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#Curefa Reel by @kiersten.riggs - Day in the life of living with Friedreich's Ataxia ❤️💪🏼 #friedreichsataxia #raredisease #cureFA
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KI
@kiersten.riggs
Day in the life of living with Friedreich’s Ataxia ❤️💪🏼 #friedreichsataxia #raredisease #cureFA
#Curefa Reel by @kellyandfa - "I've given a lot of thought to what softness means to me.  I think softness is intertwined with feminine energy.  The more I live in my feminine ener
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KE
@kellyandfa
“I’ve given a lot of thought to what softness means to me.  I think softness is intertwined with feminine energy.  The more I live in my feminine energy, the softer I become. I’ve narrowed it down to living with grace, accepting help, and showing compassion towards my body.” Read the full blog post at the link in my bio x I always get so many questions about my mobility aid – this is from @rollzint and I absolutely love it! It’s a 2-in-1 Rollator and wheelchair. You can use the code KELLYANDFA for $100 off a rollz motion! Let me know any questions 🦓🤍 #raredisease #curefa #friedreichsataxia #mobilityaid #disability #ataxia
#Curefa Reel by @tif.fa.nys_ataxia - FA doesn't define me, I define FA! If you can see past the mobility you'll find that I'm so much more than my disability. ☀️ #curefa #friedreichsata
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TI
@tif.fa.nys_ataxia
FA doesn’t define me, I define FA! If you can see past the mobility you’ll find that I’m so much more than my disability. ☀️ #curefa #friedreichsataxia #ataxiaawareness
#Curefa Reel by @walkernotwalking - Rolling is something that has gotten really hard for me the last few years as FA has progressed. Today in physical therapy, I had to roll onto each si
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WA
@walkernotwalking
Rolling is something that has gotten really hard for me the last few years as FA has progressed. Today in physical therapy, I had to roll onto each side (I had to roll all the way to my hip or it didn’t count) and tap the cone with the opposite hand. I did this for a minute 4x and got to 22 rolls in one minute! And yes, those are weights around my wrists to make it harder. Next step is to try to keep my legs out instead of folding them in. I show a lot of walking and weight lifting, but this functional part of PT is often the most important part for me. #physicaltherapy #functionalpt #strength #disabledcreator #wheelchair #disability #raredisease #neuromusculardisease #friedreichsataxia #curefa
#Curefa Reel by @bionews_rare - If you or a loved one has Friedreich's ataxia, and you're comfortable sharing - drop your age and where you're from in the comments! 💬 Let's connect,
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BI
@bionews_rare
If you or a loved one has Friedreich’s ataxia, and you’re comfortable sharing — drop your age and where you're from in the comments! 💬 Let’s connect, support each other, and keep building this amazing FA community. Huge thanks to @curefasoiree for bringing so many of us together. Want to meet more people living with FA? Tap the link in bio to explore personal stories in our FA columns! #FriedreichsAtaxia #FACommunity #RareDisease #ChronicIllnessSupport #DisabilityAwareness #CureFA #Bionews #FriedreichsAtaxiaNews
#Curefa Reel by @conqueringfa - One Step at a Time @jordinsparks makes it sound too easy! Lots of practice, tears, and dedication went into this video! Its hard to retrain your br
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CO
@conqueringfa
One Step at a Time @jordinsparks makes it sound too easy! Lots of practice, tears, and dedication went into this video! Its hard to retrain your brain. #curefa #friedreichsataxia #ataxiadefriedreich #atassia #atassiadifriedreich #neuromuscular #ataxia #babewithamobilityaid #lifegoesonwheels @mylifeglider
#Curefa Reel by @lifewithahasi - One of the best things I could have done was to try out #OccupationalTherapy ! They give you skills which you never knew you needed! Highly recommend
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LI
@lifewithahasi
One of the best things I could have done was to try out #OccupationalTherapy ! They give you skills which you never knew you needed! Highly recommend trying an OT #WheelchairLife #CureFA
#Curefa Reel by @fittofunctionrecovery - "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it
31.0K
FI
@fittofunctionrecovery
“Obstacles don’t have to stop you. If you run into a wall, don’t turn around and give up. Figure out how to climb it, go through it, or work around it.” -MJ Getting out of the chair is a priority for nearly every session, whether our focus for the day is strength, endurance, mobility, or a combination of each. Despite progression of his Freidreich’s Ataxia and dependence on his wheelchair, we’re keeping @joeymullaney1 moving, standing on his own two feet, with and without our assistance. #recoveryknowsnolimits #recoverbetter #betterthangoodenough #fittofunctionrecovery #crossfit #crossfitisforeverybody #adaptiveathletete #adaptivecrossfit #faawareness #curefa #StareatMe #OneLove @crossfit @crossfittraining @adaptivetraining @curefa_org @tiasappy @invictusboston
#Curefa Reel by @fishingformd - Wonderful evening supporting our friends, the Maugee family, at the Runway to a Cure to benefit @friedreichataxia a form of #musculardystrophy. Raisin
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FI
@fishingformd
Wonderful evening supporting our friends, the Maugee family, at the Runway to a Cure to benefit @friedreichataxia a form of #musculardystrophy. Raising awareness and funds to support cures and treatments. #ffmd #freidrichsataxia #musculardystrophyawareness #fara #runwaytoacure #curefa
#Curefa Reel by @coffey_house (verified account) - Social media shows the highlights, the smiles between the hard parts. But real life lives in the in-between. It lives in the fear, the heartbreak, the
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CO
@coffey_house
Social media shows the highlights, the smiles between the hard parts. But real life lives in the in-between. It lives in the fear, the heartbreak, the grit, the love that shows up anyway. Having a child with a rare disease asks more of you than you ever imagined. I choose to be here honestly, because imperfect lives still have incredible beauty. #raredisease #curefa #liveauthentic #childhoodunplugged #medicallycomplex
#Curefa Reel by @curefa_org - Every discovery in FA research begins with support like yours. Donate today to make a difference in honor of FA Awareness Month. Thank you for your s
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CU
@curefa_org
Every discovery in FA research begins with support like yours. Donate today to make a difference in honor of FA Awareness Month. Thank you for your support — this May and always. Help fuel FA research progress by making a donation at curefa.org/breakthrough. #CureFA #FAAwarenessMonth
#Curefa Reel by @neobycejna_rodina - Pracoval Kuba někdy ? 👀🤗👨‍🍳 @janminha @dalibor_krivanek @jirkahor @chefkamu @oldriches @_jana__jelic_ @jirasek30 @marekpilat @josefvotocek @ptr_br
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NE
@neobycejna_rodina
Pracoval Kuba někdy ? 👀🤗👨‍🍳 @janminha @dalibor_krivanek @jirkahor @chefkamu @oldriches @_jana__jelic_ @jirasek30 @marekpilat @josefvotocek @ptr_brts @cibulak @kure001 @otto.vasak @petrbrnak_chef #kuchar #gastro #ladegustationbohemebourgeoise #michelinstar #friedreichsataxia #curefa #prace #workhard

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Instagram ospita 115K post sotto #Curefa, creando uno degli ecosistemi visivi più vivaci della piattaforma.

L'enorme raccolta #Curefa su Instagram presenta i video più coinvolgenti di oggi. I contenuti di @fittofunctionrecovery, @kiersten.riggs and @walkernotwalking e altri produttori creativi hanno raggiunto 115K post a livello globale.

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