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Rare doesn’t mean few. It means millions of lives and a race against time. What starts with one rare disease becomes a story shaped by music, community, and hope. A story of people refusing to wait,
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For those with severe Epidermolysis Bullosa (EB), time is the most valuable asset, yet every day brings pain and dangerous complications. They can’t wait decades for a cure. Our Venture Philanthropy
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Epidermolysis Bullosa (EB) is a group of rare, life-threatening genetic disorders where the proteins that hold skin layers together are lacking. Without that link, routine touches, like getting dresse
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ZEVASKYN® (prademagene zamikeracel), an FDA-approved gene-modified cellular sheet therapy, is now available at NewYork-Presbyterian/Columbia University Irving Medical Center. 📍ZEVASKYN was approved
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Huge congrats to @billytalentband on receiving the @thejunoawards Awards Humanitarian Award. For decades, they’ve used their platform to show up, give back, and turn music into meaningful impact. We’
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What started with families coming together to find a cure for their children has grown into a new model for how we fund cures. EBRP CEO Michael Hund explains Venture Philanthropy and how it’s helping
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We’re proud to share that our CEO, Michael Hund, has been invited to join the Fast Company Impact Council. Thank you to @fastcompany for bringing together leaders across business, innovation, and soci
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At last month’s Town Hall, our CEO Michael Hund shared a simple idea: Hope isn’t passive. It’s collective. It’s what happens when people decide to show up, with their time, talent, resources, and ene
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"Running the NYC Half Marathon was both mentally and physically demanding, pushing me well beyond my comfort zone. Despite the challenge, it was an incredibly rewarding experience. Having the opportun
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From Greenwich to Melbourne, Seattle to Pittsburgh… the 2026 #PlungeForElodie is bringing people together across continents to turn awareness into action. What started as a small hometown effort is n
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One quarter down… we’re just getting started! We just passed the 25% mark of our Matter of Time $1 Million Dollar Match! Right now, every donation is still being doubled, dollar for dollar, thanks t
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@kermitthefrog is calling on his friends… and you 💚 It’s not easy being green but taking the plunge is! Join the Plunge for Elodie and help fund life-saving EB research. Ready to hop in? 💧 Join a
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About @ebresearch

EB Research Partnership is a verified Instagram micro influencer in the Nonprofit organization category. With 37.7K followers and 1592 posts, ebresearch's account shows a follower-to-following ratio of 58.0:1. This profile demonstrates strong community engagement within its niche. View all content anonymously on Pictame - no login required.

ebresearch's engagement rate sits at 15.57%. That's 523% above what you'd typically see for accounts with 10K-100K followers (average 2.5%) — a sign of a genuinely connected audience.

Out of the last 12 posts, 50% are videos and 50% are photos. Notably, videos tend to get 96.7x more engagement than photos. Content shows up about every 24 days. Captions lean detailed, averaging 635 characters.

15.57% engagement rate — 523% above average for 10K-100K follower accounts.
50% videos, 50% photos. Videos get 96.7x more engagement here.
Posts about every 24 days.
58.0:1 follower-to-following ratio.

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ebresearch
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@ebresearch

EB Research Partnership

PublicNonprofit organization
Posts
1.6K
Top Hashtags
#EBResearch#HealEB#VenturePhilanthropy#RareDiseaseResearch#epidermolysisbullosa#lifewithEB#PlungeForElodie

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#gym#motivation#sunset#dog#model#makeup#beach#sky#party#cool#igers#cats
Followers
37.7K
Following
649
Avg. Likes
5.8K
Avg. Comments
87
Engagement
15.57%

EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB)🦋 🎬 @matteroftimefilm st...

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