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#Pws Reel by @everydaywithjoy (verified account) - Riding a trike! We tried something new at Physical Therapy this week. Emery actually HAS a trike, but because of her hip pain and hip surgery last yea
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@everydaywithjoy
Riding a trike! We tried something new at Physical Therapy this week. Emery actually HAS a trike, but because of her hip pain and hip surgery last year, she hasn’t been on it in FOUR years! We tried out the trike at our PT gym and it was amazing! Emery was so sore the rest of the day, but I’m so proud of her for doing something so incredibly difficult! Instead of fighting us and ending the appointment in tears, she was laughing, smiling and asking to go faster! All these little wins make all the hard work and consistency worth it. | physical therapy for Brain stem stroke | #strokesurvivor #disability #pws #medicalmama
#Pws Reel by @mike_abz (verified account) - Confidence. Courage. Consistency. 💙 Jim was born with PWS, but he refuses to be defined by limits. Week after week he shows up, works hard, and bel
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@mike_abz
Confidence. Courage. Consistency. 💙 Jim was born with PWS, but he refuses to be defined by limits. Week after week he shows up, works hard, and believes. Today he completed his box step — and reminded us all: ✨ Every child deserves a chance ✨ Progress is progress ✨ Anything is possible One step at a time. 💪💙
#Pws Reel by @reagan.baylee (verified account) - HALF GRWM 🤪🩷 Let's talk through a face update while I get ready tonight ✨ The @rarebeauty liquid blush is the star of the show hehe #grwm #grwmmak
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@reagan.baylee
HALF GRWM 🤪🩷 Let’s talk through a face update while I get ready tonight ✨ The @rarebeauty liquid blush is the star of the show hehe #grwm #grwmmakeup #grwmroutine #getreadywithme #pws #portwinestain #birthmark #birthmarked
#Pws Reel by @dailyvictorylifegoals - Dr. Miller trips are always amazing! Thankful for a doctor that cares about Catalina's health and the complexities that come along with PWS. Thankful
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@dailyvictorylifegoals
Dr. Miller trips are always amazing! Thankful for a doctor that cares about Catalina’s health and the complexities that come along with PWS. Thankful for the support of Dietitian Michael Tan! I deeply appreciate the insight on how to care for my child’s need more appropriately as she ages. The knowledge that can be shared amongst parents and doctors really does help! And more than anything I appreciate the help of my partner, best friend, love of my life! You make the best out of life everyday! You wake up happy and your soul is just pure love! I appreciate your help, your love, and your presence and the fact that you’re totally a Disney Dad! ❤️ Super grateful for this experience! No detail was missed 🙏
#Pws Reel by @pwskorea - 🏆 PWS KOREA: 대한민국 최고의 프로레슬링 아카데미 🏆 🌟 다양한 레벨의 클래스에서 월드클래스 프로레슬링 교육 제공 🌟 키즈부터 성인까지, 취미부터 선수 데뷔까지 모두 가능 🌟 프로모션, 연기, 개인 브랜딩까지! 종합 엔터테이너로 성장 🌐WWE 선
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@pwskorea
🏆 PWS KOREA: 대한민국 최고의 프로레슬링 아카데미 🏆 🌟 다양한 레벨의 클래스에서 월드클래스 프로레슬링 교육 제공 🌟 키즈부터 성인까지, 취미부터 선수 데뷔까지 모두 가능 🌟 프로모션, 연기, 개인 브랜딩까지! 종합 엔터테이너로 성장 🌐WWE 선수 및 큐슈 프로레슬링에서 전수받은 월드레벨 교육 🌐 선수 데뷔 시 매달 700-1000명의 라이브 관객과 300만 조회수의 PWS KOREA 채널 노출 전국적 스타로 도약할 수 있는 기회를 놓치지 마세요! 문의는 DM 또는 010-2760-7357로 연락주세요. #프로레슬링 #PWSKOREA #PWS #프로레슬링아카데미 #프로레슬러 #레슬링 #종합엔터테이너 #월드클래스레슬링 #프로모훈련 #브랜딩 #스타탄생 #문의환영
#Pws Reel by @all_about_reuben - ​I've struggled to find the words to post lately. Sometimes, parenting Reuben feels like we're floating in outer space together. ​I can see everyone
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@all_about_reuben
​I’ve struggled to find the words to post lately. Sometimes, parenting Reuben feels like we’re floating in outer space together. ​I can see everyone else back on Earth. Their lives look so fast and loud from up here. I see children hitting milestones that Reuben might never hit, and I’ll be honest: I still grieve for that version of him. It can feel lonely being an observer of a world you don't quite fit into anymore. ​But out here, in our own quiet orbit, things are different. Reuben’s play is solitary and repetitive, and while that can feel distant, it’s also peaceful. We are learning a language that doesn't use many words. ​The other day, he said the word "Water" ​It was just one word, one time. But in the middle of all this space, it felt like a tiny, bright star. It reminded me that even if we aren't on the same planet as everyone else, we are still together. I’m learning to stop trying to float back to Earth and just start appreciating the view from out here. 🙂‍↕️ #pws #praderwillisyndrome #pwsawareness #toddler #3yearsold
#Pws Reel by @pws_azerbaycan - Postumuza faydalı məlumat🤗 Zeynəblə öyrənək elə səhifəmizində əsas məqsədi budur bir nəfər belə nadir rastlanan PWS haqqında nə isə bilsə biz məqsədi
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@pws_azerbaycan
Postumuza faydalı məlumat🤗 Zeynəblə öyrənək elə səhifəmizində əsas məqsədi budur bir nəfər belə nadir rastlanan PWS haqqında nə isə bilsə biz məqsədimizə çatmış oluruq🙂. 🖐️👣 PWS-də Əl və Ayaq Xüsusiyyətləri Prader-Willi sindromu (PWS) olan uşaqlarda bəzi fiziki fərqliliklər müşahidə olunur və bunlardan ən xarakterik olanı əl və ayaqların kiçik olmasıdır. Əllər:👋🏻 Ovucun və barmaqların ölçüsü adətən yaşıdlarına nisbətən daha kiçik olur.Əzələlərin zəif inkişafı (hipotoniya) səbəbilə barmaq hərəkətləri bir qədər ləng ola bilər.Bu, uşağın tutma, yazma və incə motor bacarıqlarında çətinlik yarada bilər lakin mütəmadi məşqlər və oyun terapiyası ilə yaxşılaşma mümkündür.Zeynəbdə artıq yaxşılaşıb Ayaqlar: Ayaqlar da bəzən yaşa görə daha kiçik olur.Əzələ tonusunun aşağı olması balans və yerimə prosesinə təsir edə bilər.Fizioterapiya və düzgün ayaqqabı seçimi (xususi hazırlanmış) uşağın hərəkət rahatlığını artırır.#pws #praderwilliazerbaycan #genetikfərqlilik #praderwilli #kəşfetazərbaycan #usaq
#Pws Reel by @praderwillicalifornia - Your walk prep doesn't have to be perfect - it just has to be yours 💙💚 This is how we're getting ready for the PWS Walk… how are you preparing? Ta
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@praderwillicalifornia
Your walk prep doesn’t have to be perfect — it just has to be yours 💙💚 This is how we’re getting ready for the PWS Walk… how are you preparing? Tag @praderwillicalifornia in your walk prep and let’s fill this feed with color, joy, and awareness to celebrate PWS Awareness Month with us! #pws #pwsawareness #praderwillisyndrome #pwswalk #walkforpws #pwscommunity #disabilityawareness #awarenesswithjoy #pwsawarenessmonth #familyforpws #joyinawareness #blueandgreenforpws #25yearsofwalking
#Pws Reel by @natalya_sharifzyanova - Разбиваю миф о том, что синдром Прадера-Вилли равно ожирение. Тем более морбидное ожирение. Это отговорка для тех, кто не вник в синдром. И не захоте
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@natalya_sharifzyanova
Разбиваю миф о том, что синдром Прадера-Вилли равно ожирение. Тем более морбидное ожирение. Это отговорка для тех, кто не вник в синдром. И не захотел принять обратное. Лишний вес у вашего ребёнка - это не последствие синдрома. Это последствие не правильного питания и малоподвижного образа жизни. Да, дети с таким синдромом не имеют насыщения. Сколько бы не ели и не съели. Если не контролировать количество, потребляемой ими еды - просто лопнет желудок и они даже не заметят это. 😔 Да, у них нарушен процесс пищеварения и липидного обмена. Но лишний вес у них всё равно - последствие переедания и отсутствия полноценной физической активности. Поэтому, если вашему ребёнку поставили диагноз синдром Прадера-Вилли - не верьте тем, кто говорит обратное. Лучше изучите досконально вопрос. И вы узнаете сколько много стройных детей с таким синдромом. Эти дети тоже помогают разбивать миф о равности синдрома и ожирения. Чем дольше ваш ребёнок остается стройным и подвижным, тем дольше он будет жить! Так как морбидное ожирение при синдроме Прадера-Вилли не просто смертельно опасно, а мучительно опасно. Обнимаю! ❤️ #синдромпрадеравилли #pws #прадеравиллисиндром
#Pws Reel by @reagan.baylee (verified account) - MAKE IT STOP 😩 Misinformation surrounding vascular birthmarks is a constant issue. I have no clue why there is so little information on something tha
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@reagan.baylee
MAKE IT STOP 😩 Misinformation surrounding vascular birthmarks is a constant issue. I have no clue why there is so little information on something that 1/300 babies are born with (and no it’s not from the freaking SOLAR ECLIPSE) but I will continue doing my part here and on @helloportwinestain to share accurate information + postivity. Consider following @vbirthmarks for ACCURATE information or my friend @beccaleebeauty for a positive real life experience. I would LOVE to partner with a mainstream beauty brand to continue shedding light on our experiences - inclusivity is everything!! Don’t believe everything you see on the internet. 🫶 #birthmark #portwinestain #pws #birthmarks #skindifference
#Pws Reel by @reagan.baylee (verified account) - New here? 👋 Oh hi! I have a birthmark on my cheek and sometimes people are curious to learn more (or tell me to remove it 🤪) so here's the 411!! ⤵️
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@reagan.baylee
New here? 👋 Oh hi! I have a birthmark on my cheek and sometimes people are curious to learn more (or tell me to remove it 🤪) so here’s the 411!! ⤵️ 🤍 It’s called a port wine stain and it’s caused by a gene mutation! 🤍 I get yearly laser surgery to keep it healthy (surgery does not = removal - which is never my goal!) 🤍 It’s a part of me and I love owning it!! Thanks for being here 😚 If you have a vascular bm or want to learn more check out my other page @helloportwinestain ❤️ #portwinestain #birthmark #birthmarks #pws
#Pws Reel by @pubgesports (verified account) - Traffic Cop: Sir, please return your driver's license immediately! 👮 🏆2024 PWS: Phase 1 Grand Finals DAY 1 ⏰7PM KST 👀https://youtube.com/@pubgesp
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@pubgesports
Traffic Cop: Sir, please return your driver's license immediately! 👮 🏆2024 PWS: Phase 1 Grand Finals DAY 1 ⏰7PM KST 👀https://youtube.com/@pubgesportskr #PUBG #PUBGEsports #PWS

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