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Always happy to support these @stanford researchers and clinicians helping us fight for a cure πŸ’ͺ With your donations, we can find a cure by funding a cure. Please visit www.ebmrf.org/donate to dona
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From eye drops to bandages, this EB Awareness Week we are helping our warriors! Thank you for supporting our efforts. Please follow the link in our bio to donate πŸ¦‹ #ebawarenessweek #ebmrf #ebwarriors
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Thank you @chiesiglobalrarediseases for raising awareness and sharing @abrar_alothman and @michaellanza93 β€˜s inspiring journeys. Watch full video from The Next Frontier at https://www.bbc.com/storywor
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The EBMRF is proud to support this groundbreaking research. Success stories like this one fuel our determination to continue putting our resources where they are needed mostβ€” at the research level. Th
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EB doesn’t define you…you are more than EB. Join us during #ebawarenessweek as we continue to highlight all the amazing things that make this Community shine #ebwarrior
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β€œDo you remember, 21st of September?” We do! One month ago this magical evening shattered all our expectations, brought smiles to so many people and raised awareness for EB…and over $1 million for cri
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Thank you @people for helping raise awareness for EB and shining a light on all of @bdog2k β€˜s accomplishments. Only 4 days left to buy tix to #rock4eb link in bio #warrior
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Tickets on sale now! Hurry before it sells out #fundacure
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SAVE THE DATE! Are you ready?! We are so excited to get back to Rock4EB with Grammy Winner PINK and Dallas Green performing as You +Me. You won’t wanna miss this! #malibu #fundacurefriday Ticket inf
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Today and everyday, we honor the wisdom and strength of all moms. Happy Mother’s Day! #ebwarriors #mothersday #ebmrf
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Hard to believe we all gathered a year ago today to celEBrate at ROCK4EB! Can’t wait to rock with everyone again soon… #ebmrf #eb #rock4eb #malEBu #malibu #epidermolysisbullosa
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WE ARE INSPIRED BY… Thank you @kadeetroop for your love and commitment to your family and the entire EB community. β€œEB didn’t come to me in the shocking way it comes to most families. I invited myse
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About @ebmrf

EBMRF is a Instagram nano influencer in the Nonprofit organization category. With 9.4K followers and 139 posts, ebmrf's account shows a follower-to-following ratio of 31.0:1. View all content anonymously on Pictame - no login required.

ebmrf's engagement rate sits at 1.68%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow β€” though every community is unique.

Out of the last 12 posts, 0% are videos and 100% are photos. Content shows up about every 66 days. Captions lean moderate, averaging 320 characters.

1.68% engagement rate β€” room to grow compared to average for 1K-10K follower accounts.
Posts about every 66 days.
31.0:1 follower-to-following ratio.

FAQs About @ebmrf

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ebmrf
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@ebmrf

EBMRF

PublicNonprofit organization
Posts
139
Followers
9.4K
Top Hashtags
#ebmrf#malibu#rock4eb#rarediseaseday#eb#ebawarenessweek#ebwarriors#ebwarrior

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

Following
303
Avg. Likes
152
Avg. Comments
6
Engagement
1.68%

We are an all volunteer charity raising awareness and funding a cure for Epidermolysis Bullosa (EB) a rare, and debilita...

linktr.ee/ebmrf/