#Ebawareness

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ebawareness day 2026

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#Ebawareness Reel by @cureeb - Thank you Poppy for your message this #EBawareness week. Thank you for your courage and determination to keep on coping, every painful minute of every
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@cureeb
Thank you Poppy for your message this #EBawareness week. Thank you for your courage and determination to keep on coping, every painful minute of every day. We are determined to keep on funding research until a cure is found, for Poppy, and the half a million people across the world who suffer with all types of #EB. Please help us #cureEB if you can. Link in bio. #FightForALifeFreeFromPain #EndEB #ResearchTheCure #RDEB #EBAW #EBAwarenessWeek #research #health #medicine 🦋
#Ebawareness Reel by @geanyneferreiraoficial - 🦋Oi, meu bem, tudo bem? Pra quem não me conhece, meu nome é Geanyne. E no mês de outubro é o mês da conscientização da epidermólise bolhosa. E eu que
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@geanyneferreiraoficial
🦋Oi, meu bem, tudo bem? Pra quem não me conhece, meu nome é Geanyne. E no mês de outubro é o mês da conscientização da epidermólise bolhosa. E eu quero te fazer um convite pra espalhar informação e tornar a nossa vida ainda mais leve. Sem preconceitos e olhares maldosos. Vamos comigo nessa?💜#eb #concoentizaçao #viredoavesso
#Ebawareness Reel by @caresforethan - Celebrating EB Awareness Week This week, instead of sharing the painful images and videos that highlight the struggles of living with Epidermolysis B
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@caresforethan
Celebrating EB Awareness Week This week, instead of sharing the painful images and videos that highlight the struggles of living with Epidermolysis Bullosa, we want to focus on the wonderful moments and the incredible people in Ethan’s life. Today, we honored Ethan’s amazing coaches, and we also want to shine a light on one of his favorite soccer players, Dybala. A year ago, he sent a personal video to Ethan that meant the world to him. Let’s spread positivity and celebrate the joy that connects us all! 💙 #ebawareness #paulodybala #soccerlife #positivemoments #soccer
#Ebawareness Reel by @pepo.workout (verified account) - I'm super grateful that with this skin disease I am able to do such things as working out! So I decided to give some good back to the world, I will
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@pepo.workout
I'm super grateful that with this skin disease I am able to do such things as working out! So I decided to give some good back to the world, I will dedicate this page to raise money towards Epidermolysis bullosa Research. Let's do something amazing together 🤝🙏💪
#Ebawareness Reel by @thebrotherstrust (verified account) - For EB Awareness Week we are showing our support by shining a light on the three incredible EB charities we work with; @ebresearch @cureeb and @charit
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@thebrotherstrust
For EB Awareness Week we are showing our support by shining a light on the three incredible EB charities we work with; @ebresearch @cureeb and @charitydebra. We also want to take the time to remember some incredible friends we have made along the way and the legacy they have left behind. #ebawarenessweek2024 @tomholland2013 @samholland1999 @harryholland64 @paddyholland2004 @dommoholland @nikkihollandphotography
#Ebawareness Reel by @charitydebra - As the longest nights of the year draw in, families like Darcie's face a darkness far deeper than night itself. Just days before Christmas, Darcie a
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@charitydebra
As the longest nights of the year draw in, families like Darcie’s face a darkness far deeper than night itself. Just days before Christmas, Darcie arrived - but instead of celebrating, her parents were terrified. Her tiny wrists were missing skin, her nails hadn’t formed, and no one knew why. After countless hospital visits, they learned Darcie had epidermolysis bullosa (EB), or ‘butterfly skin.’ Six days later, their fears were confirmed: Darcie has one of the most severe forms, affecting her internal organs as well as her delicate skin. Doctors told them she has a low chance of living past toddlerhood. Like a candle, Darcie’s life may only burn for a short time, but while it does, her family wants to fill it with warmth, love, and light. This winter, you can help make Darcie’s days as pain-free as possible. Donate today and bring hope to families living through their longest nights. ✨ We’ll be sharing more of Darcie’s story in the run-up to Christmas - please follow along and help us spread hope. #TheLongestNight #DEBRAUK #EpidermolysisBullosa
#Ebawareness Reel by @liztrinnear (verified account) - Be kind. #RareDiseaseDay #epidermolysisbullosa #ebawareness #raredisease
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@liztrinnear
Be kind. #RareDiseaseDay #epidermolysisbullosa #ebawareness #raredisease
#Ebawareness Reel by @melissa_2010 (verified account) - Kicking off the first day of EB awareness week please go to YouTube and watch markys interview with @specialbooksbyspecialkids and tag and share !! He
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@melissa_2010
Kicking off the first day of EB awareness week please go to YouTube and watch markys interview with @specialbooksbyspecialkids and tag and share !! Help us make the worst disease you’ve never heard of be KNOWN!! #eb #ebawareness #ebawarenessweek #awareness #love
#Ebawareness Reel by @melissa_2010 (verified account) - Through all the tears , all the sadness all the pokes all the frustration nothing brings him back around like his furry BFF … #dogs #dogsofinsta #dogs
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@melissa_2010
Through all the tears , all the sadness all the pokes all the frustration nothing brings him back around like his furry BFF … #dogs #dogsofinsta #dogsofinstagram #love #joy #ebawareness #wefighteb #rdebwarrior #markystrong
#Ebawareness Reel by @wefighteb (verified account) - Your support fuels groundbreaking research and provides vital resources for individuals like Amora and others living with Epidermolysis Bullosa (EB).
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@wefighteb
Your support fuels groundbreaking research and provides vital resources for individuals like Amora and others living with Epidermolysis Bullosa (EB). By donating to debra of America, you help advance treatments and offer essential care, education, and support. ❤️ Donate today at debra.org/donate or at the link in bio. 🔗 Amora shares her personal journey with excruciating eye pain and how she manages it today, while Dr. Azin Abazari offers expert tips and strategies for eye care. 👉 Catch their full presentation, along with all recorded sessions from the 2024 #debraCareConference, on EB Connect— debra's private social platform for the EB Community! Watch all recordings at the link in bio. 🔗
#Ebawareness Reel by @thatgeekaaron - Never skip leg day! 🦵 • Support me on my socials link in bio @thatgeekaaron • • #workout #workoutmotivation #gym #gymlife #gymmotivation #calist
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@thatgeekaaron
Never skip leg day! 🦵 • Support me on my socials link in bio @thatgeekaaron • • #workout #workoutmotivation #gym #gymlife #gymmotivation #calisthenics #explore #fyp #motivation #epidermolysisbullosa #fighteb #ebawareness #fitness #viral #bodybuilding #youngla
#Ebawareness Reel by @chronicloveclub (verified account) - It's Epidermolysis Bullosa Awareness Week, and for the occasion, we are so grateful to have Martine (@lifewithebsimplex) with us to help us learn abou
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@chronicloveclub
It’s Epidermolysis Bullosa Awareness Week, and for the occasion, we are so grateful to have Martine (@lifewithebsimplex) with us to help us learn about the rare skin disease she lives with every day. Show her ALL the love in the comments for spreading awareness and education here with us about this devastating disease 💛 In addition - Sanja (@lifewithdystrophiceb), has an 8 minute film called “Born Different” where she shows what living with EB is like. We highly recommend giving it a watch! We will have the link to the YouTube video in our stories 📺 🤍 . . . . . #chronicloveclub #chronicillness #EpidermolysisBullosa #EpidermolysisBullosaAwareness #woundcare #ebsimplex #ebawareness #raredisease ##rarediseaseawareness #rarediseasewarrior #showyourrare #chronicpain #chronicillnessawareness #chronicillnesssupport #chronicillnesscommunity #chronicillnesswarrior #invisibleillness #invisibleillnessawareness #spoonie #spooniesupport #chronicillnesslife #spooniecommunity #chronicallyill

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