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#Aftd Reel by @belightcare (verified account) - ˣ It's Day 6 of World FTD Awareness Week, and today's focus is on Education. Understanding and recognizing the early signs of Frontotemporal Degenerat
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@belightcare
ˣ It’s Day 6 of World FTD Awareness Week, and today’s focus is on Education. Understanding and recognizing the early signs of Frontotemporal Degeneration (FTD) is crucial, and @theaftd’s diagnostic checklists for bvFTD and PPA are valuable tools to help with that. These checklists can be used to educate others, including healthcare providers, about the symptoms of FTD. Early detection is key, and these resources can make a real difference in getting the right diagnosis sooner. Visit the link in my bio to download the checklists, available in several languages. We’ve also just added a new checklist for those already diagnosed with ALS or FTD, which can help identify if they have the clinical subtype called ALS and FTD. #ftd #aftd #frontotemporaldementia #ppa #bvftd #worldftdawarenessweek2024
#Aftd Reel by @theaftd (verified account) - In honor of #WorldMentalHealthDay, AFTD Ambassador Jackie Shapiro shares what she's learned about caring for her mom with FTD, and why honesty, suppor
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@theaftd
In honor of #WorldMentalHealthDay, AFTD Ambassador Jackie Shapiro shares what she’s learned about caring for her mom with FTD, and why honesty, support, and community matter most. FTD affects every part of life, and it’s okay to ask for help. No one should have to walk this journey alone. ⚪ If you need guidance or someone to talk to, AFTD's HelpLine is here to support you at info@theaftd.org or 1-866-507-7222.
#Aftd Reel by @nicolepetrie (verified account) - Another incredible #AFTDEducationConference in the books ❤️ Thank you to @theaftd for bringing together these people, all this information, and for fo
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@nicolepetrie
Another incredible #AFTDEducationConference in the books ❤️ Thank you to @theaftd for bringing together these people, all this information, and for fostering a community of love & hope! #ftd #ftdawareness #frontotemporaldementia #frontotemporaldegeneration #aftd #houston #caregiver #dementiacaregiver
#Aftd Reel by @peter_gh - 1st attempt We are at a new level, the ability to walk is more compromised day after day, however stopping walking is not an option, we are going to t
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@peter_gh
1st attempt We are at a new level, the ability to walk is more compromised day after day, however stopping walking is not an option, we are going to try everything within our reach. This is the first attempt, she needs to get used to it, is not going to be easy but we are keep trying every day. . . #endftd #awareness #dementia #dementiaawareness #canonusa #oralis #oralissdiary #oralisybella #portrait #blackandwhite #documentary #documentaryphotograph#caregivers #documagazine #visura #aftd
#Aftd Reel by @theaftd (verified account) - What happens when you gather people who truly understand the FTD journey? ❤️ For Libba Adams, attending her first AFTD Education Conference meant co
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@theaftd
What happens when you gather people who truly understand the FTD journey? ❤️ For Libba Adams, attending her first AFTD Education Conference meant connection, honesty, and feeling deeply understood alongside others who have experienced frontotemporal degeneration. Join us April 30–May 1 in Seattle or online. Registration is free. ➡️ Click the link in our bio to register now.
#Aftd Reel by @theaftd (verified account) - AFTD Ambassador Deb Scharper and her daughter, Alyssa Nash, are raising awareness, sharing their family's experience with FTD, and advocating for a fu
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@theaftd
AFTD Ambassador Deb Scharper and her daughter, Alyssa Nash, are raising awareness, sharing their family’s experience with FTD, and advocating for a future with earlier diagnosis and improved support. Their voices show the power of community and action. ➡️ Interested in volunteering? Click the link in our bio to learn more.
#Aftd Reel by @spencer_cline22 - My dad passed away from Frontotemporal Degeneration (FTD) when I was 14. It strikes people at the prime of their lives and right now, there is no cure
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@spencer_cline22
My dad passed away from Frontotemporal Degeneration (FTD) when I was 14. It strikes people at the prime of their lives and right now, there is no cure. I’m working with @babsonathletics and @aftd_team for the 2nd year in a row to help raise awareness and find a cure. We have raised 11k & counting since last year! Visit the link in my bio to donate and learn more! #SupportBruceWillisFTD #EveryFTDStoryCounts #AFTD #FTD #boston #Boston #bostonnews #greif #greifjourney #babsoncollege #babson #cure #dementia #dementiaawareness #basketball #bostonceltics
#Aftd Reel by @elizabethwillers - It's that time again for the annual Robert M Hatfield Foundation going on 14 years! Great day for a golf tournament raising money for #AFTD the assoc
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@elizabethwillers
It’s that time again for the annual Robert M Hatfield Foundation going on 14 years! Great day for a golf tournament raising money for #AFTD the association for Frontotemporal Degeneration
#Aftd Reel by @angeliquemarya_ - Taking a Deep Dive into the unpredictable world of #frontotemporaldementia as two daughters who lost their mothers to this awful disease. Frontotemp
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@angeliquemarya_
Taking a Deep Dive into the unpredictable world of #frontotemporaldementia as two daughters who lost their mothers to this awful disease. Frontotemporal dementia is a progressive and irreversible brain disorder that affects an estimated 50,000 to 60,000 Americans. FTD comes in several forms including behavioral dementia and Aphasia, the type of dementia #BruceWillis was recently diagnosed with. It is a type of dementia that can impact otherwise healthy adults as young as 30 years old - most commonly presenting in 40-50 year olds. We share our stories navigating different variants of the disease, different family dynamics, and ultimately two different caregiving experiences, in hopes to spread more awareness of this disease and normalize conversations around support. Topics include: - Exploring FTD variants - Symptoms to watch out for - Living grief - Care for caregivers - Navigating healthcare and support - Resources *Trigger Warning: some parts of this discussion are very raw, unfiltered, and explicitly transparent.* If you have any questions, or want to connect directly, please feel free to reach out to hello@angeliquemarya.com. (The full episode is linked in my bio and the Playlist includes several additional resources and stories) • • • • #FTD #frontotemporaldementia #dementia #aphasia #caregivers #caregiver #healthcare #griefjourney #griefsupport #AFTD
#Aftd Reel by @ftdhotshotchallenge - 🎗️ For our dear friend, Sue 💝Donate: give.classy.org/FTDhotshotchallenge @bethanndailey @theAFTD #FTDhotshotchallenge #FTD #FrontotemporalDegener
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@ftdhotshotchallenge
🎗️ For our dear friend, Sue 💝Donate: give.classy.org/FTDhotshotchallenge @bethanndailey @theAFTD #FTDhotshotchallenge #FTD #FrontotemporalDegeneration #FrontotemporalDementia #hotsauce #hotsaucechallenge #AFTD @theAFTD #jointhemovement #bethechange
#Aftd Reel by @fiddlinfrogflowers - Happy Birthday to my Mom! Today she turns 80 years old🎶 I LOVE YOU!!! #betteaboo #mymomisanartist #80yearsyoung #bornin1942 #ftdawareness #liveyourl
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@fiddlinfrogflowers
Happy Birthday to my Mom! Today she turns 80 years old🎶 I LOVE YOU!!! #betteaboo #mymomisanartist #80yearsyoung #bornin1942 #ftdawareness #liveyourlifetothefullest #ftdsucks #aftd #remembermepodcast #fiddlinfrogflowers
#Aftd Reel by @breakingentertainmenthubglobal - Emma Heming Willis and Demi Moore made a meaningful joint appearance on November 5 at the intimate SoHo Sessions Benefit Concert in New York City, org
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@breakingentertainmenthubglobal
Emma Heming Willis and Demi Moore made a meaningful joint appearance on November 5 at the intimate SoHo Sessions Benefit Concert in New York City, organized to honor Bruce Willis and raise funds for the Association for Frontotemporal Degeneration (AFTD) following his diagnosis with frontotemporal dementia in 2023. The star-studded event featured performances from legendary musicians including Keith Richards, Norah Jones, Mavis Staples, and Warren Haynes and drew guests such as Michael J. Fox, Whoopi Goldberg, and Kevin Bacon. Heming Willis opened the night with emotional remarks: “I honestly wish Bruce could be here, but he’s here in spirit,” expressing gratitude to the organizers and the community gathered to support those impacted by neurological disease. The venue was a loft in Manhattan’s SoHo neighborhood, where guests enjoyed deeply felt music and a powerful message of unity and purpose. The event not only spotlighted Willis’s career and condition, but also emphasized the need for caregiver support and awareness—especially as Heming Willis highlighted how isolated she felt early in the diagnosis process. More than a fundraiser, the evening became a celebration of resilience, friendship and family. #brucewillis #emmahemingwillis #demimoore #celebritynews #frontotemporaldementia #aftd #hollywoodupdates #sohosessions #breakingnews #entertainmentnews

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