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Today is IgAN (IgA nephropathy) Awareness Day! If you have a rare kidney disease, such as IgAN, NephCure can offer you the community and support you need! πŸ’š NephCure is fighting to ensure that all i
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Happening NOW! The IgAN Alliance is hard at work in Dallas Texas removing barriers to IgAN (IgA nephropathy) care. #nephcure #rarekidneydisease #iganephropathy #igan
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For IgAN Awareness Day, Tony Pisa shares advice for those newly diagnosed with IgA Nephropathy. He highlights the importance of staying informed, being actively involved in your care, and working clos
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Today is IgA Nephropathy (IgAN) Awareness Day!πŸ’š While this disease is rare, those living with it are not alone and deserve equitable access to care. Thank you for standing with the IgAN community!
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Today is IgAN (IgA nephropathy) Awareness Day! For too long, this rare kidney disease has been underrepresented, with advancements driven largely by the courage and advocacy of patients and families
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Momentum is building at Workshop 2 of the IgAN Alliance! After our first convening, we launched working groups focused on the biggest barriers to IgAN care including early diagnosis, urgency to trea
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Say hello to Dr. Allan Pangburn. Dr. Pangburn was diagnosed with focal segmental glomerulosclerosis (FSGS), a rare kidney disease, five years ago. Thank you, Dr. Pangburn, for sharing your story an
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Did you know there are 150+ rare kidney diseases affecting hundreds of thousands of patients? It’s time to step into the heart of advocacy. Rare Kidneys on the Hill Day, on June 22nd-23rd in Washi
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IgAN Awareness Day is fast approaching on May 14. Get ready to support patients like Elleβ€”comment β€œIGAN,” and we’ll send you everything you need to prepare for the day!
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Did you know? πŸ’‘ IgA nephropathy (IgAN) can only be diagnosed with a kidney biopsy. While blood and urine tests may show warning signs, a biopsy is essential to confirm the diagnosis and guide next s
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Nothing quite prepares you for how quickly life can change. We had just moved across the country, back to Tulsa, ready to start a new job and begin a new chapter. Within 24 hours, everything shifted.
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Meet Michael Levine, NephCure’s Board President πŸ’™ Michael’s connection to NephCure began in 2006, when his son Matthew was diagnosed with FSGS at just two years old. Determined to make a difference
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About @nephcure

NephCure | For Rare Kidney Disease is a verified Instagram nano influencer in the Nonprofit organization category. With 7.2K followers and 12 posts, nephcure's account shows a follower-to-following ratio of 13.6:1. View all content anonymously on Pictame - no login required.

nephcure's engagement rate sits at 0.35%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow β€” though every community is unique.

Out of the last 12 posts, 67% are videos and 33% are photos. Notably, photos tend to get 1.6x more engagement than videos. New content goes up pretty much every day β€” a very consistent posting habit. Captions lean detailed, averaging 567 characters.

0.35% engagement rate β€” room to grow compared to average for 1K-10K follower accounts.
67% videos, 33% photos. Photos get 1.6x more engagement here.
Posts every day β€” very consistent.
13.6:1 follower-to-following ratio.

FAQs About @nephcure

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nephcure
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@nephcure

NephCure | For Rare Kidney Disease

PublicNonprofit organization
Posts
12
Top Hashtags
#rarekidneydisease#igan#nephcure#iganephropathy#iganawarenessday

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

Followers
7.2K
Following
527
Avg. Likes
23
Avg. Comments
2
Engagement
0.35%

Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better...

nephcure.org/fda-approves-spar...