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#Scleroderma Reel by @the_holistic_rheumatologist - If you are living with scleroderma, these questions are very common. Let us walk through them together.

1️⃣Will I pass this on to my children?

It is
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@the_holistic_rheumatologist
If you are living with scleroderma, these questions are very common. Let us walk through them together. 1️⃣Will I pass this on to my children? It is extremely unlikely. Even identical twins who share the same DNA only have about a 5 percent chance that both will develop scleroderma if one twin has it. That tells us genetics alone do not explain this disease. There are many other environmental and immune factors involved. 2️⃣If my antibody test is negative, does that mean I do not have scleroderma? No. You can still have scleroderma without a disease specific autoantibody. There are more antibodies identified today than in the past, and sometimes only one or two are checked. Diagnosis is based on the full clinical picture, not one lab result. 3️⃣Can stress trigger flares? Based on my clinical experience, yes. Overwhelming stress can worsen symptoms, including skin changes, lung symptoms, and gastrointestinal flares. This is why supporting the mind body connection is not optional. It is part of caring for your immune system. What other questions do you have for me about living with scleroderma? #Scleroderma #SystemicSclerosis #SclerodermaAwareness #AutoimmuneDisease
#Scleroderma Reel by @shelbyelizabethforman (verified account) - 9 years, 5 rheumatologists, and I'm still a "medical mystery" 🤔

 Or maybe the system just doesn't care enough to dig deeper?
Every appointment they
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@shelbyelizabethforman
9 years, 5 rheumatologists, and I’m still a “medical mystery” 🤔 Or maybe the system just doesn’t care enough to dig deeper? Every appointment they change my diagnosis - lupus, scleroderma, undifferentiated connective tissue disease. The confusion is exhausting when you don’t know what’s causing your symptoms. But what if there’s actually a way to understand what’s happening in YOUR body? I’m about to find out and documenting the whole journey 📱 If you’re tired of being a medical mystery too, I’m using @diadiahealth to get real answers. Use code SHELBY25 for $25 off at diadiahealth.com 💕 #medical #WomensHealth #Autoimmunewarrior  #ChronicIllness #DiaDiaHealth #lupuswarrior💜 #lupusawarenessmonth #autoimmunehealing
#Scleroderma Reel by @autoimmune.babe - Okay 👀 you convinced me. Let's do THE series you've been asking for 🤍 

#autoimmunehealing #linearmorphea #morphea #scleroderma #autoimmuneremission
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@autoimmune.babe
Okay 👀 you convinced me. Let’s do THE series you’ve been asking for 🤍 #autoimmunehealing #linearmorphea #morphea #scleroderma #autoimmuneremission
#Scleroderma Reel by @sclerolu - Hi my loves! 

Guess who got a fresh cut 😇 I feel so good. I've been  postponing this cut as much as possible but happy it finally happened. Even tho
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@sclerolu
Hi my loves! Guess who got a fresh cut 😇 I feel so good. I’ve been postponing this cut as much as possible but happy it finally happened. Even though the weather doesn’t really change in Florida I’m ready for fall 🍁 Is nice to get out to get pampered. Definitely a confidence boost 🥰 Cheers 🍻 to not giving up! • • • • • #sclerodermia #disabledcreator #dogmom #wheelchairuser #spoonie #disability #chronicillness #spoonielife #transformation #scleroderma #feedingtube #chronicfatiguewarrior
#Scleroderma Reel by @autoimmuneglow (verified account) - If you've ever Googled scleroderma, the antibody list alone can feel overwhelming.

Here's the part Google often misses 👇
These labs do not diagnose
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@autoimmuneglow
If you’ve ever Googled scleroderma, the antibody list alone can feel overwhelming. Here’s the part Google often misses 👇 These labs do not diagnose scleroderma by themselves. They help rheumatologists understand patterns and risk — always in clinical context. The 3 main antibodies we look at include: • Anti-centromere — more often associated with limited systemic sclerosis (sometimes called CREST) • Scl-70 (anti–topoisomerase I) — more often linked with diffuse systemic sclerosis and lung involvement • RNA polymerase III — associated with faster skin changes and the need for closer blood pressure and kidney monitoring In certain situations, rheumatologists may also check overlap antibodies, especially when symptoms suggest features of more than one connective tissue disease. These are not screening labs for everyone. What actually matters most: ✔️ Your symptoms ✔️ A careful physical exam ✔️ How findings evolve over time ✔️ Targeted screening when appropriate (lungs, heart, kidneys) This is why Googling labs alone creates unnecessary fear — and why rheumatology looks at the full picture, not a single result. 💬 Comment TESTS if you want a breakdown of the standard imaging I order when I suspect scleroderma next. Education only. #scleroderma #systemicsclerosis #autoimmunediseaseeducation #rheumatology #patienteducation
#Scleroderma Reel by @running_with_lois - 🌻 This is my story; from fit, competitive Ultra-runner to an unexpected turn of health...
Diagnosed with Systemic Scleroderma in 2022 🌻

I originall
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@running_with_lois
🌻 This is my story; from fit, competitive Ultra-runner to an unexpected turn of health... Diagnosed with Systemic Scleroderma in 2022 🌻 I originally started this platform to advocate for races, bring people together through hiking and explore the great outdoors and all the fun trails it has to offer. I have also used it to inspire others and generate donations to support others diagnosed and their families through Scleroderma Australia. To learn more please check out - https://www.sclerodermaaustralia.com.au/ I hope my story is an educational one and if anything you listen to the last 2 minutes of the video. Life is precious. Live it! #scleroderma #autoimmuneawareness #sclerodermawarrior #livingwithautoimmune #inspireothers #livelife #runningwithlois #mystory #disease #ourdiseasedoesntdefineus #silverlining #Queensland #ultrarunner #run #runningforawareness
#Scleroderma Reel by @luxe.aesthetics (verified account) - 𝟐𝟎𝟏𝟓 ➡️ 𝐍𝐨𝐰 Trend

2015….after years of chronic illness and so much time off work, I made a big career change into an industry that barely exis
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@luxe.aesthetics
𝟐𝟎𝟏𝟓 ➡️ 𝐍𝐨𝐰 Trend 2015….after years of chronic illness and so much time off work, I made a big career change into an industry that barely existed back then. I had no idea where it would lead- just excitement, passion for making women feel beautiful and a 𝐝𝐫𝐞𝐚𝐦 𝐨𝐟 𝐛𝐮𝐢𝐥𝐝𝐢𝐧𝐠 𝐬𝐨𝐦𝐞𝐭𝐡𝐢𝐧𝐠 𝐈 𝐜𝐨𝐮𝐥𝐝 𝐛𝐞 𝐩𝐫𝐨𝐮𝐝 𝐨𝐟… something that would fit around my health and give me purpose again. Fast forward to now- 40 years old and my health’s massively improved, I’m a mum💖(something I thought would never happen for me) and this is no longer just a career. 𝐈𝐭’𝐬 𝐦𝐲 𝐚𝐫𝐭, 𝐦𝐲 𝐥𝐢𝐯𝐞𝐥𝐢𝐡𝐨𝐨𝐝, 𝐦𝐲 𝐟𝐫𝐞𝐞𝐝𝐨𝐦. It’s built the life I once used to dream of- a life where I get to be a full-time mum and provide a beautiful lifestyle for my daughter and myself. The dream I once hoped for is the life I live now…and I’m super proud of that. 💫 L U X E #ThenVsNow #CareerJourney #MeantToBe #AestheticPractitioner #sclerodermawarrior #scleroderma
#Scleroderma Reel by @amanda_ferrin (verified account) - Yesterday I finished the @everywomansmarathon in Scottsdale, AZ… my 4th marathon in 2.5 months (I've also done 2 half marathons and a few 5 and 10ks s
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@amanda_ferrin
Yesterday I finished the @everywomansmarathon in Scottsdale, AZ… my 4th marathon in 2.5 months (I’ve also done 2 half marathons and a few 5 and 10ks since the beginning of September) I have a terminal disease and complications that make it a literal miracle that I am alive, and more than that, able to walk, finish races and travel the world. In this moment, I thought of my grandpa, my best pal, and the reason I know the words to the songs for every branch of the armed forces. While many knew him as a refined pianist and world class musician and choral director… I experienced how much he loved to be silly and obnoxious. I 100% guarantee he would not have understood my new passion, but be would have been the loudest spectator. He would have loved this moment. I could hear his voice as I remebered back to him cheering for his cheerleader at high school football games, “Go Mandie!” Even though I can no longer direct kids and choirs, I believe these moments honor a heritage that taught me to lead and love with joy. Every step is a gift. Every race is a privilege. Hope is always possible. Miracles are real. My story is living proof. Thank you @runinrabbit for the opportunity to dance, hand out stickers and party with new and old friends along the way. #scleroderma #rundisney #marathon #medalmonday #everywomansmarathon #marathonrunner #marines
#Scleroderma Reel by @naysnetwork - I'm transformaning right before my own eyes. 👀🧐

🧬Living life with...
1. Asthma
2. Vitiligo 
3. Multiple Sclerosis 
4. Scleroderma
5. Sclerodactyly
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@naysnetwork
I'm transformaning right before my own eyes. 👀🧐 🧬Living life with... 1. Asthma 2. Vitiligo 3. Multiple Sclerosis 4. Scleroderma 5. Sclerodactyly/Flex bontaire contracture 6. Alopecia 7. Interstitial lung disease 8. Osteopenia 9. Raynaud Syndrome 10. And the list goes on...along with more chapters of my life💪🏾 I praise the Lord🙌🏾 and I say thank you! You better Know HER Story!📖📚 #transformation #hairloss #chronicillness #scleroderma #storytime
#Scleroderma Reel by @quietheart_emma - About a week ago, I woke up to these words running through my mind. 

I wasn't coming up with them myself, they were given to me by my Savior, the one
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@quietheart_emma
About a week ago, I woke up to these words running through my mind. I wasn’t coming up with them myself, they were given to me by my Savior, the one who gives me clarity. My Savior, the reason I experience joy every day. My Savior, the author and finisher of my faith (Hebrews 12:2) #savior #jesus #hope #clarity #joy #autoimmunedisease #scleroderma #systemicsclerosis #health #healthchallenge #churchofjesuschrist #lds #thechurchofjesuschristoflatterdaysaints
#Scleroderma Reel by @wearesruk - June is Scleroderma Awareness Month 🎗️ and we're coming together to shine a light 💡 on this rare autoimmune disease that affects around 19,000 peopl
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@wearesruk
June is Scleroderma Awareness Month 🎗️ and we’re coming together to shine a light 💡 on this rare autoimmune disease that affects around 19,000 people in the UK. Scleroderma can be life-threatening, and all forms of the condition can impact daily life, but with understanding and support, no one has to face it alone. This month, we’re asking for your help. One simple act can make a big difference: please share our #SayScleroderma film to spread awareness far and wide. And if you feel inspired to do even more, consider donating to support vital research into scleroderma (link in our bio). Every contribution brings us closer to new treatments and, one day, a cure. Together, let’s make sure everyone knows the word scleroderma and the realities of living with it. Your support means so much to our community, we can’t do it without you! Thank you for helping to make a difference ❤️ . . . . . . . #raynauds #autoimmune #autoimmunecommunity #autoimmunedisease #autoimmuneillness #chronicdisease #chroniccondition #chronicillness #rareillness #rarecondition #charity #awareness #raiseawareness #raynaudsreality #knowraynauds #raynaudsawareness #raynaudssyndrome #fundraising #SclerodermaAwarenessMonth #SRUK #SayScleroderma
#Scleroderma Reel by @camilejene - Listen…let me tell you one thing. Let's chat in the comments!
#notmyfairytale #scleroderma #autoimmunedisease #faithandhealing #divorcerecovery #scler
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@camilejene
Listen…let me tell you one thing. Let’s chat in the comments! #notmyfairytale #scleroderma #autoimmunedisease #faithandhealing #divorcerecovery #sclerodermaawareness #healingjourney #jesusheals

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