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OneShot.CureMito.org When we saw Harrison Ford’s speech to ASU, it felt like a direct message to our Leigh syndrome community. There are moments in history when ordinary people decide to do somethin
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One Shot to Live: The Origin One Shot to Live started as a documentary series that followed Cure Mito co-founder Kasey Woleben on her journey to pursue gene therapy for children affected by SURF1 Lei
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We need your help, and so does the entire mitochondrial disease community. Wally had MT-ND5 that is Leigh syndrome and MELAS, and while this drug trial isn’t targeting his specific genetic variant WE
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One Shot to Live merch is here 🌊 We teamed up with artist @k.castleberry.art to create a beach-inspired collection for our SURF1 fundraiser. We love the coastal design she created to help unite the
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Today is the official launch of One Shot to Live β€” a united campaign to help raise $2.5 million and advance a clinical trial for SURF1 Leigh syndrome. This is the closest we’ve ever been to a potenti
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Today we are resharing our first Leigh syndrome patient registry publication, published in 2023. Since then, the paper has continued to make an impact, with more than 6,000 views and 15 citations. If
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Jackson loved swimming, bath time, books with mama and daddy, and being the center of attention. His contagious smile brought joy to everyone around him. πŸ’œ Shortly after his first birthday, Jackson
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To all the mothers in our Cure Mito Foundation family, we honor you today. Mother's Day holds many layers for our community. We see the incredible strength of the mothers who are in the thick of the
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Sharing this beautiful artwork created by Eleanor for the 2025 Color for Mito Contest. Thank you for sharing your creativity with our community! πŸ’œ
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Mitochondrial transplantation is an emerging approach focused on restoring energy at the cellular levelβ€”by delivering healthy mitochondria into damaged cells. Cure Mito is partnering with Dr. Jonatha
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What does a simple ice cream run look like for a family with a medically complex child? Thank you to one of our moms, Libby Perna, for sharing this powerful and educational look into her family’s ex
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Join us in congratulating Emma Boggs on winning 1st place at the UNIDO Gamesβ€”and not letting Leigh syndrome stop her from defining what’s possible or having fun πŸ’™
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About @cure_mito_foundation

@cure_mito_foundation is a Instagram nano influencer in the Nonprofit organization category. With 1.2K followers and 12 posts, cure_mito_foundation's account shows a follower-to-following ratio of 5.8:1. View all content anonymously on Pictame - no login required.

cure_mito_foundation's engagement rate sits at 3.06%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow β€” though every community is unique.

Out of the last 12 posts, 50% are videos and 50% are photos. Notably, videos tend to get 6.9x more engagement than photos. New content goes up pretty much every day β€” a very consistent posting habit. Captions lean detailed, averaging 571 characters.

3.06% engagement rate β€” room to grow compared to average for 1K-10K follower accounts.
50% videos, 50% photos. Videos get 6.9x more engagement here.
Posts every day β€” very consistent.
5.8:1 follower-to-following ratio.

FAQs About @cure_mito_foundation

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cure_mito_foundation
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@cure_mito_foundation

PublicNonprofit organization
Posts
12
Followers
1.2K
Top Hashtags
#OneShotToLive#CureMito#SURF1#LeighSyndrome#leighsyndrome#oneshottolive#curemito#surf1

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#moda#video#naturephotography#photographer#sun#trend#workout#instafood#baby#follow4follow#amor#interiordesign
Following
200
Avg. Likes
32
Avg. Comments
3
Engagement
3.03%

Cure MITO Foundation is led by parents of children affected by Leigh syndrome. Our mission is to empower families to fi...

oneshot.curemito.org
#illustration
#home
#tiktok