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Founded in 2000 by a group of committed patient parents, NephCure is the only kidney organization squarely focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases.
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Meet Anthony 💚 Anthony is a fun-loving 6-year-old. He is a strong, and incredibly resilient kid who was diagnosed with (MCD) Nephrotic Syndrome at just two years old. Since then, he’s faced countles
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For 8-year-old Harper, a “normal” day looks a little different than most children her age. Her routine is built around infusion treatments and monitoring lab values as she navigates focal segmental gl
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My name is Miranda, and last August, at 24 years old, I was diagnosed with primary FSGS. My diagnosis didn’t come quickly or easily. In early June, I noticed slight swelling in my ankles. By the end o
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Your Story Matters! Sharing your experience helps others feel less alone and builds greater awareness and understanding of rare kidney diseases. We feature patient stories across our social media, new
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Swipe to discover 3 powerful NephCure resources — including our Find a Specialist tool, Clinical Trial Matching tool, and free patient navigation services, designed to help you get the expert care and
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Focal Segmental Glomerulosclerosis (FSGS) is a rare kidney disease characterized by dysfunction in the part of the kidney that filters blood (glomeruli). Only some glomeruli are affected, but continue
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Rare kidney disease deserves to be seen, and this Kidney Month, you helped make that happen. 💚 Throughout March, our community has been louder than ever in raising awareness for rare kidney disease.
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Meet Samantha 💚 Samantha is living with a rare kidney disease called FSGS, and she’s not alone. Thousands of patients and families are navigating the uncertainty, challenges, and resilience that com
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Being rare can feel isolating, but no one should navigate a rare kidney disease alone. This Kidney Month, we’re uplifting every patient, caregiver, and family who has felt the weight of a rare diagnos
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At around 20 weeks pregnant in 2020, my doctors noticed high protein in my urine. I was referred to high-risk doctors and on my first visit, I never made it back home. I was immediately admitted for h
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Our community is stronger because of the brilliant researchers who devote their work to rare, protein‑spilling kidney diseases. For nearly two decades, NephCure‑funded research helped uncover answer
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About @nephcure

NephCure | For Rare Kidney Disease is a verified Instagram nano influencer in the Nonprofit organization category. With 6.9K followers and 1687 posts, nephcure's account shows a follower-to-following ratio of 13.0:1. View all content anonymously on Pictame - no login required.

nephcure's engagement rate sits at 0.92%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 25% are videos and 75% are photos. Notably, videos tend to get 12.0x more engagement than photos. New content goes up pretty much every day — a very consistent posting habit. Captions lean detailed, averaging 859 characters.

0.92% engagement rate — room to grow compared to average for 1K-10K follower accounts.
25% videos, 75% photos. Videos get 12.0x more engagement here.
Posts every day — very consistent.
13.0:1 follower-to-following ratio.

FAQs About @nephcure

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nephcure
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@nephcure

NephCure | For Rare Kidney Disease

PublicNonprofit organization
Posts
1.7K
Top Hashtags
#KidneyMonth#aesthetic#art#artist#beautiful#cars#drawing#design

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#style#instadaily#tbt#followme#repost#like4like#summer#beauty#selfie#food#me#instalike
Followers
6.9K
Following
528
Avg. Likes
56
Avg. Comments
8
Engagement
0.93%

Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better...

nephcure.org
#girl
#fun
#follow