#Curecf

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#Curecf Reel by @lizandmaddyk (verified account) - Well unfortunately she needed to come in for her oxygen and help with the major major mucus she has in her lungs. Her chest hurts really bad when she
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@lizandmaddyk
Well unfortunately she needed to come in for her oxygen and help with the major major mucus she has in her lungs. Her chest hurts really bad when she breathes. Her attitude is just so amazing though. And she’s got so many compliments on her makeup :) that makes her so happy because look at her lashes!!!! They are real and people can’t believe it. She wears fake ones for competition but she really doesn’t need the fake ones at all. My Beautiful Amazing Girl. Please send her some love because I’m usually not nervous just get some oxygen a few days and get out…. But the mucus this time is brutal, I’m hoping her X-ray shows she’s ok and nothing alarming. 💜 #cysticfibrosisawareness . . . #cfblows #curecf #curecysticfibrosis #maddysmissionforacure #fucf #sandiego #radyschildrenshospital #reels #reelove #maddyneedsacurenow #cure #curenow
#Curecf Reel by @lizandmaddyk (verified account) - No stopping her! Her last clinic her lung function was in the 50's now she's on a new plan that they think will finally help her get back some lung fu
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@lizandmaddyk
No stopping her! Her last clinic her lung function was in the 50’s now she’s on a new plan that they think will finally help her get back some lung function and relief from her cough! Let’s hope the new meds help her and give her a summer to remember ☮️ #curecf . . . . #forreels #reel #instareel #reellove #cysticfibrosis #cfwarrior #curecysticfibrosis #cfawareness #cftreatments #mucomyst #englikeig #ibtribelikes #fyp #reelsvideo #reels #losangeles #temecula #sandiego
#Curecf Reel by @tiffrich22 - The Surgery 🫁👩🏼‍⚕️🧑🏽‍⚕️👨🏽‍⚕️ || Transplant is a MAJOR surgery...Take a minute to wrap your head around someone taking out a couple of your orga
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@tiffrich22
The Surgery 🫁👩🏼‍⚕️🧑🏽‍⚕️👨🏽‍⚕️ || Transplant is a MAJOR surgery...Take a minute to wrap your head around someone taking out a couple of your organs and replacing them with new ones!! I always call my double lung transplant as exchanging my engine 👩🏼‍🔧 — For the surgery, I was admitted into the hospital🏥 upon arrival. I did testing like an X-ray, an EKG, and tons and tons of blood work💉. Once I had done all that it was, once more, a waiting game⏰. My family, friends, and I had a party🎉 in my room to celebrate getting the call after almost 2 years and 8 months of waiting. We waited over 30 hours for me to go into the OR (video above) It was emotional, exciting, and nerve wrecking. Last thing I remember is laying on the procedure table in the OR & a guy on the phone came over saying “OKAY ITS A GO!!” After that, I was put to sleep 😴 — After 7 and a half hours, I was out of the OR, into the ICU with my selfless donors’ lungs! It was a rough recovery but I did it 🙋🏼‍♀️🙋🏼‍♀️ There are two different incisions. Depending on the surgeon, they will do a sternotomy (straight down the sternum), or clam shell (along the breast line). I had a sternotomy! — I’m so blessed to be alive thanks to @stanfordhealthcare & my donor! 🫁💜 — To become a donor, register at your local DMV, or take a couple minutes online at donatelife.net ♻️ — • • • #TiffGotLungs #lungs4tiff #cysticfibrosis #cfawareness #curecf #doublelungtransplant #cfirl #brave #cyster #fibro #love #laugh #hope #donatelife #organdonation #dream #donor #recycleyourself #taylorswift #thankful #justbreathe #spoonie #chronicloveclub #organdonationawareness #stanford #donatelifemonth #surgery #lungtransplantsurgery #transplantsurgery
#Curecf Reel by @frankie.gene (verified account) - When our daughter was diagnosed with Cystic Fibrosis one of the best pieces of advice was to always make treatment time fun and to do it go together a
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@frankie.gene
When our daughter was diagnosed with Cystic Fibrosis one of the best pieces of advice was to always make treatment time fun and to do it go together as a family so she’s never alone or secluded 🥹🫶🏼 Treatments always happen downstairs in our living room and she gets to pick an activity or a movie we do together while she does it. All in all, lately it’s been taking anywhere from 45-60 minutes after school to get it all done 🫶🏼 Hate when she’s not feeling 100% but love the extra family time together in the same room. #cysticfibrosis #curecf #raleighmom #raleighnc #raleighinfluencers
#Curecf Reel by @farwell_wr - Our #Farwell4Hire 50/50 jackpot is more than $60,000!! That means $30,000+ for you, and $30,000+ for cystic fibrosis research. Plus, if you buy before
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@farwell_wr
Our #Farwell4Hire 50/50 jackpot is more than $60,000!! That means $30,000+ for you, and $30,000+ for cystic fibrosis research. Plus, if you buy before Friday, May 16th at 11 AM, you're eligible for our Early Bird prize of a Kitchener Rangers VIP Experience. Get your tickets at www.cf5050.ca. Ontario residents only. #curecf
#Curecf Reel by @honeycomb.and.ginger - The moments no one else sees. When people say "I don't know how you do it" yet have no idea what "it" really entails. The relentless routines of trea
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@honeycomb.and.ginger
The moments no one else sees. When people say “I don’t know how you do it” yet have no idea what “it” really entails. The relentless routines of treatments, the days spent navigating the intricacies of our children’s condition, the sacrifices we all make. Like missing out on social events, sick plan and medications for days on end, being the biggest advocate and coach for our child we can be (even when we feel like crumbling ourselves). It’s hard, and it’s okay to feel overwhelmed at times, to feel like no one quite grasps the weight of what we go through. I’ve been there, hell I am there right now. But I want you to know that you’re not alone. We may be on different paths, but our journeys are so similar. Even when it feels like the world doesn’t quite see what we do, please remember, we do. You are not alone. Follow for more medical motherhood encouragement. Medical mom / medical motherhood journey / cystic fibrosis / authentic motherhood / medical mom tips / medical journey / silent struggles / advocate like a mother / strength in numbers
#Curecf Reel by @cysticfibrosissocietyy - A super short version of how it all started for us….our journey in becoming a medical mom. It is never something I thought would happen to us. It's
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@cysticfibrosissocietyy
A super short version of how it all started for us….our journey in becoming a medical mom. It is never something I thought would happen to us. It’s been the hardest experience of my life. But it’s 1000% worth it ❤️❤️❤️ . . . #cysticfibrosis #cf #weneedacure #cfwarrior #curecf #cfirl #cffighter #cysticfibrosisfighter #lungdisease #lungs #cysticfibrosisawareness #cfawareness #cfmama #cfmom #medicalmama #medicalmom #specialneedsmom cre: @honeycomb.and.ginger
#Curecf Reel by @ghostwriter_airshows - Purple Smoke 💨 @flight4cf @beverlyairshow2024 September '24 #flight4cf #cysticfibrosis #cysticfibrosisawareness #curecf #Aviation #AvGeek #Pilot
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@ghostwriter_airshows
Purple Smoke 💨 @flight4cf @beverlyairshow2024 September ‘24 #flight4cf #cysticfibrosis #cysticfibrosisawareness #curecf #Aviation #AvGeek #PilotLife #AviationEnthusiast #airshow #ghostwriterairshows #kyskywriter #gwamerch #goseetheworld
#Curecf Reel by @shawnifronk - Surgery day. . According to Jack "today really is the luckiest". . Oh the things I learn from him on the daily. . #curecf #cysticfibrosis #surgery
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@shawnifronk
Surgery day. . According to Jack “today really is the luckiest”. . Oh the things I learn from him on the daily. . #curecf #cysticfibrosis #surgery
#Curecf Reel by @denkadventurelife - Thank you @prethelmets for the article and amazing helmets. No concussion in a gnarly crash at Nationals, just a broken wrist. #cureCF #65roses #pret
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@denkadventurelife
Thank you @prethelmets for the article and amazing helmets. No concussion in a gnarly crash at Nationals, just a broken wrist. #cureCF #65roses #pret #sbx https://prethelmets.com/blogs/news/wyatt-riley-from-nicu-fighters-to-snowboard-cross-champions
#Curecf Reel by @brianawglover (verified account) - As an ambassador family, we show up to STANDOUT each year with one hope: a future where cystic fibrosis has a cure. Together, we honored the STANDOUT
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@brianawglover
As an ambassador family, we show up to STANDOUT each year with one hope: a future where cystic fibrosis has a cure. Together, we honored the STANDOUT Class of 2025 and $113,474 (and still climbing) was raised. That supports research, progress, more birthdays, more childhood and more time. To the honorees, committee, sponsors, and every single person who continues to support families like ours, thank you. Your support touches lives in real ways. If you know someone making an impact in Charlotte, please let me know and let’s get them nominated for the STANDOUT Class of 2026. From our family to yours, thank you. Team Janson 💜 #STANDOUTCharlotte #TeamJanson #CysticFibrosisFoundation #CureCF
#Curecf Reel by @margarete.cassalina (verified account) - Hope on the Green ⛳️ What an unforgettable day at the Cystic Fibrosis Columbus Day Charity Golf Classic! As a CF mom, with one child in heaven and
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@margarete.cassalina
Hope on the Green ⛳️ What an unforgettable day at the Cystic Fibrosis Columbus Day Charity Golf Classic! As a CF mom, with one child in heaven and another fighting the daily uphill battle, today touched my heart in ways words can barely describe. It was a sold-out event—not surprising, because when hearts are engaged, great things happen. We gathered in honor of our loved ones battling Cystic Fibrosis and to support those we’ve lost too soon. Jennifer Blackmon, a fellow CF mama, spoke passionately about her incredible daughter, Dayna, and the unimaginable struggles they have faced. Her words reminded us all of the resilience, strength, and hope that define this community. The weather was a little breezy with a slight drizzle, but nothing could dampen the spirit of the day. The laughter, competition, and shared mission to find a cure carried us through. Thousands of dollars were raised—dollars that bring us closer to making CF stand for “Cure Found.” A special thank you to Dean Marquis, and his entire committee, for their tireless effort in organizing such a wonderful event. Their dedication, along with the hard work of all the volunteers, corporate sponsors, and golfers, made today an absolute success. If you missed it, mark your calendars now for October 2025—our Columbus Day Cystic Fibrosis Golf Event is one you won’t want to miss. Together, we are making a difference. Together, we are giving hope to those with CF. Because at the heart of everything we do, we believe in a future where every person with CF can live a long, healthy life. Thank you to everyone who made today possible—you are helping us get closer to that dream. @cf_foundation #CureCF @cff_gnyc #CFWarriors #untilitsdone @cff_gnyc @marquis2209 #CFFGolfClassic2024 #MakeADifference The Powelton Club @cassalina_e

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