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HAMost parents watch their children grow stronger every year. 📆
New milestones.
New independence.
New memories.
Our reality is different. 😣
Hazel has a rare neurodegenerative disease often described as a form of childhood dementia that slowly takes away the skills she once had.
Instead of wondering what she’ll learn next, we often wonder what she might lose next.💔
But even in the middle of that reality, she is still our joy.
Still our sunshine.
Still the bravest little girl we know.
So we celebrate every smile, every laugh, every moment we’re given with her. 🤍
#epilepsy #cdg #dementia #medical #viral
@hazelmae.medical
