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(12)
#Mogad Reel by @wearesrna - This #MOGADAwarenessMonth, share your story like Caitlin! By spreading awareness, you help educate, advocate, and empower those in the rare neuroimmun
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@wearesrna
This #MOGADAwarenessMonth, share your story like Caitlin! By spreading awareness, you help educate, advocate, and empower those in the rare neuroimmune disorders community. Record a video, write for our blog, speak at an event, and more. Get involved today through the link in our bio.
#Mogad Reel by @thegeminispoonie - Repeat after me: Disability is dynamic. Disability doesn't define me. Image description: Chronic illness looks like this. But it also looks like thi
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@thegeminispoonie
Repeat after me: Disability is dynamic. Disability doesn’t define me. Image description: Chronic illness looks like this. But it also looks like this. Being chronically ill is hard enough. Don’t let it define you. Keep living that beautiful life of yours. (Various images and videos of Lexi in different states of Disability appear on screen) #disabledandproud #disabledpeoplearehot #spoonielife #spooniesupport #longcovid #pots #dysautonomia #mogad #nmosd #raredisease #invisibleillness
#Mogad Reel by @andrea.husseini - Part 2 of what is MOGAD #awareness #mogad #mog #mogantibodies #chronic #neurodegenerative #autoimmune #myhealth #mystory #learningstuff #antibodies #m
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@andrea.husseini
Part 2 of what is MOGAD #awareness #mogad #mog #mogantibodies #chronic #neurodegenerative #autoimmune #myhealth #mystory #learningstuff #antibodies #mydisease #part2
#Mogad Reel by @melzanata - MOGAD é uma doença rara que afeta o sistema nervoso central. Mesmo invisível para muitos, a luta é real e diária. 💪🧠 💖🌸Vamos juntos aumentar a con
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@melzanata
MOGAD é uma doença rara que afeta o sistema nervoso central. Mesmo invisível para muitos, a luta é real e diária. 💪🧠 💖🌸Vamos juntos aumentar a conscientização! ⚠️🤝 #MOGAD #DoençaRara #Autoimune #LutaSilenciosa #Conscientização #Força #Esperança #SaúdeNeurológica #JuntosSomosMaisFortes #Compartilhe #neuropediatra #neurologista #mogadbrasil #themogproject #brasil #unitedstatesofamerica
#Mogad Reel by @themogproject - What does MOGAD Awareness Month mean to us? For us it means helping patients connect to experts for better disease management - one patient at a time!
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@themogproject
What does MOGAD Awareness Month mean to us? For us it means helping patients connect to experts for better disease management - one patient at a time! Another win for a MOGAD patient in need courtesy of Dr. Michael Levy and his expertise based on years of research in this rare neuroimmune condition. Tears flowed and hope was renewed. Thank you to the Campbells for allowing us to share these vulnerable moments and bring hope to all. 💗🙏🏻🌺 #MOGADAwarenessMonth #MOGAD #MOGADSupport #ExpertConnections #RareDisease #rare
#Mogad Reel by @doctor.gretchen (verified account) - Let's call it as it is… MS fatigue is NOT the same 🙅🏼‍♀️ as "regular" fatigue that people without MS feel. Similarly ☝🏼, MS symptoms like fatigue,
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@doctor.gretchen
Let’s call it as it is… MS fatigue is NOT the same 🙅🏼‍♀️ as “regular” fatigue that people without MS feel. Similarly ☝🏼, MS symptoms like fatigue, depression, and anxiety can be caused from external forces (ie. stress, heat intolerance 🥵, isolation, poor sleep), but they can also be CAUSED FROM MS!! This means that you’re NOT doing anything wrong or managing your MS poorly… it’s simply the disease process of MS that’s causing you to feel fatigued (this is called “primary fatigue” 🥱), depressed, and anxious. 👉🏼 Symptoms caused FROM MS are called “primary symptoms” 👉🏼 Symptoms caused from external sources are called “secondary symptoms” 👉🏼 Primary & secondary symptoms are TREATED DIFFERENTLY!! If you’re experiencing fatigue, depression, or anxiety for “no reason” — meaning you can’t think of anything you did or anything that happened to cause you to feel fatigue, depressed, or anxious — 👩🏼‍⚕️ then talk to your doctor/neurologist about best MS management strategies. You’re not alone. You’ve got this 👊🏻. Comment below ⬇️ to let me know if you have: A. Primary progressive B. Secondary progressive C. Relapsing D. I don’t know E. I have another condition For more helpful tips & exercises for MS, you can now purchase my book on Amazon! Head to my bio & click the link!! #multiplesclerosis #msawareness #thisisms #fatigue #mssymptoms #mswarrior #mogad #nmosd #transversemyelitis #tmwarrior #chronicfatigue
#Mogad Reel by @chronicloveclub (verified account) - Have you ever heard of MOGAD (Myelin Oligodendrocyte Glycoprotein Antibody Disease)? Neither had we! It's a relatively newly discovered disease and to
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@chronicloveclub
Have you ever heard of MOGAD (Myelin Oligodendrocyte Glycoprotein Antibody Disease)? Neither had we! It’s a relatively newly discovered disease and today, during MOGAD Awareness Month, we’re lucky to have Caitlin (who lives with MOGAD) here with us to tell us all about it. Drop Caitlin some love for taking her time to spread awareness! 💛 You can follow Caitlin’s journey at @caitlinjoburke 🫶 . . . . . . #chronicloveclub #chronicillness #mogad #Myelinoligodendrocyteglycoproteinantibodydisease #mogadawarenessmonth #chronicfatigue #ms #transversemyelitis #myelitis #autoimmunedisease #autoimmunediseaseawareness #autoimmunediseasewarrior #chronicillnessawareness #chronicillnesssupport #chronicillnesscommunity #chronicillnesswarrior #invisibleillness #raredisease #rarediseaseawareness #invisibleillnessawareness #spoonie #spooniesupport #chronicillnesslife #chronicallyill #disabilityawareness #invisibledisability
#Mogad Reel by @thejohnhongkim (verified account) - A friend of mine went through a nightmare with his daughter that I'll never forget. She started with blurry vision and eye pain. The first doctor sai
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@thejohnhongkim
A friend of mine went through a nightmare with his daughter that I’ll never forget. She started with blurry vision and eye pain. The first doctor said it was probably just a virus. When it didn’t get better, they went back again, brushed off. By the third visit, her vision had faded even more, she was not herself, and she was stumbling when she walked. That’s when someone finally listened. The diagnosis? MOG antibody disease (MOGAD). MOGAD is a rare autoimmune condition where the body produces antibodies that attack myelin oligodendrocyte glycoprotein (MOG) — a protein that helps protect the brain, optic nerves, and spinal cord. The result: sudden vision loss, weakness, or neurological symptoms that can look like other conditions. 🧪 How it’s diagnosed: • Blood test for MOG antibodies (cell-based assay) • MRI to look for inflammation or demyelination • Sometimes lumbar puncture to rule out other causes 💊 Treatment: • High-dose steroids, IVIG, or plasma exchange for acute attacks • Long-term immunotherapy (like rituximab or mycophenolate) if relapses occur • Ongoing monitoring by a neurologist or neuro-immunologist Her story is a reminder: if symptoms don’t add up, keep pushing for answers. Sometimes what looks “minor” is anything but. Awareness matters. MOGAD is rare, but catching it early can change everything. #mogad #medicalconditions #medicalemergency #nurse #nursepractitioner #fyp #reels
#Mogad Reel by @bottlebee - Today marks one year since I was suddenly paralysed. I was diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD) and have had 3
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@bottlebee
Today marks one year since I was suddenly paralysed. I was diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD) and have had 3 relapses in the past 12 months so I thought today’s ’anniversary’ would be an apt day to post about it again. I want to raise awareness of MOGAD so please do spread the word just to make people aware of a rare disease like mine. This will probably be my last post about this as I want to concentrate on getting back to making jewellery and being creative. Please do share this or tag anyone going through something similar, so they know they are not alone. . . . #mogad #myelinoligodendrocyteglycoproteinantibodydisease #nmosd #lifeisforliving #bottlebee
#Mogad Reel by @midwesttruckerwife - I got diagnosed with MOGAD (a rare autoimmune disease) basically my body is attacking my brain. This is my follow up MRI to see if everything is okay
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@midwesttruckerwife
I got diagnosed with MOGAD (a rare autoimmune disease) basically my body is attacking my brain. This is my follow up MRI to see if everything is okay because I thought I had another relapse. Will be documenting my journey through this auto immune disease and if anyone has any insights into MOGAD please leave a comment or dm me:)! Would love to chat. - #mogad #autoimmunedisease #mri
#Mogad Reel by @mountsinainyc (verified account) - Did you know that 3-10% of multiple sclerosis (MS) patients develop symptoms before age 18? Almost all children with MS have the relapsing-remitting f
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@mountsinainyc
Did you know that 3-10% of multiple sclerosis (MS) patients develop symptoms before age 18? Almost all children with MS have the relapsing-remitting form, where periods of symptoms alternate with recovery. If untreated, MS can lead to disability over time. Led by Dr. Rachel Zolno, the pediatric MS program at Mount Sinai takes a collaborative, multidisciplinary approach, combining neurology, neuropsychology, and education for personalized care. Pediatric MS differs from adult MS, causing more frequent relapses and affecting cognitive development, so the team works closely with families and schools to provide tailored support. This holistic approach helps children manage MS and thrive in daily life. #WeFindAWay #multiplesclerosis #pediatricms #MOGAD #NMOSD #neurology
#Mogad Reel by @theblindcook (verified account) - Join me, my neurologist Dr. Benjamin Greenberg and @sumairaflower on April 1 for a special conversation about #NMOSD, the rare disease that caused my
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@theblindcook
Join me, my neurologist Dr. Benjamin Greenberg and @sumairaflower on April 1 for a special conversation about #NMOSD, the rare disease that caused my vision loss. We’ll be speaking during @thesumairafoundation ‘s Patient Day for NMOSD & MOGAD about my journey and the importance of self-advocacy. Find the event details at the link in my bio.

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