419.0K
THGet you a bestie that can get you off a ventilator and also happens to be smart AF. So proud of you, Dr. Meeker. @jemeeker10 #bestfriend #amnioticfluidembolism #endAFE #drmeeker
@thebirthtrauma_mama
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TH1 in 40,000.
It’s rare, until it’s you.
This week is Amniotic Fluid Embolism Awareness Day.
We are the luckiest of the unlucky.
“I’ll take those odds any day. Crazy things like that only happen to other people. I’m just going to have a baby.”
This is what I would have said had I known Amniotic Fluid Embolism existed before I gave birth. The odds were in my favor. This never should have happened to me, and yet it did.
When you experience a rare complication, every single time someone quotes a rare statistic to you, it feels like a gut punch. We immediately remember when statistics used to comfort us. But, now we are that rare statistic. It did happen to us. We can no longer take solace in the probability. We can no longer feel peace knowing something is unlikely to happen to us. We miss being able to mitigate our fears and anxieties with statistics. Instead, we’ve become the statistic, the anomaly.
When the “rare thing” happens to you or someone you know, its rarity loses all significance. Your peace of mind is forever altered.
#endAFE #AFEawareness #amnioticfluidembolism #obstetricemergency #birthtrauma #traumaticbirth #1in40,000 #raredisorder #postpartumtrauma #maternalmentalhealth
@thebirthtrauma_mama
565.3K
BE👀 👀 Still seems to never get old. My lip singing synced up better on TikTok than on here 🤪 #birth #educate #birthtrauama #doulasoftiktok #nursesoftiktok #endafe #hospital #mommasboy #endafe #amnioticfluidembolism #survivor #son #mom
@beforeyoupush
2.0K
STThe spirit survives long after the body dies. 10 years ago Xmas time I was on @goodmorningamerica sharing our miracle story.
I’m horrified by all the death and destruction around us these days. But I am also grateful for the love and light many of us contain.
Shine your light. As days get darker, you can still provide the guiding light to others in need. #endAFE #37Seconds
@stepharnold37
117.6K
RNToday we recognize AFE Awareness Day, a day that means so much to our family. We will keep raising awareness and sharing Hailey’s story in hopes that other families are spared the heartbreak we live with every day. 🤍 #endafe
@rnnewgrads
2.8K
BIOctober is Placenta Accreta Awareness Month. 💚
Meet my friend Stefanie. During the birth of her fourth baby, she experienced an undiagnosed Placenta Accreta which led to an Amniotic Fluid Embolism — a rare and life-threatening complication.
Did you know that as many as 2 out of 3 cases of Placenta Accreta go undiagnosed? This is why raising awareness and advocating for better prenatal detection is so important.
Learn more and find resources at preventaccreta.org.
@stefaniebryning
@birthtraumastoriespodcast
1.4K
THWe spoke with Kayleigh Summers shortly after the devastating loss of Hailey Okula to AFE.
She opened up about what it means to live as an amniotic fluid embolism survivor—while knowing how many women don’t get that chance. AFE is catastrophic and unpredictable. Even with the best possible care, survival rates for AFE are only as high as 60%.
She continues to honor those who aren’t here to share their stories and their grieving families by raising awareness of AFE and advocating for improved preparation and compassionate care in hospital systems.
We are heartbroken for all the families who have been affected by AFE, and we’re so grateful that Kayleigh continues to show up, share her story, and advocate—for Hailey, for the AFE community, and for all of us. #EndAFE #AmnioticFluidEmbolism @afefoundation
For a more in depth discussion on this, tune into Episode 33.🎙️💛 Available on Apple Podcasts and Spotify!
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#CSection #BirthPlan #EmpoweredBirth #PregnancyJourney #NewMom #RepeatCSection #PostpartumJourney #BirthPodcast
@thecsectionexperience
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AF🕯️🤍 Honoring Lives Touched by Amniotic Fluid Embolism 🤍🕯️
On March 27th, we gather for a candlelight vigil to remember those lost, support families affected, and raise awareness for AFE. Together, we shine a light on this rare but devastating condition, standing in solidarity with those impacted.
✨ Light a candle. Share a memory. Spread awareness. ✨
📍 Carlsbad, San Diego, California & Online
🔗 Linked in Bio - https://www.facebook.com/events/659096749985694/
🗓️ Thursday, March 27th
⏰ 9:15 PM EST
Let’s honor, remember, and work toward a future free of AFE. 💙
#AFEAwareness #AFEAwarenessDay #CandlelightVigil #ENDAFE
@afefoundation
193.5K
TH🩸Please join me on January 19th at Paoli Hospital to donate blood in an attempt to give back the more than 140 units of blood required to save my life 3 years ago.
📆Visit redcross.org and use the sponsor code “Kayleigh” where it says “Find A Drive.”
I can’t wait to see you there!
If you aren’t a local, please consider giving donating blood at a site near you! And if you’re unable to donate, please just consider sharing this post on an effort to raise awareness.
#blooddonor #blooddonation #blooddrive #donateblood #savelives #DIC #PPH #hemorrhage #birthtrauma #endAFE #birthtraumaawareness #maternalnearmiss
@thebirthtrauma_mama
160.4K
THJust a casual daily realization.
#birthtrauma #traumaticbirth #birthtraumarecovery #traumaticbirthrecovery #amnioticfluidembolism #endAFE #birthtraumaawarenessweek #thisisbirthtrauma #cardiacarrest #ECMO #maternalnearmiss #maternalmorbidity #maternalmortality
@thebirthtrauma_mama
2.4K
STWhat have you overcome? #endAfE #birthtrauma #hysterectomy #ivf #kidneyfailure #heartattack #clinicaldeath #37Seconds #stephaniearnold
@stepharnold37
86.0K
THToday is AFE Awareness Day.
Amniotic Fluid Embolism is one of the most fatal birth complications in the world.
Published rates of survivability range from 20-60%.
1 in 40,000 families will experience this catastrophic complication in the U.S.
That’s approximately 100 families per year.
Amniotic fluid embolism (AFE) is a sudden and unexpected life-threatening birth complication that can affect both mother and baby. Although poorly understood,It is believed to occur when a mother suffers an allergic-like (immune) response to amniotic fluid and fetal material that enters her bloodstream during labor or shortly after delivery. It is important to note that the entrance of amniotic fluid and fetal material into the bloodstream is a normal part of the birth process and in most women, it does not cause this serious reaction.
Most often an AFE involves two very serious and life-threatening complications; heart and lung failure (cardiorespiratory collapse) and severe bleeding (disseminated intravascular coagulopathy or DIC). Independently, each of these complications is extremely serious and life-threatening. Together, they are exceptionally challenging to treat and require immediate and aggressive medical care.
We know so much more than we did 15 years ago.
But, we still don’t know why this happens. We still don’t know who it will happen to.
We still have so much more work to do.
Learn more at @afefoundation
#afeawarenessday #AFEsurvivor #AFE#birthtrauma #traumaticbirth #endAFE
@thebirthtrauma_mama
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