam
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An Italian nationwide study of over 356,000 people (54,896 with autoimmune diseases) just confirmed something important for our community: chronic inflammation raises cancer risk by 32%—and treating y
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"If you live with autoimmune disease: your data matters. Your story matters. You matter."⁠ ⁠ We believe that the only way to solve the "autoimmune mystery" is through the power of community. When we l
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Those words from Erin Moriarty are a mirror for so many in the autoimmune community. How many years have we spent telling ourselves we were "just tired" and how many of us have been told by doctors th
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A diagnosis (or four). As Selma Blair points out, autoimmune diseases rarely travel alone. Because our immune systems are so complex, it’s common to manage multiple conditions at once.⁠ ⁠ While "four
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About @autoimmunereg

The Autoimmune Registry is a Instagram nano influencer in the Nonprofit organization category. With 1.9K followers and 12 posts, autoimmunereg's account shows a follower-to-following ratio of 3.9:1. View all content anonymously on Pictame - no login required.

autoimmunereg's engagement rate sits at 0.20%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 0% are videos and 100% are photos. Content shows up about every 4 days. Captions lean detailed, averaging 844 characters.

0.20% engagement rate — room to grow compared to average for 1K-10K follower accounts.
Posts about every 4 days.
3.9:1 follower-to-following ratio.

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autoimmunereg
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@autoimmunereg

The Autoimmune Registry

PublicNonprofit organization
Posts
12
Followers
1.9K
Top Hashtags
#AutoimmuneDisease#AutoimmuneRegistry#ChronicIllness#WomensHealth#LupusAwarenessMonth#LupusAwareness#PatientVoices#SjogrensAwarenessMonth

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#summer#fitness#repost#food#followme#photo#music#viralreels#life#ootd#motivation#friends
Following
487
Avg. Likes
4
Avg. Comments
0
Engagement
0.21%

Nonprofit advancing research across 100+ autoimmune diseases by connecting patient data with science to improve diagnosi...

linktr.ee/autoimmuneregistry
#fun
#like4like
#me