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#Helpcurehd Reel by @therealkiansadeghi - I recently shared a partnership with @allie.laforce and @helpcurehd to help end Huntington's in the next generation. Huntington's still doesn't have
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@therealkiansadeghi
I recently shared a partnership with @allie.laforce and @helpcurehd to help end Huntington’s in the next generation. Huntington’s still doesn’t have a cure. A lot of genetic diseases don’t. But many are preventable with advanced IVF/genetic screening. Genetics is the best preventable medicine tool we have. If you’re working to expand IVF access and prevent genetic disease, reach out. https://mynucleus.com/cares
#Helpcurehd Reel by @therealkiansadeghi - Excited to announce our partnership with HelpCureHd, an organization committed to stopping Huntington's from being passed on. Huntington's is a fata
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@therealkiansadeghi
Excited to announce our partnership with HelpCureHd, an organization committed to stopping Huntington’s from being passed on. Huntington’s is a fatal, early-onset disease. If it runs in your family, every child has a 50% chance of inheriting it. That’s a heavy thing to carry when you want kids, and not everyone has access to the advanced genetic tools to stop it. A couple is now going through IVF+ with Nucleus, to help ensure that’s not a reality for them. We’re grateful to be fully supporting their journey. Here’s to stopping Huntington’s — one healthy baby at a time! https://mynucleus.com/cares
#Helpcurehd Reel by @hdsanational - HDSA offers support for everyone impacted by Huntington's disease, including individuals living with HD, caregivers, and people at risk. If you're lo
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@hdsanational
HDSA offers support for everyone impacted by Huntington’s disease, including individuals living with HD, caregivers, and people at risk. If you're looking for a support group, or you're looking for more information about a support group in your area, visit the link in our bio. #LetsTalkAboutHD #HuntingtonsDisease #HDFamily #FamilyIsEverything
#Helpcurehd Reel by @hdauk - 🧬 Everyone's #HuntingtonsDisease story is different Charlotte talks in this video about how she always knew her Nan was a little different to other
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@hdauk
🧬 Everyone's #HuntingtonsDisease story is different Charlotte talks in this video about how she always knew her Nan was a little different to others and how she grew up with Huntington’s in her family
#Helpcurehd Reel by @sarniaandareahsc - 💙💜 Happy Family Day! 💜💙 Families come in many forms - biological, chosen, big, small, near, far. What matters most is love, strength, and support
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@sarniaandareahsc
💙💜 Happy Family Day! 💜💙 Families come in many forms — biological, chosen, big, small, near, far. What matters most is love, strength, and support. If Huntington’s Disease is part of your story, please know this: you are not alone. No matter what your family looks like, we are here to walk beside you with compassion, community, and togetherness every step of the way. Together, we continue to show that even in the face of HD, families are resilient, love is powerful, and hope is stronger than ever. 💜 With love, The Sarnia Huntington’s Disease Chapter #FamilyDay #HDSupport #StrongerTogether #huntingtonsdisease
#Helpcurehd Reel by @thechronicallyilldiaries - Hey guys! Today I took and sent off my long overdue genetic testing kit to the lab! My mom found out she had lynch syndrome a little over ten years ag
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@thechronicallyilldiaries
Hey guys! Today I took and sent off my long overdue genetic testing kit to the lab! My mom found out she had lynch syndrome a little over ten years ago and my sister and I are now in the process of testing! Luckily sister is in the clear, which means it’s my turn! Let’s hope and pray for a negative test! But whatever happens, happens! Love y’all!💛💛 Ps. Sorry I said “um” so may times, it’s been a minute since I recorded myself lol
#Helpcurehd Reel by @gayathri_gsk - I hope you find the perfect stem cell match for your son soon. Prayers & healing vibes. #resharedfromtiktok #credittocontentcreator #stemcell #donor
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@gayathri_gsk
I hope you find the perfect stem cell match for your son soon. Prayers & healing vibes. #resharedfromtiktok #credittocontentcreator #stemcell #donorneeded #savealifetoday Please DM for removal of content as no copyright infringement is intended.
#Helpcurehd Reel by @dr_ff26 - Huntington's chorea (more commonly called Huntington's disease) is not just a movement disorder - it's a progressive neurodegenerative condition that
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@dr_ff26
Huntington’s chorea (more commonly called Huntington’s disease) is not just a movement disorder — it’s a progressive neurodegenerative condition that affects the body, mind, and behavior. Caused by an autosomal dominant mutation in the HTT gene on chromosome 4, this condition reminds us how a single gene expansion can profoundly change a person’s life. The hallmark feature is chorea — those involuntary, dance-like, jerky movements that seem almost purposeful but are completely beyond voluntary control. Early on, these movements may look like restlessness or fidgeting. Over time, they become more pronounced and disabling, affecting gait, speech, and daily activities. But Huntington’s is much deeper than movement alone. Patients often experience: 🔹 Progressive cognitive decline leading to dementia 🔹 Psychiatric symptoms like depression, irritability, and mood swings 🔹 Personality changes that may appear years before motor signs 🔹 Difficulty with swallowing and speech in later stages The disease typically presents between 30–50 years, but juvenile forms can occur. Because it follows an autosomal dominant inheritance, each child of an affected parent carries a 50% risk — making genetic counseling absolutely crucial. 🧬 Pathophysiology in a nutshell: CAG trinucleotide repeat expansion → mutant huntingtin protein → neuronal loss (especially in caudate nucleus and putamen) → motor + cognitive + psychiatric symptoms. 📉 Unfortunately, there is no cure yet, but symptomatic treatments (like tetrabenazine and supportive therapies) can significantly improve quality of life. Early diagnosis, multidisciplinary care, and family support make a powerful difference. ✨ Medicine teaches us many diseases — but Huntington’s teaches us compassion, genetics, and the importance of holistic care. — #HuntingtonsDisease #HuntingtonsChorea #NeuroDegenerative #MovementDisorder
#Helpcurehd Reel by @thechronicallyilldiaries - Happy Friday! (Even though in the video I said Wednesday🤭) Reguarding my last reel, I got my results and I tested negative for lynch syndrome!! I ha
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@thechronicallyilldiaries
Happy Friday! (Even though in the video I said Wednesday🤭) Reguarding my last reel, I got my results and I tested negative for lynch syndrome!! I have spent the last 12 years believing I had a gene mutation that would ultimately give me cancer.. but I DONT!!! I am so happy, excited, shocked I feel like I need to get retested just to make sure, but I have faith in my doctors!🙏 Thanks to everyone who has reached out!💗
#Helpcurehd Reel by @smartnurse_study13 - Huntington's disease is a rare genetic brain disorder that gradually affects movement, memory, and behavior. It is caused by an inherited gene mutati
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@smartnurse_study13
Huntington's disease is a rare genetic brain disorder that gradually affects movement, memory, and behavior. It is caused by an inherited gene mutation and usually appears in adulthood. Early awareness helps in recognizing symptoms and understanding this neurological condition. Follow @smartnurse_study13 for more nursing and medical education content. #HuntingtonsDisease #NeurologicalDisorders #RareDiseaseAwareness #NursingStudents #MedicalEducation
#Helpcurehd Reel by @shelbcannon - Come along with us as we begin Benny's stem cell journey with Dr. Proevock at Total Wellness Center. At just 5 months old, our son suffered a hypoxic
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@shelbcannon
Come along with us as we begin Benny’s stem cell journey with Dr. Proevock at Total Wellness Center. At just 5 months old, our son suffered a hypoxic brain injury, and we are praying this treatment gives him another chance at healing and progress. 💛 The doctor harvested over 300 million stem cells for Benny. He placed 90% through his spine and 10% intranasally — and here’s why: ✔️ Spinal (90%) This puts stem cells directly into the fluid around the brain and spine, allowing the largest amount to reach the injured areas quickly and efficiently. ✔️ Intranasal (10%) This uses a pathway through the nose that leads straight to the brain, helping cells target areas the spinal route might not reach as easily. Together, both methods give the cells the best chance to reach Benny’s brain from two directions and support healing. #beelieveinbenny #stemcelltherapy #surprisearizona
#Helpcurehd Reel by @dr.daronmathenalac (verified account) - On November 24, 2025 Grey had his first Stem Cell procedure at Total Wellness in Surprise, AZ! This procedure was fascinating to learn about. This ha
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@dr.daronmathenalac
On November 24, 2025 Grey had his first Stem Cell procedure at Total Wellness in Surprise, AZ! This procedure was fascinating to learn about. This has opened so many opportunities for Grey outside of my scope. #nearfataldrowning #healing #braininjury #gatheringgrey #stemcell

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