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#Arvd Reel by @riseup_rochelle - My ARVD/C story: Tachycardia began happening daily back in the summer of 2023. Heart Monitor worn for 14 days until NOV 1st 2023 Nov 1st call fro
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RI
@riseup_rochelle
My ARVD/C story: Tachycardia began happening daily back in the summer of 2023. Heart Monitor worn for 14 days until NOV 1st 2023 Nov 1st call from cardiologist to go to the hospital Nov 2nd direct admit to Chandler Regional Hospital Nov 3rd, echo, EKGs, 2 CT scans done Nov 6th, MRI complete for official diagnosis of ARVD/C Nov 7th, ICD (defibrillator) implant surgery Dec 20th genetic test results came back positive for PKP2 gene mutation causing this cardiomyopathy. My daughter also tested positive for the same gene mutation and she is scheduled to see a pediatric EP next month after a long battle in court with her dad about getting her the medical monitoring she needs. Since my diagnosis, I can’t run anymore. But since my implant surgery and starting meds I can lift without feeling winded, I can clean and put groceries away again, I can vacuum and sweep… I can do all of these daily things that were triggering episodes prior to being diagnosed. 🙌🏻 I have zero anxiety now whereas before I was struggling with what I thought was bad anxiety. Turns out it was just my heart racing and my body trying to tell me something wasn’t right. That’s completely gone now! 🫶🏻 I have not been shocked yet, the parameter is set to 190 bpm, so if my heart rate goes above that, it’ll happen. It hasn’t yet, and I’m hoping it never does 🤞. Pretty amazing considering it was happening daily for months prior to surgery and medication. My life is certainly different now. I’m aware of every little thing my heart does and doesn’t do that it should. I carry my meds with me around everywhere and set alarms to take them as I have to take them diligently and on time. But this doesn’t define me. It won’t define me. Thank you for sharing your stories with me. Thank you for reaching out. You’re not alone. Keep pushing for health and happiness- I can’t tell you how many times doctors didn’t take me seriously and just told me I had anxiety when it was much more. Know you always have a friend in your corner rooting for you. ☺️
#Arvd Reel by @sarah.rezai - درمان ARVD ... هدف جلوگیری از آریتمی هست . اگر نارسایی ایجاد شده ، نارسایی و خوب کنیم .. و نگذاریم که اریتمی ها باعث مرگ ناگهانی و یهویی بشه .‌‌‌‌‌.‌
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@sarah.rezai
درمان ARVD ... هدف جلوگیری از آریتمی هست . اگر نارسایی ایجاد شده ، نارسایی و خوب کنیم .. و نگذاریم که اریتمی ها باعث مرگ ناگهانی و یهویی بشه .‌‌‌‌‌.‌ 🙂🙂🙂🙂🙂🙂🙂 #قلب #نوار_قلب #قلب #قلب_سالم #قلبم #اريتمي 🤗 #قلب #نوار_قلب #اریتمی #بيماريهاي_قلبي #بی‌_نظمی #تجربه_پزشکی_من #تپش #تپش_قلب #طپش #درد_سينه #cardio_case #ecg
#Arvd Reel by @prof.dr.tolgaaksu (verified account) - ARVD, yani Arrhythmogenic Right Ventricular Dysplasia (veya daha güncel adıyla Arrhythmogenic Right Ventricular Cardiomyopathy - ARVC), kalbin sağ ven
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@prof.dr.tolgaaksu
ARVD, yani Arrhythmogenic Right Ventricular Dysplasia (veya daha güncel adıyla Arrhythmogenic Right Ventricular Cardiomyopathy - ARVC), kalbin sağ ventrikülünü etkileyen genetik bir kardiyomiyopatidir. Kısaca: Tanım: ARVD/ARVC, sağ ventrikül miyokardının yerini fibro-adipoz doku almasıyla karakterizedir. Bu değişim, ventriküler aritmiler ve ani kardiyak ölüm riskini artırır. ⸻ Klinik Özellikler: • Çoğunlukla genç erişkinlerde ve sporcularda görülür. • Ventriküler taşikardi (özellikle sağ ventrikülden kaynaklı monomorfik VT) sık görülür. • Senkop, çarpıntı, ani kardiyak ölüm ilk bulgu olabilir. • Aile öyküsü önemlidir. ⸻ Tanı Kriterleri (Task Force Criteria): • EKG: Epsilon dalgası, T dalga inversiyonu (V1-V3), sağ ventrikül kaynaklı VT • EKO / MR: Sağ ventrikülde dilatasyon, disfonksiyon, anevrizma • Biyopsi: Fibro-adipoz infiltrasyon • Genetik test: Desmoplakin, plakoglobin vb. gen mutasyonları ⸻ Tedavi: • Egzersiz kısıtlaması • Anti-aritmik ilaçlar (örn. sotalol, amiodaron) • ICD (Implantable Cardioverter Defibrillator): Ani ölüm riski yüksekse • Kateter ablasyon: VT tedavisinde
#Arvd Reel by @abzsmythe - ⚠️ Please note: This post is strictly for awareness purposes (and me sharing my journey with you, of course😌). The pain that comes with having a bi
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@abzsmythe
⚠️ Please note: This post is strictly for awareness purposes (and me sharing my journey with you, of course😌). The pain that comes with having a bilateral pulmonary embolism (blood clots in the lungs) isn’t easy. This day in particular was very hard. I was in so much pain and nothing was helping! 😭. The strongest pain medications weren’t working; not even morphine! My body was in shock and shaking from the pain. I have high pain tolerance but this one was above me! Dah one yah beat mi bad! I’ve never felt anything like it! The pain was so EXCRUCIATING, I begged the doctors to knock me out. It eventually brought me to tears! At one point I thought I was going to die 🥺. I had my boyfriend call one of my brothers and my close friend @pcharlesjr , just in case I didn’t make it. However, I was unable to even utter a word to them, they only heard me bawling 😭. PS. This video shows the MILD part of it 🥲 This has been the roughest part of my life’s journey to date. I fought my way through the roughest part of this roughest part, and I continue to fight. It’s a long road to full recovery but I SHALL NOT DIE! This purpose within me shall not die! God ain’t done with me yet 🙏🏾 . . #ThisIzAbz #Mission109 #arvd #arvc #heartwarrior #heartpatient #heartdiseaseawareness #heartdisease #pulmonaryembolism #embolism #pulmonary #lungs #bloodclot #bloodclots #bilateral #bilateralpulmonaryembolismsurvivor #bilateralpulmonaryembolism #advocate #admitted #hospital #hospitallife #faith #prayer #prayerworks #hope #jamaican #jamaicajamaica #instadaily
#Arvd Reel by @sadsfoundation - Share to spread awareness! ARVC (also known as ACM or ARVD) is caused by a defect in the tiny proteins that hold your heart muscle cells together. The
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@sadsfoundation
Share to spread awareness! ARVC (also known as ACM or ARVD) is caused by a defect in the tiny proteins that hold your heart muscle cells together. These proteins can be disrupted in ARVC, leading to areas of scar and fat deposits. This scarring can lead to abnormal heart rhythms, which, left untreated, can cause #SuddenCardiacArrest. For more information about #ARVC, visit https://sads.org/sads-conditions/arvc-arvd/ What’s your experience living with ARVC? Let us know in the comments! ⬇️ [video voiceover and educational content presented by Dr. Lisa Albertini] 🏷️ #heartfailure #hf #cardiomyopathy #heartfailuresurvivor #hearttransplant #hearttransplantsurvivor #arvc #arvd #acm We are grateful to Tenaya Therapeutics for their sponsorship of ARVC Awareness Week.
#Arvd Reel by @aortarightcoroner - Arrhythmogenic right ventricular dysplasia (ARVD), also called arrhythmogenic right ventricular cardiomyopathy (ARVC), is a rare form of cardiomyopath
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@aortarightcoroner
Arrhythmogenic right ventricular dysplasia (ARVD), also called arrhythmogenic right ventricular cardiomyopathy (ARVC), is a rare form of cardiomyopathy, where the heart muscle of the right ventricle (RV) is replaced by fat and/or fibrous tissue #bengkellistrikjantung #fyp #sorotan #cathlab #nursecathlab #emergency #electrofisiologi
#Arvd Reel by @paramedmovement - Arrhythmogenic Cardiomyopathy/ARVD/ARVC/ALVC #prehospital #ems #paramedicine #emtlife #cardiac #cardiology #ekg #arvc #arvd #alvc #arrhythmogeniccard
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@paramedmovement
Arrhythmogenic Cardiomyopathy/ARVD/ARVC/ALVC #prehospital #ems #paramedicine #emtlife #cardiac #cardiology #ekg #arvc #arvd #alvc #arrhythmogeniccardiomyopathy #cardiomyopathy #suddencardiacdeath #heart #nurse #doctor #emergency #criticalcare #electrophysiology #athlete #exertion #young #icd #hearttransplant #arrhythmia #ventriculartachycardia #rightventricularoutflowtracttachycardias #youcandoit #awareness #adenosine
#Arvd Reel by @cardiob2b - ⚡️🫀Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia (ARVC/ARVD)🫀⚡️ ARVC/ARVD is the second most common cause of sudden cardiac death in
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@cardiob2b
⚡️🫀Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia (ARVC/ARVD)🫀⚡️ ARVC/ARVD is the second most common cause of sudden cardiac death in patients < 65 years. 🔎 Key ECG Findings: ✅ Epsilon Waves: The most specific ECG findings. Sensitivity is approximately 50% on standard ECG leads; however, it can be increased if a Fontaine bipolar precordial lead configuration is used. ✅ T-wave inversions in V1–V3 ✅ Prolonged Terminal Activation Duration (S wave upstroke) ≥ 55 ms ✅ Ventricular tachycardia/ectopy with LBBB morphology Diagnosing ARVC/ARVD can be very challenging, but recognizing these subtle ECG changes can be life-saving when identified early. #Cardiology #Electrophysiology #EP #Arrhythmia #ECG #EKG #HRS #ACC #ESC #AHA #B2B Have you ever heard of Epsilon Waves?
#Arvd Reel by @themestimes (verified account) - In 2016, 25-year-old Stan Larkin from Michigan made history by surviving 555 days without a human heart - thanks to a portable artificial heart system
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@themestimes
In 2016, 25-year-old Stan Larkin from Michigan made history by surviving 555 days without a human heart — thanks to a portable artificial heart system he carried in a backpack. Larkin was diagnosed with arrhythmogenic right ventricular dysplasia, a rare genetic condition that caused both of his heart’s ventricles to fail. His condition became so severe that he was removed from the heart transplant list. Doctors at the University of Michigan implanted a temporary total artificial heart connected to a 13-pound external device worn in a backpack. This setup pumped blood throughout his body and allowed him to stay active — he even played basketball while waiting for a donor. In May 2016, he finally received a successful heart transplant. His journey showed how far artificial heart technology has come, giving new hope to patients waiting for transplants by letting them live outside of hospitals with much better quality of life. #heart #pacemaker #artificialheart #medicalequipment #medtech #healthinnovation #transplant #cardiology #stanlarkin #medicalbreakthrough
#Arvd Reel by @ecgtechnician - 🔻 Epsilon waves are the most specific and characteristic finding in arrhythmogenic right ventricular dysplasia (ARVD). In ARVD, myocytes are replace
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@ecgtechnician
🔻 Epsilon waves are the most specific and characteristic finding in arrhythmogenic right ventricular dysplasia (ARVD). In ARVD, myocytes are replaced by fat, producing islands of viable myocytes in a sea of fat. This causes a delay in excitation of some of the myocytes of the right ventricle, producing a small “blip” seen during the ST segment of the ECG. Epsilon waves have also been described in patients with: Posterior myocardial infarction Right ventricular infarction Infiltrative disease Sarcoidosis #ecgchallenge #ecginterpretation #ecgreading #ekg #ecglovers #ecgdiagnosis #ekgıda #ecg #ecggel #ecgsalvavidas #electrocardiograph #electrocardiografía #electrocardiography #electrocardiogram #ecgtest #epsilon #epsilonwave #epsilonwaves #arvd
#Arvd Reel by @cardio_news - ARVD - Aritmogen sağ mədəcik displaziyası 📎sağ mədəcik dusfunksiyası olur 📎ventrikulyar aritmiya olur: 📎 RV nin morfoloji anormallığı olur: 📎 sa
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@cardio_news
ARVD - Aritmogen sağ mədəcik displaziyası 📎sağ mədəcik dusfunksiyası olur 📎ventrikulyar aritmiya olur: 📎 RV nin morfoloji anormallığı olur: 📎 sağ mədəcik toxuması yağ və fibroz toxuma ilə əvəzlənir + Rvot psax və plax-dan 30mm< + Dılate və hipokinetik RV + sağ mədəciyin qlobal ve ya lokal hipokinezi + Anulyar dilatasiyaya bağlı TÇ + İnkollobe İVC + Artmış sağ atrial təzyiq + iAS və İVC nin sağa meyl etməsi + Marfoloji olaraq: trabekulyar düzənsizlik,hiperreflektiv moderator band, kisəvari anevrizma 📎Müalicə: İCD
#Arvd Reel by @abdullah_89othman (verified account) - Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) is an inherited heart muscle disease primarily affecting the right ventricle (RV). The hallmark
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@abdullah_89othman
Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) is an inherited heart muscle disease primarily affecting the right ventricle (RV). The hallmark feature is the gradual replacement of RV myocardium with fibrofatty tissue. Initially labeled as “dysplasia,” ARVC is now recognized as a genetically determined “cardiomyopathy.” Its estimated prevalence ranges from 1 in 2000 to 1 in 5000, with familial cases accounting for 30–50%. Clinical manifestations typically emerge between the second and third decades of life, often related to ventricular tachycardia (VT) or ventricular fibrillation (VF), leading to sudden death, especially in young individuals. As the disease progresses, RV muscle involvement may result in heart failure. Early detection and preventive therapy can modify its natural course. Recent advances include a validated ARVC risk calculator for sudden cardiac death, providing improved risk stratification. Genetic mutations play a significant role, with desmosomal genes being common culprits. Confirming the diagnosis and genetic testing are crucial. A key diagnostic feature of ARVC is the presence of epsilon waves on an ECG, which are small positive deflections at the end of the QRS complex, indicating delayed RV activation. ⚡️ Credited; MeducateStudios. #ARVC #Cardiology #HeartHealth ❤️ #Genetics 🧬 #RiskStratification 📊 #SuddenCardiacDeath ⚠️ #EpsilonWave 📈 #ECG .

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