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Just in case you needed this today… Swipe through for a few reminders for the moms who keep asking questions, trusting their gut, and pushing for answers. #RareDiseaseAwareness #MedicalMom #ParentAdv
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Hello to all my new followers 💕 #momlife #rarediseasemom #medicalmom . . . . . #raredisease #rarediseaselife #family #introduction #follow #girlmom #daughters #sisters #medicalparents #medicalmama #
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Danny playing tee ball with his dad in the backyard and repeating “hit the ball” before every single swing had us dying laughing 😂⚾️ This boy did NOT want to stop playing once he got started. I thin
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The second Danny saw his dad outside working, he wanted to be right there helping too. He takes every little job so seriously and gets so proud of himself after. Watching him grow into such a kind, he
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Danny quietly singing the Billie Eilish cat remix to himself while he played was just amazing… 😂 He learned it from his big sisters because this child absorbs EVERYTHING around him. The second he rea
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Kayla saw me making a rare disease awareness video and decided she wanted to make one herself. 🤍 She wanted to help raise awareness for Shwachman-Diamond Syndrome… or “SDS” as she likes to call it b
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I was trying to capture Emma singing at her chorus concert… and instead I caught one of the sweetest little moments between siblings. 🤍 Right in the middle of the song, Danny says to himself, “Emma’
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His job? Rallying the girls for snacks and meals. And this guy never misses a shift 😂 #MomLife #ParentingMoments #ChildhoodJoy #RealLifeParenting #FamilyFun
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A reminder we all need sometimes: kindness costs nothing, but it can mean everything to someone fighting a battle you can’t see. 🤍 #ChooseKindness #MomLife #KindnessMatters #FBLifestyle #Parenting
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Sometimes the hardest photos to look at are the ones from before you had answers. At the time, they felt like ordinary moments. Now you look back and realize life was quietly changing in ways you cou
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This was before we knew. Before her diagnosis of Shwachman-Diamond Syndrome. Before the appointments, the labs, the fear, and the advocacy. She lived in pain… we lived in fear. I look at this video
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Recognize rare. Not everyone with the same disease presents the same way. Parents can’t be afraid to advocate. Ask questions. Research. Sometimes doctors just need a little push outside their comfort
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About @rarelifemom

Lisa ✨Rare Disease Mom✨ is a verified Instagram micro influencer. With 39.8K followers and 12 posts, rarelifemom's account shows a follower-to-following ratio of 37.3:1. This profile demonstrates strong community engagement within its niche. View all content anonymously on Pictame - no login required.

rarelifemom's engagement rate sits at 1.87%. For accounts with 10K-100K followers, the average is around 2.5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 67% are videos and 33% are photos. Notably, videos tend to get 20.4x more engagement than photos. Content shows up about every 103 days. Captions lean moderate, averaging 446 characters.

1.87% engagement rate — room to grow compared to average for 10K-100K follower accounts.
67% videos, 33% photos. Videos get 20.4x more engagement here.
Posts about every 103 days.
37.3:1 follower-to-following ratio.

FAQs About @rarelifemom

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rarelifemom
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@rarelifemom

Lisa ✨Rare Disease Mom✨

Public
Posts
12
Top Hashtags
#MomLife#FBLifestyle#RareDiseaseAwareness#MedicalMom#ParentingJourney#ParentAdvocate#InvisibleIllness#BoyMom

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#sky#nails#moda#video#naturephotography#photographer#sun#trend#workout#instafood#baby#follow4follow
Followers
39.8K
Following
1.1K
Avg. Likes
732
Avg. Comments
10
Engagement
1.87%

𝑀𝑜𝓂 of 5 💗💗💗💗💙 🩺 Medical & Mom Life ☀️ Parenting | Lifestyle | Advocacy ☕️ Coffee Fueled 🙌🏻🩵 Sharing the re...

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