#Ebresearch

世界中の人々によるEbresearchに関する件のリール動画を視聴。

ログインせずに匿名で視聴。

トレンドリール

(12)
#Ebresearch Reel by @pearljam (verified account) - Today is #RareDiseaseDay Rowan lives with Epidermolysis Bullosa (EB), a rare genetic disease that makes skin as fragile as a butterfly's wings, but h
581.7K
PE
@pearljam
Today is #RareDiseaseDay Rowan lives with Epidermolysis Bullosa (EB), a rare genetic disease that makes skin as fragile as a butterfly’s wings, but her courage isn’t rare, and neither is the global community of 400+ million people living with rare diseases. Through @ebresearch, families, scientists, and supporters are pushing research forward, pioneering progress in EB and helping reshape what’s possible for rare diseases. It’s not a matter of if. It’s a matter of time. 🦋 Learn about EB and how you can help at ebresearch.org @matteroftimefilm
#Ebresearch Reel by @professor_dedee_murrell - 28th February 2026 is International Rare Disease Day. Did you know that there are over 6000 rare diseases and that they encompass 12% of all chronic i
455
PR
@professor_dedee_murrell
28th February 2026 is International Rare Disease Day. Did you know that there are over 6000 rare diseases and that they encompass 12% of all chronic illnesses? Most of us know or have met someone with a rare disease- genetic, autoimmune, cancer. Unlike common diseases, where there are many experts and treatment options, people with rare diseases usually have no approved treatments or very few; they are penalised because funding goes to common conditions- heart disease, cancers etc. I specialise in rare genetic and autoimmune blistering diseases: #epidermolysisbullosa #pemphigus #pemphigoid & founded the @australian_blistering_dz_fdn 20 years ago - there will be a fundraising dinner event in Sydney to celebrate in August- to support research into causes and better treatments for these rare conditions. Here you see some of the research papers from important outcome measures that our global team of rare skin disease experts have produced that are now in clinical trials if newly approved treatments. Next week I am volunteering on a Global EB Taskforce organised by DebRA UK in London to brainstorm about planning for the next decade of priorities to allow people living with EB all over the world to access clinical trials and new therapies. There will be sessions on these rare diseases at AAD, EADV and the Rare Skin Diseases conference in Versailles, France in July and IPPF pemphigus autoimmune blistering diseases conference in late September in Lubeck, Germany. To support and follow this work see www.blisters.org.au #rarediseaseday
#Ebresearch Reel by @mackenzies_eb_journey - Mackenzie has Epidermolysis Bullosa (EB), a rare disease that affects approximately 200 children born in the US each year. Her form of EB accounts f
19.4K
MA
@mackenzies_eb_journey
Mackenzie has Epidermolysis Bullosa (EB), a rare disease that affects approximately 200 children born in the US each year. Her form of EB accounts for ~25% of all EB cases. Her life is rare. As we prepare for Rare Disease Day, we wanted to highlight some of what Mackenzie’s rare life looks like. Filled to the brim with wound care, appointments, medications, therapies. She is a fighter. She works so hard to reach her milestones, keep up with her sisters, achieve what she wants. This rare disease brings on a rare strength, one that you have to see to believe. She’s incredible, and I’m forever in awe of her resilience. #raredisease #parenting #baby #awareness #medicalmom
#Ebresearch Reel by @boombroadcast - A hug should feel like safety. Soft. Warm. Healing. For kids like Rowan, who live with Epidermolysis Bullosa (EB), hugs can hurt. EB is a rare gen
141
BO
@boombroadcast
A hug should feel like safety. Soft. Warm. Healing. For kids like Rowan, who live with Epidermolysis Bullosa (EB), hugs can hurt. EB is a rare genetic skin disorder where skin is as fragile as a butterfly’s wings. That’s why children and adults with EB are often called “butterfly children.” EB is heartbreaking — and right now, there is no cure. EB Research Partnership (EBRP) funds cutting-edge research to find actual cures. And the same science that moves us closer to curing EB could help unlock treatments for hundreds of other rare diseases. Watch their latest #publicserviceannouncement, featuring Rowan and Eddie Vedder, #ECRP co-founder, and learn how you can help drive this research forward. https://www.ebresearch.org/ #EBResearchPartnership #ButterflyChildren #RareDiseaseAwareness
#Ebresearch Reel by @grace_life002 - A little girl named Grace, who lives with a rare disease called Junctional Epidermolysis Bullosa. This is her story🦋 #epidermolysisbullosa #raredisea
511
GR
@grace_life002
A little girl named Grace, who lives with a rare disease called Junctional Epidermolysis Bullosa. This is her story🦋 #epidermolysisbullosa #rarediseaseawareness #rarediseaseday #fyp #EBawareness
#Ebresearch Reel by @ellianasarmy - February is Rare Disease Month, but EB affects families for a lifetime🦋 1 in 10 people live with a rare disease, with EB being one of the rarest-aff
1.9K
EL
@ellianasarmy
February is Rare Disease Month, but EB affects families for a lifetime🦋 1 in 10 people live with a rare disease, with EB being one of the rarest—affecting 1 in every 20,000 births worldwide. For us, this is more than just a month—it’s a mission. We are fighting for awareness, for better care, and for a cure. Thank you for being part of Elliana’s Army💕 #RareDiseaseMonth #ShowYourStripes #EBAwareness #EpidermolysisBullosa #RareDiseaseAwareness
#Ebresearch Reel by @cureeb - A message from Sohana about #RareDiseaseDay #CureEB #ResearchtheCure #EpidermolysisBullosa
727
CU
@cureeb
A message from Sohana about #RareDiseaseDay #CureEB #ResearchtheCure #EpidermolysisBullosa
#Ebresearch Reel by @amanpourcopbs - On Rare Disease Day, Dr. Jean Tang talks about the life-threatening and rare genetic skin disease Epidermolysis Bullosa - subject of a new documentary
35.9K
AM
@amanpourcopbs
On Rare Disease Day, Dr. Jean Tang talks about the life-threatening and rare genetic skin disease Epidermolysis Bullosa — subject of a new documentary “Matter of Time.” #Amanpour #AmanpourPBS #pbs
#Ebresearch Reel by @darcies_story001 - A little girl named Darcie, who lives with a rare disease called Junctional Epidermolysis Bullosa. This is her story🦋 #epidermolysisbullosa #raredise
608
DA
@darcies_story001
A little girl named Darcie, who lives with a rare disease called Junctional Epidermolysis Bullosa. This is her story🦋 #epidermolysisbullosa #rarediseaseawareness #rarediseaseday #fyp #EBawareness
#Ebresearch Reel by @eddievedder (verified account) - Rare doesn't mean few. It means millions of lives and a race against time. What starts with one rare disease becomes a story shaped by music, communi
1.2M
ED
@eddievedder
Rare doesn’t mean few. It means millions of lives and a race against time. What starts with one rare disease becomes a story shaped by music, community, and hope. A story of people refusing to wait, moving what once felt impossible closer to reality... a cure, starting with Epidermolysis Bullosa, the Butterfly Disease, where skin can be as fragile as a butterfly’s wings. Watch Matter of Time, now streaming on Netflix. Link in bio.
#Ebresearch Reel by @stanford.med (verified account) - Even the gentlest touch can be painful for people living with epidermolysis bullosa, a condition often described as one of the most devastating geneti
9.6K
ST
@stanford.med
Even the gentlest touch can be painful for people living with epidermolysis bullosa, a condition often described as one of the most devastating genetic diseases. In an episode from the new season of the Health Compass podcast, host @dr.maya.adam speaks with Jean Tang, MD, PhD, about advances in understanding EB — and how research is bringing new hope to patients and families. 🎧 Listen to the full episode of Health Compass. Link in bio. #RareDisease #StanfordMedicine #HealthCompass #MedicalResearch

✨ #Ebresearch発見ガイド

Instagramには#Ebresearchの下にthousands of件の投稿があり、プラットフォームで最も活気のあるビジュアルエコシステムの1つを作り出しています。

Instagramの膨大な#Ebresearchコレクションには、今日最も魅力的な動画が掲載されています。@eddievedder, @pearljam and @amanpourcopbsや他のクリエイティブなプロデューサーからのコンテンツは、世界中でthousands of件の投稿に達しました。

#Ebresearchで何がトレンドですか？最も視聴されたReels動画とバイラルコンテンツが上部に掲載されています。

人気カテゴリー

📹 ビデオトレンド: 最新のReelsとバイラル動画を発見

📈 ハッシュタグ戦略: コンテンツのトレンドハッシュタグオプションを探索

🌟 注目のクリエイター: @eddievedder, @pearljam, @amanpourcopbsなどがコミュニティをリード

#Ebresearchについてのよくある質問

Pictameを使用すれば、Instagramにログインせずに#Ebresearchのすべてのリールと動画を閲覧できます。あなたの視聴活動は完全にプライベートです。ハッシュタグを検索して、トレンドコンテンツをすぐに探索開始できます。

パフォーマンス分析

12リールの分析

✅ 中程度の競争

💡 トップ投稿は平均467.0K回の再生（平均の3.0倍）

週3-5回、活動時間に定期的に投稿

コンテンツ作成のヒントと戦略

🔥 #Ebresearchは高いエンゲージメント可能性を示す - ピーク時に戦略的に投稿

✍️ ストーリー性のある詳細なキャプションが効果的 - 平均長475文字

📹 #Ebresearchには高品質な縦型動画（9:16）が最適 - 良い照明とクリアな音声を使用

✨ 多くの認証済みクリエイターが活動中（25%） - コンテンツスタイルを研究

#Ebresearch に関連する人気検索

🎬動画愛好家向け

Ebresearch ReelsEbresearch動画を見る

📈戦略探求者向け

Ebresearchトレンドハッシュタグ最高のEbresearchハッシュタグ

🌟もっと探索

Ebresearchを探索