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(12)
#Mnd Reel by @bbcsport (verified account) - Former footballers Stephen Darby and Marcus Stewart have both been diagnosed with motor neurone disease. They discuss how football prepared them to d
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@bbcsport
Former footballers Stephen Darby and Marcus Stewart have both been diagnosed with motor neurone disease. They discuss how football prepared them to deal with the unpredictable nature of MND. #BBCFootball #StephenDarby #MarcusStewart #MND #MarchOfTheDay #LFC #Ipswich
#Mnd Reel by @livewellsouthwest - Steve's inspirational story on living with MND. Working with our Speech and Language Therapy Team, he's trying cocktails with new technology and contr
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@livewellsouthwest
Steve’s inspirational story on living with MND. Working with our Speech and Language Therapy Team, he’s trying cocktails with new technology and controlling his world with his eyes. #mnd #mndawareness #speechandlanguagetherapy #manchesterunited #robburrow #inspirational
#Mnd Reel by @anaclarabutcher - The greatest honour of my life is to have him as my soulmate and I will fight everyday for him❤️‍🩹 #mnd #mndawareness #terminalillness
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@anaclarabutcher
The greatest honour of my life is to have him as my soulmate and I will fight everyday for him❤️‍🩹 #mnd #mndawareness #terminalillness
#Mnd Reel by @anaclarabutcher - We've spent more than £3500 getting Jonny seen and diagnosed privately whilst the NHS LAUGHED in our faces when we asked them to consider MND. They sa
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@anaclarabutcher
We’ve spent more than £3500 getting Jonny seen and diagnosed privately whilst the NHS LAUGHED in our faces when we asked them to consider MND. They said he had FND and told him to do physio which included a lot of heavy weight lifting which we now know is not allowed for MND patients. The NHS recommendations made him worse faster and we can’t change that but we can fight from now on. Jonny is my soul mate, best friend, love of my life and I will do ANYTHING in my power to fight for him even with this terminal desease and all help is appreciated 🥹❤️‍🩹 thank you for your support and prayers. I know God is with us. 🇧🇷Nós gastamos mais de £3.500 para que o Jonny fosse atendido e diagnosticado no sistema privado, enquanto o NHS riu na nossa cara quando pedimos para considerarem a possibilidade de ELA (Doença do Neurônio Motor). Disseram que ele tinha FND e recomendaram fisioterapia que incluía levantamento de peso pesado, algo que agora sabemos que não é recomendado para pacientes com ELA. As recomendações do NHS acabaram fazendo com que a condição dele piorasse mais rápido. Não podemos mudar o que já aconteceu, mas podemos lutar a partir de agora. Jonny é minha alma gêmea, meu melhor amigo e o amor da minha vida, e eu farei tudo que estiver ao meu alcance para lutar por ele, mesmo diante dessa doença terminal. Toda ajuda é muito bem-vinda. 🥹❤️‍🩹 Obrigada por todo o apoio e pelas orações. Eu sei que Deus está conosco. #mndawareness #mnd #mnddiagnosis
#Mnd Reel by @jason_carl_fox (verified account) - January 1st 2023 is the start of @doddie_aid Join The Barbarian Hordes with me and not only keep fit but keep the fight against #MND going! 🐑 🐑
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@jason_carl_fox
January 1st 2023 is the start of @doddie_aid Join The Barbarian Hordes with me and not only keep fit but keep the fight against #MND going! 🐑 🐑
#Mnd Reel by @ed_slater (verified account) - Two codes. One cause. I'm proud to bring the 745 Cross Code Rugby Game back - union vs league standing together to fight MND. Every ticket sold helps
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@ed_slater
Two codes. One cause. I’m proud to bring the 745 Cross Code Rugby Game back — union vs league standing together to fight MND. Every ticket sold helps families like mine and funds vital support. 📅 9th November — Kingsholm Stadium, Gloucester 🎟️ Tickets: 745game.org Let’s pack the stands and show what the rugby family can do. #745Game #RugbyFamily #MND
#Mnd Reel by @mndassoc (verified account) - At just 26 years old, animal and outdoor loving Tamara received her MND diagnosis. 💔 Whilst Tamara's love of her animals remains unchanged, her abil
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@mndassoc
At just 26 years old, animal and outdoor loving Tamara received her MND diagnosis. 💔 Whilst Tamara’s love of her animals remains unchanged, her ability to go out into the yard and ride her horses has been taken from her. Here, Tamara and her mother Tracey share how her MND diagnosis has impacted their lives. Tamara’s story has touched not just us here at the MND Association, but many of her colleagues and friends. 🧡 Together, they have raised thousands in the fight against MND in Tamara’s honour, and we look forward to sharing more on this with you this week... ______________________________________ #mnd #als #mndassoc #mndassociation #fundraising
#Mnd Reel by @tobii_dynavox - While Jordi is mostly paralyzed after 9 years with ALS, he gives thanks for what he can do: move his eyes. That ability gives him the power to send po
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@tobii_dynavox
While Jordi is mostly paralyzed after 9 years with ALS, he gives thanks for what he can do: move his eyes. That ability gives him the power to send positive messages through his communication device to support and advocate for others living with the illness. #ALS #MND #ALSmonth #ALSAwareness
#Mnd Reel by @abcinmelbourne (verified account) - Melbourne man Graham Crossan has advanced motor neurone disease (MND) and cannot eat, talk or breathe unassisted. But he hass been denied funding for
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@abcinmelbourne
Melbourne man Graham Crossan has advanced motor neurone disease (MND) and cannot eat, talk or breathe unassisted. But he hass been denied funding for high-level care due to a new algorithm for assessing aged care funding. Aged care and disability advocates say cases like Graham's are becoming more common, and are calling for the algorithmic approach to be scrapped. The federal government says it's monitoring the new assessment process and will refine it as the system "matures".
#Mnd Reel by @zalisteggall (verified account) - Did you know that every day in Australia, two people are diagnosed with Motor Neurone Disease (MND) and two people lose their lives? I recently met w
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@zalisteggall
Did you know that every day in Australia, two people are diagnosed with Motor Neurone Disease (MND) and two people lose their lives? I recently met with Warringah locals Ron and Anna. Ron was diagnosed at just 35, and together they are raising two young children. Their story is deeply moving, and tragically they know of two other young men here in Warringah also living with MND. Across Australia, around 2,700 people are living with this cruel disease, with thousands of families impacted. The cost is already more than $5 billion a year and is projected to rise to $7.5 billion by 2025. That’s why I am calling on the government, alongside Ron, Anna and MND Australia, to fund a national MND database. We need this data to drive better treatment, prevention, and ultimately, save lives. Thank you to Ron and Anna for sharing their story with me, and for their extraordinary advocacy in the face of such heartbreaking challenges.
#Mnd Reel by @apexneuro - MND M.O.T 🔧🧑🏻‍🔧 We've been working with @charpar95 since 2022, she now visits roughly every 4-6 weeks for an 'MOT' - a top up on any changes that
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@apexneuro
MND M.O.T 🔧🧑🏻‍🔧 We’ve been working with @charpar95 since 2022, she now visits roughly every 4-6 weeks for an ‘MOT’ - a top up on any changes that have taken place since we last saw her, while she works on our Remote Support programme between her visits. We have nailed our visits down to a couple of short days (6hrs) and believe with degenerative conditions like MND, pro activity is key - whilst handing over power for daily activities to our clients so they’re not solely reliant on us! #apexneuro #mnd #motorneuronedisease #als #amyotrophiclateralsclerosis #uk
#Mnd Reel by @darin_nakakihara (verified account) - They weren't lying when they said, your life is over. But they didn't tell me this part: you still get to choose how you live. Being diagnosed with A
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@darin_nakakihara
They weren’t lying when they said, your life is over. But they didn’t tell me this part: you still get to choose how you live. Being diagnosed with ALS changes everything. Amyotrophic lateral sclerosis. Lou Gehrig’s disease. Motor neuron disease (MND). A terminal illness that doesn’t ask for permission and doesn’t wait for you to be ready. When you hear those words, the future you imagined collapses. Plans disappear. Timelines vanish. The noise gets loud. Fear gets heavy. And grief shows up early. But here’s the truth they don’t always say out loud 👇 Even with ALS, your life isn’t over. It’s different. It’s harder. It’s uncertain. But it’s still yours. This video is about choosing joy on purpose when the diagnosis says you shouldn’t. It’s about finding meaning when your body is changing faster than your heart can keep up. It’s about living fully now because now is what we’re promised. If you are living with ALS… If you love someone with ALS… If you’re a caregiver, family member, friend, or someone walking beside a terminal illness journey… This space is for you. I don’t share this to pretend ALS is easy. I share it because joy is still possible, even here. And sometimes the bravest thing you can do is wake up and say: My life isn’t over. I’m still here. Go find some joy. Even now. Especially now.

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