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Last year, 25 people distributed fact sheets across England and Wales for us. This year we're aiming to fill the map! Can you see your area missing? Sign up to deliver fact sheets to your area and he
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“I wish I had reached out sooner.” 💚 In this video, Cara shares that in hindsight, she wishes she had contacted the Huntington’s Disease Association earlier. When you’re living with Huntington’s di
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Not everyone has heard of Huntington’s disease, and that includes healthcare professionals. This year our #BehindTheGene campaign is back and we need your help. Swipe to find all the ways you can get
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Looking for a way to support us this Awareness Month? 💚 Why not host your own pop-up event in your local area! Whether you're raising awareness or fundraising, a pop-up event is a brilliant way to ge
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For people at risk of Huntington’s disease, starting a family can involve additional decisions. Some people explore options such as genetic counselling, IVF with genetic testing, or other family plan
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Today is HD Gratitude Day 💚 A global day to recognise the partnership between Huntington’s families and scientists. March 23 marks the discovery of the Huntington’s disease gene in 1993. A moment t
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Deciding whether to tell an employer about Huntington’s disease is a personal choice. Some people choose to share this information so they can receive support at work, while others may wait until the
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“She needed 24-hour company… otherwise she’d get herself into dangerous situations.” Jen shares what it was really like trying to find the right care for her mum with Huntington’s disease.
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Many parents wonder how and when to talk to children about Huntington’s disease. Honest, age appropriate conversations can help young people understand what is happening in their family and feel supp
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Being part of the Huntington's community is a lifelong journey. At our AGM, Lisa shared her perspective on what that journey can look like. She spoke about how, even with the challenges Huntington's
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Planning for the future can also involve thinking about finances. Families may want to explore options such as savings, insurance or financial support to help them prepare for the future. This carou
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Planning for the future can sometimes include talking to children or young people about Huntington’s disease. In this video, members of our Youth Voice share how they found out about Huntington’s in
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About @hdauk

Huntington's Disease Association is a Instagram nano influencer. With 4.5K followers and 2481 posts, hdauk's account shows a follower-to-following ratio of 10.6:1. View all content anonymously on Pictame - no login required.

hdauk's engagement rate sits at 0.73%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 33% are videos and 67% are photos. New posts appear roughly every 3 days — a steady, reliable rhythm. Captions lean moderate, averaging 345 characters.

0.73% engagement rate — room to grow compared to average for 1K-10K follower accounts.
New content every 3 days — a steady rhythm.
10.6:1 follower-to-following ratio.

FAQs About @hdauk

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hdauk
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@hdauk

Huntington's Disease Association

Public
Posts
2.5K
Followers
4.5K
Top Hashtags
#BehindTheGene#HDGratitudeDay#HuntingtonsDisease#Gratitude#Community

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

Following
427
Avg. Likes
33
Avg. Comments
1
Engagement
0.75%

Supporting those in England and Wales living with Huntington's disease. See our highlights for links to events, stories ...

linktr.ee/hdauk_