#Systemicsclerosis

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#Systemicsclerosis Reel by @naiaadu - 💞Lo que tú ves: una chica feliz. Lo que yo veo: un brote de Raynaud, una chica con dolor y la piel tirante. A veces, detrás de una sonrisa hay mucho
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@naiaadu
💞Lo que tú ves: una chica feliz. Lo que yo veo: un brote de Raynaud, una chica con dolor y la piel tirante. A veces, detrás de una sonrisa hay mucho más de lo que se ve. Convivo con una enfermedad invisible que a menudo me obliga a esconder el malestar bajo capas de buen humor. Pero eso no significa que no duela. Significa que sigo adelante, incluso cuando cuesta. 💙 #EnfermedadesAutoinmunes #Raynaud #EsclerosisSistémica #Visibilidad #LoQueNoSeVe • 💞What you see: a happy girl. What I see: a Raynaud’s flare-up, a girl in pain, and skin tightness. Sometimes, behind a smile, there’s so much more than what meets the eye. I live with an invisible illness that often makes me hide the discomfort behind layers of good humor. But that doesn’t mean it doesn’t hurt. It means I keep going, even when it’s hard. 💙 #AutoimmuneDisease #Raynauds #SystemicSclerosis #InvisibleIllness #WhatYouDontSee
#Systemicsclerosis Reel by @dr_mattbarrett - 🔥 Memorise LIMITED CUTANEOUS SYSTEMIC SCLEROSIS for your medical exams #medical #mbbs #medico #nurse #doctor #doctorsofinstagram #nursesofinstagram
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DR
@dr_mattbarrett
🔥 Memorise LIMITED CUTANEOUS SYSTEMIC SCLEROSIS for your medical exams #medical #mbbs #medico #nurse #doctor #doctorsofinstagram #nursesofinstagram #medicalstudent #medstudent #usmle #ukmla #physicianassociate #medical #mbbs #medico #nurse #doctor #doctorsofinstagram #nursesofinstagram #medicalstudent #medstudent #usmle #ukmla #physicianassociate
#Systemicsclerosis Reel by @quietheart_emma - About a week ago, I woke up to these words running through my mind. I wasn't coming up with them myself, they were given to me by my Savior, the one
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@quietheart_emma
About a week ago, I woke up to these words running through my mind. I wasn’t coming up with them myself, they were given to me by my Savior, the one who gives me clarity. My Savior, the reason I experience joy every day. My Savior, the author and finisher of my faith (Hebrews 12:2) #savior #jesus #hope #clarity #joy #autoimmunedisease #scleroderma #systemicsclerosis #health #healthchallenge #churchofjesuschrist #lds #thechurchofjesuschristoflatterdaysaints
#Systemicsclerosis Reel by @autoimmuneglow (verified account) - Googling "scleroderma" is terrifying - because it sounds like one diagnosis. It's NOT. Scleroderma is an umbrella term, not a single disease. There
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@autoimmuneglow
Googling “scleroderma” is terrifying — because it sounds like one diagnosis. It’s NOT. Scleroderma is an umbrella term, not a single disease. There are localized forms like morphea or linear scleroderma, which affect the skin and underlying tissue and do not involve internal organs. There are also systemic forms, called systemic sclerosis, which include limited disease (often called CREST) and diffuse disease. These are the forms that can involve internal organs and require closer monitoring. This distinction matters — because prognosis, testing, and treatment look very different depending on which type someone has. As a rheumatologist, I don’t diagnose scleroderma based on one lab. When systemic sclerosis is suspected, I look at: • Symptoms and physical exam (skin thickening, Raynaud’s, joint findings) • Antibody testing such as anti-centromere, Scl-70, RNA polymerase III • Inflammatory markers and baseline labs (CBC, CMP, ESR/CRP) • Lung screening when appropriate (PFTs ± HRCT) • Patterns and changes over time Google often shows worst-case scenarios. Rheumatology looks at the full picture. 👉 Comment “LABS” if you want me to break down the main scleroderma antibodies and what they mean in simple language. *education only. #scleroderma #systemicsclerosis #autoimmunelabs #rheumatology #patienteducation
#Systemicsclerosis Reel by @sclerolu - Before & after my Scleroderma diagnosis 🌻 I'm going to make this a short post because it has been one of the hardest videos to make. On the positi
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@sclerolu
Before & after my Scleroderma diagnosis 🌻 I’m going to make this a short post because it has been one of the hardest videos to make. On the positive side it is good reminder that regardless of my Scleroderma diagnosis my body has been constantly changing. We tend to get attached to our looks forgetting that we are not going to be young forever. We are all going to change as we get older 😜 My transformation is just a little bit different. Systemic Scleroderma is an autoimmune disease that attacks the connecting tissue. Most of your body is made up of connective tissue so that means it can attack 99% of your body. Not everyone has the same progression. Some have more internal issues and others more external. The thing is that change is inevitable so it’s better to accept the reality of your condition than to keep fighting it. I think the saddest part about this post is knowing that the woman before my diagnosis was so insecure about her looks. I wish I could go back and hug her and let her know she was and is still beautiful 💕🌺 & she was stronger than she thought she was. Now I’m here and I’m still trying to get used to my new looks but I’m not angry anymore. I’m thankful and excited to learn this new side of me ☀️ • • • • • • • • • • • #systemicsclerosis #systemicscleroderma #sclerodermiasistemica #sclerodermia #scleroderma #raredisease #beutiful #selflove #loveyourself #chronicillness #chronicpain #jointpain #physicaltherapy #rehabilitation #spoonie #spoonielife #healingjourney #disability #disabled #electricwheelchair #wheelchair #rheumatoid #autoimmune
#Systemicsclerosis Reel by @thedentsinmyarmor - Emma was diagnosed with systemic scleroderma (or systemic sclerosis) when she was 9 years old. It is an autoimmune disease that is attacking every par
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@thedentsinmyarmor
Emma was diagnosed with systemic scleroderma (or systemic sclerosis) when she was 9 years old. It is an autoimmune disease that is attacking every part of her body. In her words ... It isn't something I would have chosen, but I am going to make the best of it. Listen to more of this inspiring conversation everywhere you listen to podcasts.
#Systemicsclerosis Reel by @sassy_scleroderma_warrior - Skin Pigmentation in scleroderma…. Remember, these pigmentation changes don't define us… . . . . #sclerodermaawareness #systemicsclerosis #autoim
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@sassy_scleroderma_warrior
Skin Pigmentation in scleroderma…. Remember, these pigmentation changes don’t define us… . . . . #sclerodermaawareness #systemicsclerosis #autoimmunecondition #raynaudssyndrome #pulmonaryfibrosis #PAH #ILD #skinpigmentation #sclerodermaskinproblems
#Systemicsclerosis Reel by @dr.david.kim (verified account) - Raynaud phenomenon gets triggered by cold temperature and stress. Your blood vessels go into spasm and starts cutting off circulation, making your fin
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@dr.david.kim
Raynaud phenomenon gets triggered by cold temperature and stress. Your blood vessels go into spasm and starts cutting off circulation, making your fingers turn white. Raynaud phenomenon typically happens on its own but can be associate with underlying connective tissue disease, most commonly systemic sclerosis. These are 3 simple tips you can implement to prevent your fingers to form ulcers from Raynaud’s. Hope this is helpful 😉 🎥 Corigraceandwaffle (Tiktok) thank you for sharing the video! . . . . . . . . . . . . . #dermatology #dermatologist #drdavidkimderm #skincare #skincareroutine #raynauds #winter #skintips #skinbarrier #skingoals #ceramide #beauty #soft #hydrated #plump #glowy #autoimmune #lupus #systemicsclerosis #science #medicine #doctor #cold #hand #fingers #nyc
#Systemicsclerosis Reel by @passionate_pulmonologist - 🖐️ These aren't just tight fingers. 🫁 This isn't just a cough. Systemic sclerosis (also called scleroderma) is a rare autoimmune disease where the b
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@passionate_pulmonologist
🖐️ These aren’t just tight fingers. 🫁 This isn’t just a cough. Systemic sclerosis (also called scleroderma) is a rare autoimmune disease where the body attacks its own tissues — leading to hardening of the skin and fibrosis of internal organs like the lungs, heart, and GI tract. In this patient, the hands were the first clue. A CT scan revealed Interstitial Lung Disease (ILD) — a serious complication that can silently progress without early detection. ⚠️ Don’t ignore cutaneous signs — they may be pointing to something deeper. 🔬 Diagnosed early, we can slow down progression and improve quality of life. 💡 Know the signs. Connect the dots. Save the lungs. #systemicsclerosis #scleroderma #pulmonarymedicine #ild #raynaudsphenomenon #autoimmuneawarenes #skintoscan
#Systemicsclerosis Reel by @rheum.md - Undifferentiated connective tissue disease is a gray area where a person has some features suggestive of a systemic autoimmune rheumatic disease but d
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@rheum.md
Undifferentiated connective tissue disease is a gray area where a person has some features suggestive of a systemic autoimmune rheumatic disease but does not meet criteria for anything. Mixed connective tissue disease is an overlap disease that can have features of inflammatory myositis, lupus, systemic sclerosis, interstitial lung disease, AND high titer ANA and RNP.
#Systemicsclerosis Reel by @leopard_organisation - If you notice any of these symptoms, it's important to see your rheumatologist as they could be early signs of systemic sclerosis: • Swollen, puffy f
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@leopard_organisation
If you notice any of these symptoms, it's important to see your rheumatologist as they could be early signs of systemic sclerosis: • Swollen, puffy fingers and/or swelling in the hands that doesn't leave a dent when pressed. • Thickened skin, which can affect areas like the hands, feet, face, and forearms. • Tightened skin around the mouth, making it harder to open fully. • Indentations (pitting) on your fingertips, along with tissue loss and small sores near your nails. • Fingers that are swollen and stiff, joint and muscle pain, and feeling unusually tired. Systemic sclerosis is a complex disease with a wide range of symptoms and outcomes. It affects different organs and can progress differently in each person. Skin problems are very common in systemic sclerosis. People with this condition often experience thickening and hardening of their skin to varying degrees. The fingers, hands, and face are usually the first areas affected. Almost all patients with systemic sclerosis have Raynaud's phenomenon. Raynaud's phenomenon causes temporary spasms in the blood vessels of the hands and feet due to changes in how the arteries work. Over time, many patients with systemic sclerosis develop permanent changes in their small blood vessels, which can lead to longer episodes of Raynaud's phenomenon. This can cause pain, sores on the fingers and toes, and in severe cases, serious circulation problems. Up to half of patients develop sores on their fingers and toes due to poor circulation. Having these sores generally means the disease is more severe. #scleroderma #sclerodermaawareness #sclerodermawarrior #systemicsclerosis #leopardorganisation #askyourrheumatologist #rheumatology #rheumatologist #chronic #chronicpainwarrior #stiffness #fatiguechronique #chronicillness #chronicillnessawareness #autoimmune #autoimmunedisease #autoimmunewarrior #spoonie #spoonies #spoonielife #spooniesupport #arthritis #arthritisawareness #arthritiswarrior #disability #disabilityawareness

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