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Our FAQ’s... Answered! We aim to provide clear and concise information for these FAQ’s, but our answers are general in nature, so it’s important that you consult with a medical professional for person
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Scroll through to find out more about the Charity - including our history, aims, methods of help and support, and so much more! For further information - including more details around what a CSF Leak
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🫶👩🏽‍⚕️ 👩‍⚕️ 👨🏽‍⚕️ This #InternationalNursesDay, the CSF Leak Association stands in solidarity with the Royal College of Nursing @RCN in celebrating and thanking nurses everywhere. Nurses are of
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Living with a CSF leak is not just physically debilitating — it can be mentally exhausting too. Chronic pain, delayed diagnosis, medical trauma, and uncertainty can take a real toll on emotional wellb
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🧠 Raising awareness of CSF leaks at the UK’s biggest neurology event – ABN Conference 2026 🙌We’re proud to share that the CSF Leak Association was represented on the Neurological Alliance stand at
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🙌 We’re really encouraged by the interest in our poster at #RCEM Excellence in Emergency Medicine Conference. So many clinicians have shared the challenges they face and how important clearer pathwa
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🚑 Emergency clinicians save lives every day - but CSF leaks are still frequently missed in acute settings At #RCEM Conference our poster developed with pro bono support from Costello Medical shares
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📍 We’re at #RCEM Conference! Our poster highlighting the Multidisciplinary Consensus Guideline for Diagnosis and Management of SIH due to CSF Leak is now on display Thank you to everyone taking the
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📣 We’re heading to #RCEM Conference We'll be at the Excellence in Emergency Medicine Conference with our poster highlighting the Multidisciplinary Consensus Guideline for Diagnosis and Management of
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🏅 He smashed it! Ruaridh completed his first ever Marathon in an incredible 3 hours 27 minutes! Running for his Mum Susan and everyone affected by CSF leaks. Huge thanks to Ruaridh and everyone who
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📣 What patients have known for years - research confirms A new study by the CSF leak team at the Mayo Clinic shows people with spinal CSF leak often face years of symptoms, multiple specialists and
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👀 “Why did her symptoms worsen when she stood up?” Trustee Dr Bern Hard’s story featured in ‘That’s Life’ Magazine, to help more people recognise the signs and symptoms of a CSF leak sooner and empo
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About @csfleakassociation

CSF Leak Association is a Instagram nano influencer in the Charity Organization category. With 1.7K followers and 12 posts, csfleakassociation's account shows a follower-to-following ratio of 12.4:1. View all content anonymously on Pictame - no login required.

csfleakassociation's engagement rate sits at 2.02%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 8% are videos and 92% are photos. Notably, photos tend to get 1.5x more engagement than videos. Content shows up about every 27 days. Captions lean detailed, averaging 567 characters.

2.02% engagement rate — room to grow compared to average for 1K-10K follower accounts.
8% videos, 92% photos. Photos get 1.5x more engagement here.
Posts about every 27 days.
12.4:1 follower-to-following ratio.

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csfleakassociation
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@csfleakassociation

CSF Leak Association

PublicCharity Organization
Posts
12
Followers
1.7K
Top Hashtags
#RCEM#SIH#csfleakassociation#CSFLeaks#EmergencyMedicine#migraine#headache#CSFLeakAwareness

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#summer#fitness#repost#food#followme#photo#music#viralreels#life#ootd#motivation#friends
Following
139
Avg. Likes
33
Avg. Comments
2
Engagement
2.04%

We are a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of CSF leaks

linktr.ee/csfleakuk
#fun
#like4like
#me