529.1K
LINot sure where Tate thought he was going…but we went to support the Preds and celebrate “Hockey has Heart” night! Happy Valentines Day! ❤️ @brightforbrett #hockeyhasheart #chdawareness
@linabryan3
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BRThis week, we celebrate Brett’s 9th birthday. And we celebrate you - our incredible community of supporters who help carry Brett’s legacy forward.
More research could have led to more options for Brett and our prayer is to give more options to other families so that their children can live a long and happy life.
Today, your continued support means more life-saving research, more comfort for families in and out of the hospital, more joy, hope and love spread in Brett’s name, and, of course, more birthdays for the 1 in 100 battling CHD.
Make a gift today in honor of Brett and help us continue this mission of hope. 💛🐝#brightforbrett #thebrettboyerfoundation #brettsninthbirthday #fyp #battleon #chd #chdawareness
@brightforbrett
5.4K
MAIn honor of it being CHD Awareness week!!🫀🤍 #chdawareness #chd #openheartsurgery
@madisonncouture
24.1K
JENot how we’d imagine bringing you home sweetie. We miss you so much Stellie💔
#chdawareness #pulmonaryveinstenosis #pulmonaryhypertension
@jemila.hu
258.4K
AMI can’t believe I’m finally writing these words…. Broken Hearts Club FIRST CAPSULE!!! Dropping 2.13.23 💔❤️
After Russell’s open heart surgery as a newborn, I wanted a way to spread awareness for CHD’s (congenital heart defects) and for those going through something similar to feel a little less alone and a little more comforted and comfortable when they might need it most…
From heart surgeries to heartbreak and everything in between. For every cancer patient, heart warrior, abuse survivor. Those battling mental health and grief, or fighting alongside someone who is, there is strength from struggle. You are on the path that leads to resilience and growth. You are not alone. Welcome to the club 💔❤️
#chdawareness #chdwarrior #amberandruss #BHC💔
@amberlancaster
87.5K
CH🎂 Happy 1st Birthday, Yordan! 🎂
Yordan has spent nearly his entire life at CHLA, bravely battling a congenital heart defect (CHD). This week, as we recognize CHD Awareness Week, we’re also celebrating his incredible journey - including his recent heart transplant!
Our staff recently threw him a special Paw Patrol birthday party, and they continue to cheer him on as he continues his recovery. Join us in wishing Yordan a lifetime of love, strength, and good health!
The Heart Institute at CHLA is the largest pediatric cardiac center in the Western United States and has expertise handling all forms of pediatric and congenital heart disease, from the most common to the rarest and most complex cases. Learn more in our link in bio. #CHDAwareness
@childrensla
3.4M
FOThe sound we thought was "just gas" was actually her heart failing. 💔
Looking back at this video of Alice at 9 days old breaks my heart. We were doing what every parent does—rocking her, trying to soothe what we thought was trapped wind or colic.
We were wrong.
That unusual, rhythmic cry wasn't discomfort from feeding. It was the sound of a baby retaining fluid because her heart was enlarged and struggling to pump. Alice eventually needed a heart transplant, and tragically, we lost her while she was waiting.
I am sharing this because I don’t want another parent to feel the haunt of "what if."
PLEASE WATCH FOR THESE SIGNS:
The Cry: An unusual, weak, or "grunting" sound that happens with every breath.
Breathing: Rapid breathing or seeing the chest suck in deeply under the ribs (retractions).
Feeding: Tiring out quickly during feeds or sweating while eating.
Weight: Sudden "puffiness" or rapid weight gain (fluid retention).
If your gut tells you your baby’s cry is "odd," do not let it be dismissed as colic. Ask for a pulse oximetry check, a chest X-ray, or an ultrasound.
Alice’s life was short, but her legacy can be the life of your child. Please share this. You never know whose feed this needs to land on today. 🕊️
#fblifestyle #chdawareness #neonatalhealth #heartwarrior #pediatriccardiology #babysafety #infantloss #listentomoms
@for_alice_always
101.3K
DOMattel sent Nettie and Lottie the new Barbie (with Down syndrome!) x2 and they had to give them the full tour of the backyard. 😄🤍 I think representation matters, and so I’m thankful for this new Barbie to join the ranks. No one asked me, but I think she is only missing an open heart surgery zipper!
#nettieandlottie #barbie #mattel #downsyndrome #theluckyfew #downsyndromeawareness #twins #overalls #representationmatters #twinswithdownsyndrome #chdawareness
@doublingdownmom
26.2K
SIHearing that something is wrong with your child’s heart can be one of the most devastating moments in a caregiver’s life. Whether before birth, after or later in their lives - the world stops spinning and it can be hard to go on.
SickKids’ Labatt Family Heart Centre is here for you.
They have resources from clinical experts, as well as patient and families.
This #HeartMonth, and every day, know that you are not alone. ❤️
Tap the 🔗 in bio to check out the Labatt Family Heart Centre’s video series made by heart families, for heart families. 🫀👆
#CHDAwareness #CongenitalHeartDefect #HeartHealth #SickKids #SickKidsVS #SickKidsHospital #Pediatrics #ChildrensHospital #Healthcare #HeartWarrior
@sickkidstoronto
1.4K
REThis brave 11-year-old is about to have his 10th heart surgery… and all he’s thinking about is helping other kids fighting heart disease.
Let’s lift James up with love, and support ❤️
#HeartWarrior #CHDAwareness #KindnessMatters #PediatricHeartSurgery #GiveBack
@reporterkait
1.7K
HOThe @courageouskashfoundation was established in November 2023, in honor and loving memory of 2-year-old #heartwarrior Kash. The foundation is committed to supporting heart families by instilling hope and raising awareness of congenital heart defects. Learn more about their inspiring work and how they support @hopkinspedsheartcenter. You can also visit their website to learn more about their activities and events (🔗 in bio). #HeartMonth #CHDAwareness #CourageousKash 🩺 ❤️
@hopkinschildrens
278
SEI’m honored to once again introduce a resolution recognizing February 14 as Emersyn’s Day and Feb. 7-14 as Congenital Heart Defect Awareness Week in PA. Today, we honor Emersyn’s memory and the memory of thousands of children lost to CHDs.
#chdawareness #chd #emersynsday
@senatorcollett
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