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ERI’m done hiding it. It’s something I can’t control so I’m being raw and making this post. I just self discharged after spending 33 days admitted in hospital and been in and out of hospital for a while before that.
As some of you are aware, I have been showing symptoms of ‘extreme anxiety’ (doctors words) for years now. I’ve had test after test and they all came back clear. Heart monitor, constant observations taken, 24 hour eeg, results all clear. The seizures. The fainting episodes. The tremors and temporary paralysis. The fatigue. Sickness after sickness.
‘It’s not epilepsy’ those words are a blessing but als a curse. I’m glad, knowing that my seizures are ‘safe’ and don’t damage my brain (seudo/functional pnes seizures).
However it means it can’t be controlled by medication.
It’s chronic, there is no cure. Therapy relieves some symptoms, but it’s something that changes seriousness based on external factors such as stress, anxiety, hyperactivity etc which all come with my diagnosis of autism (awaiting an adhd diagnosis).
FND (functional neurological disorder) can stroke at any time and ruin your life completely.
I’m sharing this post to raise awareness of what I have been going through on a daily basis.
I’m truly thankful for all of the people who have stuck by my side and supported me throughout my diagnosis. I’ve met some truly incredible people and I’ll forever be in debt to them.
@jess.stri @thornberry.fae
#fnd #functionalneurologicaldisorder #pnes #awareness #iceskating
@erinmichaelam
