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We’re proud to share our second published study from the Raymond A. Wood Foundation’s Hypothalamic-Pituitary Brain Tumors Patient Registry, focused on hyperphagia in craniopharyngioma (CP)β€”a serious a
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Join us for some of our April events and initiatives! Monthly Support Groups are back with an easy registration process. Just email outreach@rawoodfoundation.org to join the Caregiver Support Group
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Pursue Your Dreams through the #RAREis Scholarship Fund! The Raymond A. Wood Foundation encourages members of the hypothalamic-pituitary brain tumor community to apply for the #RAREis Scholarship Fund
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Our first research study, Treatment Priorities in Craniopharyngioma: Perspectives of Survivors and Caregivers has been published. Authored by RAWF Scientific Director Nathalie Kayadjanian and Board
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The Raymond A. Wood Foundation is producing a series of videos featuring patients and clinicians to learn more about their experience with hypothalamic-pituitary brain tumors and their side effects.
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Meet Nava, the latest recipient of one of our handheld blood analyzers! Nava is a 5-year-old from Brookhaven, PA, who was diagnosed with craniopharyngioma in June 2025. Despite everything she has fa
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The FDA has approved IMCIVREE (setmelanotide) for acquired hypothalamic obesityβ€”a condition so many of our families live with every day. For years, patients and caregivers have shared their experienc
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This is a BIG moment for our community πŸ’™ The FDA has approved IMCIVREE (setmelanotide) for acquired hypothalamic obesityβ€”a condition so many of our families live with every day. For years, patients
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The Raymond A. Wood Foundation is proud to announce our first research study, Treatment Priorities in Craniopharyngioma: Perspectives of Survivors and Caregivers has been published! Authored by RAWF
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Grief comes in many forms. It's not just about a death, but the complex feelings that can arise from diagnosis, sharing the news with well-meaning friends, and family, and processing the sudden ways y
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Join us for our Survivor Support group tonight at 7pm EST, hosted by brain tumor survivor Jason Burris! Email outreach@rawoodfoundation.org to join. #supportgroup #braintumor
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Team RAWF took on NYC in the United Half Marathon and raised over $17k to support our mission! RAWF is deeply grateful to every runner, donor, and supporter who helped make this moment possible. You
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About @rawoodfound

Raymond A. Wood Foundation is a Instagram nano influencer in the Nonprofit organization category. With 1K followers and 1696 posts, rawoodfound's account shows a follower-to-following ratio of 1.2:1. View all content anonymously on Pictame - no login required.

rawoodfound's engagement rate sits at 0.98%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow β€” though every community is unique.

Out of the last 12 posts, 0% are videos and 100% are photos. New posts appear roughly every 2 days β€” a steady, reliable rhythm. Captions lean detailed, averaging 662 characters.

0.98% engagement rate β€” room to grow compared to average for 1K-10K follower accounts.
New content every 2 days β€” a steady rhythm.
1.2:1 follower-to-following ratio.

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rawoodfound
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@rawoodfound

Raymond A. Wood Foundation

PublicNonprofit organization
Posts
1.7K
Followers
1K
Top Hashtags
#RAREis#supportgroup#braintumor

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Popular Hashtags

#beautiful#nature#picoftheday#travel#happy#cute#style#instadaily#tbt#followme#repost#like4like
Following
829
Avg. Likes
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Avg. Comments
0
Engagement
0.98%

Providing quality of life support for hypothalamic-pituitary brain tumor survivors 🧠 #braintumor #craniopharyngioma #pi...

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