#Ebawarenessweek

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#Ebawarenessweek Reel by @geanyneferreiraoficial - 🦋Oi, meu bem, tudo bem? Pra quem não me conhece, meu nome é Geanyne. E no mês de outubro é o mês da conscientização da epidermólise bolhosa. E eu que
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@geanyneferreiraoficial
🦋Oi, meu bem, tudo bem? Pra quem não me conhece, meu nome é Geanyne. E no mês de outubro é o mês da conscientização da epidermólise bolhosa. E eu quero te fazer um convite pra espalhar informação e tornar a nossa vida ainda mais leve. Sem preconceitos e olhares maldosos. Vamos comigo nessa?💜#eb #concoentizaçao #viredoavesso
#Ebawarenessweek Reel by @lukas.caldwell - Have you heard of Anencephaly? #raredisease #awareness #positivity
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@lukas.caldwell
Have you heard of Anencephaly? #raredisease #awareness #positivity
#Ebawarenessweek Reel by @schmetterlingclara - *Umgang mit Diagnose EB* Bitte nehmt dieses Video mit Humor. Natürlich ist die Diagnose für die frisch gebackenen Eltern erstmal ein Schock. Aber da
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@schmetterlingclara
*Umgang mit Diagnose EB* Bitte nehmt dieses Video mit Humor. Natürlich ist die Diagnose für die frisch gebackenen Eltern erstmal ein Schock. Aber das Leben ist nicht vorbei „nur“ weil das Kind die Diagnose EB bekommen hat. Natürlich ist erstmal alles anders als man es sich vorgestellt hat. Man muss sich erstmal in seinen neuen Alltag mit einem pflegebedürftigen Kind zurecht finden und es ist okay wenn am Ende nicht alles glatt läuft. Viele Fragen, Sorgen, Angst und Unsicherheit sind anfangs ein täglicher Begleiter. Es dauert meist bis man verstehst, was das alles bedeutet und wie man damit leben kannst. Aber das ist okay. Das Leben geht weiter, vielleicht anders als man es sich vorgestellt hat aber nicht weniger lebenswert. Denn auch ein Leben mit EB ist wunderschön, intensiv, einzigartig und voller Lebensfreude. Und genau das möchte ich auch mit meinem Buch „Mehr als meine Haut - mein Leben mit der Schmetterlingskrankheit“ vermitteln. Denn in diesem Buch erzähle ich euch meine Geschichte über mein (bisheriges) Leben mit EB. Und wenn ihr jetzt neugierig geworden seid dann könnt ihr mein Buch entweder direkt beim Sibost Verlag @sibost_verlag (Link in meiner Bio) oder auf Amazon bestellen. ||Anzeige|| #ebawarenessweek #lifewithepidermolysisbullosa #diagnose #humor #aufklärung
#Ebawarenessweek Reel by @kavyadhokad - I will always want a cure for my son. I was put down and ridiculed for this many times. I was told accept instead. The thing is I have accepted I stil
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@kavyadhokad
I will always want a cure for my son. I was put down and ridiculed for this many times. I was told accept instead. The thing is I have accepted I still want a cure. . . . Happy one to WARRIOR ❤️😘🧿 You are the Strongest baby💪🏻 “Unbreakable Spirits, Fragile Skin: Navigating Life with Epidermolysis Bullosa #EBWarriors #FindingCourageWithin #epidermolysisbullosa #wefighttogether #ebawarenessweek #epidermis #cure #mucosa #gtube
#Ebawarenessweek Reel by @mindsetvibrations (verified account) - The number 7 isn't just lucky… it's sacred. ✨ 7 chakras. 7 days in a week. 7 colors in the rainbow. 7 notes in music. Even your body renews itself in
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@mindsetvibrations
The number 7 isn’t just lucky… it’s sacred. ✨ 7 chakras. 7 days in a week. 7 colors in the rainbow. 7 notes in music. Even your body renews itself in 7-year cycles. If you’ve been feeling caught between the old you and the new you… you’re stepping into a 7 cycle… the cycle of inner growth, truth, and alignment. Tonight’s ritual: write down 7 times → “I am aligned with my highest self.” As you do, visualize each chakra lighting up, tuning you to the frequency of 7. Drop 777 in the comments if you’re ready to claim this alignment. And we’ll send you free access to Innertune to make tuning your mind easier. ✨ #manifestation #numerology #affirmations #lawofattraction
#Ebawarenessweek Reel by @thebrotherstrust (verified account) - For EB Awareness Week we are showing our support by shining a light on the three incredible EB charities we work with; @ebresearch @cureeb and @charit
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@thebrotherstrust
For EB Awareness Week we are showing our support by shining a light on the three incredible EB charities we work with; @ebresearch @cureeb and @charitydebra. We also want to take the time to remember some incredible friends we have made along the way and the legacy they have left behind. #ebawarenessweek2024 @tomholland2013 @samholland1999 @harryholland64 @paddyholland2004 @dommoholland @nikkihollandphotography
#Ebawarenessweek Reel by @liveactionorg (verified account) - You shouldn't be able to watch this video and still support abortion.
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@liveactionorg
You shouldn’t be able to watch this video and still support abortion.
#Ebawarenessweek Reel by @ebmrf - So grateful to @kaleycuoco @courteneycoxofficial @jenniferaniston and Zach G. For helping us spread the word during #ebawarenessweek You can join our
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@ebmrf
So grateful to @kaleycuoco @courteneycoxofficial @jenniferaniston and Zach G. For helping us spread the word during #ebawarenessweek You can join our #onewish campaign by making a donation to fund a cure or sharing this post to raise awareness.
#Ebawarenessweek Reel by @mackenzies_eb_journey - Watch a full dressing change to manage Mackenzie's EB wounds! It's crucial to do frequent wound care with severe RDEB. She's at such a high risk for i
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@mackenzies_eb_journey
Watch a full dressing change to manage Mackenzie’s EB wounds! It’s crucial to do frequent wound care with severe RDEB. She’s at such a high risk for infections and more wounds (especially with her trying to move more!!), so I try to catch those as fast as I can. Dressing changes typically take an hour and fifteen minutes to two hours. This one took an hour and a half without clean up time (so it was *almost* a full dressing change!). This is life with EB! #epidermolysisbullosa #medicalmom #epidermolysisbullosaawareness #ebawarenessweek #ebawareness #lifewitheb #fyp #momlife #parenting #sahm #routine #woundcare #medicallycomplex #raredisease #bathtime #babygirl
#Ebawarenessweek Reel by @ebresearch (verified account) - It began in silence, then came the courage to fly. Like monarchs starting their journey, Rowan and families living with EB move forward with fragile
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EB
@ebresearch
It began in silence, then came the courage to fly. Like monarchs starting their journey, Rowan and families living with EB move forward with fragile strength and unstoppable hope. This EB Awareness Week, we’re rallying together to raise $50,000 for research that brings us closer to treatments and a cure for EB. 100% of every dollar from this fundraiser goes directly to advancing EB research. 💙
#Ebawarenessweek Reel by @mrs.kaylacornutt - ✨Paisley's Clubfoot Treatment Progress✨ Can't believe she's already 10 weeks old💕 She's come so far. You can see her feet progressively change thro
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@mrs.kaylacornutt
✨Paisley’s Clubfoot Treatment Progress✨ Can’t believe she’s already 10 weeks old💕 She’s come so far. You can see her feet progressively change throughout the 9 weeks we’ve been in treatment. I can’t wait to get this last pair of casts off to see her beautiful little feet again 👣 #clubfoot #clubfootjourney #clubfootawareness #clubfootwarrior #newmoms #siblings #2under3 #sahm #mom #mama #familyof4 #babygirl #girlmom #relatable #real #reallife #bilateralclubfeet
#Ebawarenessweek Reel by @thebrotherstrust (verified account) - This week is EB Awareness Week 🦋 The Brothers Trust proudly supports three incredible charities - DEBRA, EBRP, and Cure EB - all working tirelessly t
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@thebrotherstrust
This week is EB Awareness Week 🦋 The Brothers Trust proudly supports three incredible charities — DEBRA, EBRP, and Cure EB — all working tirelessly to help families affected by the devastating condition Epidermolysis Bullosa (EB) and to fund vital research for a cure. Thanks to your amazing support, we’ve been able to grant over £1,050,000 to help in the fight against EB. You can make a difference too — for this week only, our Brothers Trust mugs are half price! Grab yours (just like Tom’s!) via the link in our bio — every purchase helps shine a light on EB. #EpidermolysisBullosa #MissionEB #ShineALight #Research #CureEB #EBAwarenessWeek @charitydebra @ebresearch @cureeb

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