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Wherever you are in your rare heart journey, we’re here to help. We’re here to offer support, answer your questions, connect you with other families who’ve been through similar experiences, and help
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Who are we at The SADS Foundation? Swipe through these photos to read more about who SADS is, our mission, our goals, and our values. 🏷️ #SADS #SADSCommunity #SADSLive #LivingwithaSADSCondition #L
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FAQ of the Month: Is it safe to take a GLP-1 drug for weight loss if you have Long QT Syndrome? GLP-1 drugs like Ozempic, Wegovy, and Mounjaro are everywhere right now, and if you have LQTS, you know
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Swipe to check out recent papers published on heart devices, LQTS, Brugada Syndrome, and ARVC (ACM) this past month! To access these full articles - and to get monthly emails with the latest advances
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🔬 Natural history studies are crucial in understanding inherited arrhythmia conditions – advancing research, leading to clinical trials and new therapies. Dr. Andrew Landstrom was part of our recen
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Thank you so much to Genevie from @sadsfoundation for advocating for me and to Dr. Michael J. Ackerman, MD, PhD - a leading expert in Long QT Syndrome from @mayoclinic for answering my question. I kno
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FAQ of the Month: Can LQTS skip generations? While it may look like Long QT Syndrome (LQTS) skips generations in some families, it actually doesn’t. Not every person with LQTS has symptoms (fainting
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What role does your heart story play in advancing inherited arrhythmia research? More than you might think! Join us Tuesday, April 14 for a webinar with Dr. Andrew Landstrom (Children's Hospital of P
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We’re sharing your experience with the FDA, researchers, biopharma companies, healthcare providers, product developers, and federal regulatory partners so they can better understand what it’s like to
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Got questions about your heart? Dr. Michael Ackerman has answers. Drop in Tuesday and ask away. 📋 What: A live Q&A with Dr. Michael Ackerman, Mayo Clinic - your questions about inherited arrhythmia
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Patients and families don't just benefit from rare disease research – they drive it. 🔬 Did you know that natural history studies are critical to the discovery of new therapies in rare diseases? Join
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Your voice belongs in the room. We brought it to #ACCSessions2025. 💙 SADS CEO, Walker Frahm, and our Director of Family Support and Research, Genevie Echols, attended the American College of Cardiol
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About @sadsfoundation

SADS Foundation is a Instagram nano influencer in the Nonprofit organization category. With 4K followers and 1867 posts, sadsfoundation's account shows a follower-to-following ratio of 17.7:1. View all content anonymously on Pictame - no login required.

sadsfoundation's engagement rate sits at 0.72%. For accounts with 1K-10K followers, the average is around 5%, so there's some room to grow — though every community is unique.

Out of the last 12 posts, 17% are videos and 83% are photos. Content shows up about every 31 days. Captions lean detailed, averaging 543 characters.

0.72% engagement rate — room to grow compared to average for 1K-10K follower accounts.
Posts about every 31 days.
17.7:1 follower-to-following ratio.

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sadsfoundation
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@sadsfoundation

SADS Foundation

PublicNonprofit organization
Posts
1.9K
Followers
4K
Top Hashtags
#LQTS#CPVT#ARVC#Brugada#ARVD#ICD#ShortQT#WolffParkinsonWhite

Explore the most impactful hashtags used in recent posts. These tags highlight the core interests and trending topics that define this profile's digital influence and content strategy.

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Popular Hashtags

#life#amazing#instagram#lifestyle#gym#motivation#sunset#dog#model#makeup#beach#sky
Following
226
Avg. Likes
27
Avg. Comments
2
Engagement
0.72%

Our mission: to prevent life-threatening arrhythmias so families with genetic heart conditions can live fully and thrive...

lnk.bio/SADSfoundation
#party
#cool
#igers