#Criduchatsyndrome

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#Criduchatsyndrome Reel by @disabilityparenting (verified account) - 💎 I'm rare, and my life is a miracle. I live to simplify bring others joy and make them smile. I'm thankful for each day I have on this earth and pla
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@disabilityparenting
💎 I'm rare, and my life is a miracle. I live to simplify bring others joy and make them smile. I'm thankful for each day I have on this earth and plan to enjoy each breath I take. Celebrating Cri du Chat Syndrome Awareness Week! . . . #raredisease #joy #joyful #celebratelife #raresyndromeawareness #raresyndrome #5pminus #5pminussyndrome #criduchatsyndrome #criduchat #criduchatawareness #5pminusawareness #beautifullymade #wonderfullymade #inspiring
#Criduchatsyndrome Reel by @fefe_criduchat - Nesses dois últimos dias encontramos 2x a Alicia @nani.nunes.391, que tem a mesma síndrome Fefe - cri du chat - e tem a mesma idade. Chega impression
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@fefe_criduchat
Nesses dois últimos dias encontramos 2x a Alicia @nani.nunes.391, que tem a mesma síndrome Fefe - cri du chat - e tem a mesma idade. Chega impressionar como são parecidos fisicamente e também o jeito de cutucar para chamar a nossa atenção (vejam ambos segurando meu punho 😂), as manias, a paixão por água, a voz mais aguda, os hiperfocos… o hiperfoco dela é homem aranha. Quem nem disse o Caio, ela é a versão feminina do Fefe 🤗 Brincamos com ela falando que Fefe era o namorado dela e vi que ela fez cara de choro e a mãe me explicou que era porque quem é o namorado dela é o Homem Aranha !!! Caio quis rever a Alicia e deu sua prancha para ela ❤️ que ela pegue muitas ondas deliciosas nas praias de Floripa ao longo do ano! @nani.nunes.391 obrigada por emprestar a Alicia um pouquinho e parabéns por levar a vida leve com ela, levando-a para todos os lugares com vc. Lindo de ver. 💕 #criduchat #criduchatsyndrome #criduchatbrasil
#Criduchatsyndrome Reel by @iamdawnmccoy (verified account) - Happy Birthday Week, Christi Jo! 🎂🎂 Waylon & I got to know Christi Jo & her amazing mama @b___day through our therapies at the same treatment center
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@iamdawnmccoy
Happy Birthday Week, Christi Jo! 🎂🎂 Waylon & I got to know Christi Jo & her amazing mama @b___day through our therapies at the same treatment center and then we got to connect on a personal level at @holtonsheroes HEROween - and then again at @lovingwayfoundation HALLOway. It was at HEROween where Christi Jo’s mama captured this sweet moment between Christi Jo & I. It broke my heart wide open then and brings tears to my eyes even today. It takes SO much energy, effort and focus for our kiddos to control their motor movements - so when Christi Jo reached up to touch my face? Well…I knew that meant that we were friends.🥰 Please join me in wishing Christi Jo a happy birthday and let’s send some extra love her way by commenting below.🩷🎂🎂🎂 #HoltonsHeroes #LovingWayFoundation
#Criduchatsyndrome Reel by @eddiemambo - Mickey missing his mama Mari . He wanted to make a video for her . #mickey #criduchat #criduchatsyndrome #criduchatawareness
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@eddiemambo
Mickey missing his mama Mari . He wanted to make a video for her . #mickey #criduchat #criduchatsyndrome #criduchatawareness
#Criduchatsyndrome Reel by @scifitfresno - Corban (Cri du chat syndrome) one of our newest clients of the SCI-FIT Fresno family. Corban brings an infectious high energy to each session, demonst
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@scifitfresno
Corban (Cri du chat syndrome) one of our newest clients of the SCI-FIT Fresno family. Corban brings an infectious high energy to each session, demonstrating a genuine commitment to progressing on his recovery journey. It's truly an honor for us to play a part in his journey towards recovery. Corban's positive spirit shines through in everything he does whether it's his love for whistling, his cow moo toy, or creating memories of all the adventures with his family. His presence consistently radiates a bright light that uplifts everyone around him. In the video, we are focusing on a crucial aspect of Corban's development, side stepping. To address this, we've incorporated the xcite system @rticonnect (FES) side step program. This strategic approach aims to activate muscles and retrain them to fire effectively during the movement, aligning with Corban's personalized goals. Corban, we are thrilled to have you as part of our family, and we look forward to witnessing and supporting your ongoing progress. Welcome to the SCI-FIT Fresno family! . . . #criduchatsyndrome #criduchatawareness #intensivetherapyprogram #exercisebasedtherapy #scifitfresno #fresno #clovis #kidstherapy #love #vibration #elevate #nevergiveup #neuro #neuroplasticity #neurorecovery #mindbodyconnection #mindbodyspirit #kidsrecovery
#Criduchatsyndrome Reel by @neaaisabel - I love this little boy so much🥺 with a lump in my throat I ask that you talk to your little ones about being kind & playing with kiddos like my littl
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@neaaisabel
I love this little boy so much🥺 with a lump in my throat I ask that you talk to your little ones about being kind & playing with kiddos like my little guy. He just wants to play too🥺 (great now I’m crying lol 😭) I know I have to be brave and let him live his own experience but it’s so hard for my momma heart to not be there to protect him. Échale ganas mi Teo ❤️ #kindergarten #criduchatsyndrome #kindness #mateomaximiliano
#Criduchatsyndrome Reel by @etoxictealounge - I think she talking about ppl saying they think he has the #criduchatsyndrome my next post will be about that..:#chriseanrock #blueface #viralpost #ex
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ET
@etoxictealounge
I think she talking about ppl saying they think he has the #criduchatsyndrome my next post will be about that..:#chriseanrock #blueface #viralpost #explorepage #share
#Criduchatsyndrome Reel by @larobarbieriok - Te amo Zoe, gracias Dios por dejarme ver tu milagro día a día! Gracias @silvana_santillan1 @juanca_zozo por dejarme ser parte de su vida 🥹💕 #criduc
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@larobarbieriok
Te amo Zoe, gracias Dios por dejarme ver tu milagro día a día! Gracias @silvana_santillan1 @juanca_zozo por dejarme ser parte de su vida 🥹💕 #criduchat #criduchatsyndrome #sindromecriduchat
#Criduchatsyndrome Reel by @sarajerm - #CriDuChat #CriDuChatSyndrome #RareDiseaseAwareness #RareDiseaseWarrior #SpecialNeedsAdvocate
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@sarajerm
#CriDuChat #CriDuChatSyndrome #RareDiseaseAwareness #RareDiseaseWarrior #SpecialNeedsAdvocate
#Criduchatsyndrome Reel by @antysk_ - Диагноз - не повод не быть балериной. Не важно что записано в твоей медкарточке, важно куда ты стремишься. #особенныйребенок #реабилитациядетей #инклю
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@antysk_
Диагноз - не повод не быть балериной. Не важно что записано в твоей медкарточке, важно куда ты стремишься. #особенныйребенок #реабилитациядетей #инклюзия #здоровье #принятие #ангелырядом #criduchatsyndrome #criduchat #rehab
#Criduchatsyndrome Reel by @wynandawibowo - Kirana berusaha meraih benda yang diletakkan di atas lemari, yaituuuu sapu lidi 😂 Hasilnya? Dia jadi berusaha berdiri dengan pegangan pinggiran lem
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@wynandawibowo
Kirana berusaha meraih benda yang diletakkan di atas lemari, yaituuuu sapu lidi 😂 Hasilnya? Dia jadi berusaha berdiri dengan pegangan pinggiran lemari 😆 Ini sebenarnya ada 2 sesi Kirana berdiri, lihat perbedaan cara berdirinya. 1 dia berdiri dengan menapakkan salah 1 kaki terlebih dahulu, sementara 1 lagi dia langsung berdiri dengan 2 kaki 😅 Namun, menurutku yang terpenting yah dia berusaha untuk berdiri dan ini juga salah 1 bentuk latihan yang bisa Kirana lakukan di rumah. Bonusnya bisa lihat Kirana senyum setelah berusaha, walau gagal meraih sapu lidinya, dia bahkan terus berusaha lagi dan lagi, meski gagal lagi dan lagi 😁 Kalau kita, apakah bisa langsung senyum saat gagal meraih keinginan yang kita usahakan dengan sepenuh hati? #anakberkebutuhankhusus #anakistimewa #criduchatsyndrome #raredisease #rarediseasewarrior #belajarberdiri #pejuangkecil
#Criduchatsyndrome Reel by @mayashopefoundation - Cri du Chat. Do you know this phrase? It's French for "Cat's cry." In Ukraine, 10-year-old Nastia has a condition that affects just 1 in 50,000 chil
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MA
@mayashopefoundation
Cri du Chat. Do you know this phrase? It's French for "Cat's cry." In Ukraine, 10-year-old Nastia has a condition that affects just 1 in 50,000 children. It is called Cri du Chat Syndrome. This is a French term that means "cat-cry", referring to the cat-like cry of affected children. But it's not the only symptom of this syndrome. Nastia's growth is hindered due to feeding problems, and difficulties in swallowing and sucking. She struggles with speech, and her cognitive and motor abilities are severely impacted. Nastia is one of 22 children with this condition in the entire Ukraine. Nastia's mother is the sole provider for her and her brother. Because of her daughter's condition, her mom can't leave her side. She relies only on government assistance. To ensure Nastia's well-being, she requires a specialized and costly nutrition plan. With your contribution to the Maya's Hope Ukraine Fund, we were able to provide Nastia with a supply of specialized formula. "I am eternally grateful for your help," her mom wrote us. You help children like Nastia find hope, comfort, and the resources they need to thrive. From the bottom of our hearts, thank you. www.mayashope.org #mayashope #mayashopefoundation #everychildhasvalue #childreninukraine #criduchatsyndrome

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