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Dini knew something was different with her second daughter, Ayoni, from the moment she was born. Ayoni has Prader-Willi syndrome (PWS), a rare genetic disease that only affects about 20,000 newborns.
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It's May 1st and that means another #PWSAwarenessMonth has arrived! We're excited to continue spreading awareness, information, and support for our loved ones with PWS. To kick things off, we invite y
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PWS families in New Jersey and surrounding states! You’re invited to the next PWS Community Day in Jersey City, NJ. πŸ“… Saturday, May 30, 2026 | 1:00 – 4:00 PM ET πŸ“ Liberty Science Center (222 Jersey
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We hope you enjoy our 2026 Rare Aware Art Share: Advocacy and Awareness submissions! Check out the gallery and read the artist's responses by clicking the "Rare Aware Art Share Gallery" button at the
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PWS Awareness Fact #17: Hypotonia affects individuals with PWS throughout their lives. The use of growth hormone, play, and therapies improves muscle tone. Visit https://www.pwsausa.org/pwsawarenessm
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We hope you enjoy our 2026 Rare Aware Art Share: Advocacy and Awareness submissions! Check out the gallery and read the artist's responses by clicking the "Rare Aware Art Share Gallery" button at the
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We're joining the trend for our PWS Awareness Month Spotlight on PWS. Do you have an adult with PWS that you would like to highlight? Please send us their baby photo, a current photo, and let us know
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We hope you enjoy our 2026 Rare Aware Art Share: Advocacy and Awareness submissions! Check out the gallery and read the artist's responses by clicking the "Rare Aware Art Share Gallery" button at the
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PWS Awareness Fact #16: Individuals with PWS experience high levels of anxiety that negatively affects functioning. With the help of therapies, social stories, and medication, anxiety may be better ma
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PWS Awareness Fact #15: Excessive Daytime Sleepiness (EDS), cataplexy, and narcolepsy affect many individuals with PWS. There is at least one pharmaceutical trial drug showing promising results in the
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Happy PWS Awareness Day! (May 15) Whether you're bringing awareness to PWS by telling a friend about it over a cup of coffee at your kitchen table or telling your story on a national stage, awareness
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We wish all our families a wonderful National PWS Awareness Day (May 15th)! Today, and every day, is a great opportunity to spread awareness about Prader-Willi syndrome. If you want to help spread awa
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About @pwsausa

PWSA | USA Official Account is a Instagram nano influencer. With 2.9K followers and 12 posts, pwsausa's account shows a follower-to-following ratio of 31.2:1. View all content anonymously on Pictame - no login required.

pwsausa's engagement rate sits at 1.79%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow β€” though every community is unique.

Out of the last 12 posts, 17% are videos and 83% are photos. Notably, videos tend to get 7.5x more engagement than photos. New content goes up pretty much every day β€” a very consistent posting habit. Captions lean detailed, averaging 583 characters.

1.79% engagement rate β€” room to grow compared to average for 1K-10K follower accounts.
17% videos, 83% photos. Videos get 7.5x more engagement here.
Posts every day β€” very consistent.
31.2:1 follower-to-following ratio.

FAQs About @pwsausa

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pwsausa
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@pwsausa

PWSA | USA Official Account

Public
Posts
12
Followers
2.9K
Top Hashtags
#praderwillisyndrome#praderwilli#pwsawarenessmonth#pwscommunity#pwsawareness#RareAwareArtShare#pwsart#PWSAwarenessMonth

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

Following
94
Avg. Likes
50
Avg. Comments
2
Engagement
1.77%

24-Hour Crisis Phone Line: (941) 312-0400

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