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#Iih Reel by @headacheguru (verified account) - Being diagnosed with Idiopathic Intracranial Hypertension (IIH) is scary. Especially after Googling it. Here's what I tell my own patients: IIH is
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@headacheguru
Being diagnosed with Idiopathic Intracranial Hypertension (IIH) is scary. Especially after Googling it. Here’s what I tell my own patients: IIH is serious, but it is manageable when followed closely. The landmark clinical trial in IIH showed that with proper treatment and monitoring, vision outcomes improve and optic nerve swelling decreases. What makes the biggest difference? • Regular eye exams • Staying consistent with follow-up • Reporting vision changes early • Actually partnering with your doctor The patients I worry about most aren’t the ones who are scared. They’re the ones who disappear. Fear is normal. But staying engaged in care protects your vision. #IIH #headache #intracranialhypertension #neurology #healthcare
#Iih Reel by @chiarimalformation - When I look back at 2025 I think about the trials and triumphs I navigated due to my condition. I battled so much and survived so much. 💖 thank you t
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@chiarimalformation
When I look back at 2025 I think about the trials and triumphs I navigated due to my condition. I battled so much and survived so much. 💖 thank you to you all for being here on this journey with me. #chiarimalformation #2025recap #chronicillnessawareness #chronicillness #chiarimalformationawareness #potssyndrome #pots #iih
#Iih Reel by @corvyxofficial (verified account) - This is undoubtedly the most important video I'll ever make. Please watch it in its entirety if you ever have listened to my music, supported me as an
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@corvyxofficial
This is undoubtedly the most important video I’ll ever make. Please watch it in its entirety if you ever have listened to my music, supported me as an artist, or know me personally. As an artist, I usually keep my family life pretty private but I couldn’t stand idly by and watch this brain disease ruin my sister’s life any longer. 8 years ago, my sister Tina was diagnosed with a rare neurological brain condition called Idiopathic Intracranial Hypertension. 🔗 Please click the link in my story or bio to hear her story 🔗 I need your help. #idiopathicintracranialhypertension #iih #braindisease #neurologicalcondition #gofundme #gofundmedonations #gofundmecampaign
#Iih Reel by @draltschul (verified account) - If you've been told your scan looks "borderline" If your lumbar puncture helped… then symptoms came back If weight changes affect your head, ears, or
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@draltschul
If you’ve been told your scan looks “borderline” If your lumbar puncture helped… then symptoms came back If weight changes affect your head, ears, or vision Central venous pressure — often influenced by body weight, hormones, and circulation — sets the baseline pressure for the brain. Sometimes the veins don’t look tight at first. But the pressure is already there. IIH is not just about a narrow vein. It’s about a congested system. The 4 Major Drivers of Intracranial Venous Congestion 1️⃣ Central / Juxtacardiac Causes (Upstream Pressure) These raise central venous pressure (CVP) and transmit pressure backward into the brain. Key drivers: • High BMI / obesity • Cardiac dysfunction • Pulmonary hypertension Why it matters: Elevated CVP raises the baseline pressure of the brain’s venous system, making it harder for cerebrospinal fluid (CSF) to be absorbed—contributing to elevated brain pressure (#IIH) even before focal stenosis develops. 2️⃣ Cervical Causes (Neck Outflow Obstruction) Mechanical narrowing of venous outflow pathways in the neck. Key drivers: • Elongated styloid process (styloidogenic jugular compression) • C1 lateral mass compression • Muscular or positional jugular entrapment Why it matters: These create a downstream bottleneck, increasing venous pressures inside the skull—often posture-dependent and frequently underrecognized. 3️⃣ Intracranial Extra-Axial Causes (Outside the Brain Tissue) External compression of venous sinuses. Key drivers: • Dural venous sinus thrombosis • Tumors or mass lesions compressing venous sinuses Why it matters: This leads to focal venous obstruction, causing upstream pressure buildup and venous hypertension. 4️⃣ Intracranial Intra-Axial Causes (Within the Brain Tissue) Abnormal blood flow dynamics inside the brain. Key drivers: • Arteriovenous malformations (AVMs) or shunting lesions (AVF) or thrombosis Why it matters: These directly pressurize the venous system from within, elevating venous pressure independent of CSF dynamics. Pathomechanistic role of central venous pressure in idiopathic intracranial hypertension By Jaikumar J et al 2026
#Iih Reel by @dr.ranibanik (verified account) - IIH, also known as Idiopathic Intracranial, Hypertension, is it common condition in my neuro-ophthalmic practice. There are four cardinal symptoms t
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@dr.ranibanik
IIH, also known as Idiopathic Intracranial, Hypertension, is it common condition in my neuro-ophthalmic practice. There are four cardinal symptoms that are that raise the suspicion of the diagnosis, including: 1️⃣Headache 2️⃣ Pulse-synchronous tinnitus 3️⃣ Transient Visual Obscurations (TVOs) and 4️⃣ Double vision from a sixth nerve palsy. if you found this useful, please LIKE and SHARE! Comment IIH below and I will send you a free guide with lots more useful information about IIH. #IIH #idiopathicintracranialhypertension #iihawareness
#Iih Reel by @dani.fennessy - It's a long story lol but raising awareness for IIH 🧠 will share the after effects in the next part
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@dani.fennessy
It’s a long story lol but raising awareness for IIH 🧠 will share the after effects in the next part
#Iih Reel by @theenchantedgirl - Everyone has a story, here's one of mine. Your girl is a warrior. Three years ago I thought I wouldn't survive. When I had first IIH migraine I was
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@theenchantedgirl
Everyone has a story, here’s one of mine. Your girl is a warrior. Three years ago I thought I wouldn’t survive. When I had first IIH migraine I was put on heavy sedatives. Ten days inside a dark room. Screaming in pain, or sleeping. The headache once started didn’t stop and continued for almost two weeks. We were trying to figure out the cause but four months later another IIH attack happened. Then one more. If I have to describe it, it’s like someone ripping your skull apart while you’re wide awake. I wanted it to end. The sedatives helped me calm my mind. Everyday felt the same, closing an eye and checking how big is the black spot. The vision kept deteriorating. It still hasn’t fully recovered. I didn’t have the courage to talk about this for a long time. Because it’s not something external, nobody believes it unless I show them proofs. I look normal but this is the reality I live everyday. I’m grateful because it could’ve been worse. I realised during that phase what all truly matters in life. You can have everything and still be hollow on the inside. We take things for granted. We scroll through the Internet and assume everyone is living an amazing life. It’s all a façade unless you sit and talk with people. At the end of the day you must choose yourself, your dreams, your happiness. You’re wanted. You’re loved. Anyone who makes you feel otherwise doesn’t deserve to be around you. So be grateful for things you have and live life while you still can. You deserve the world and don’t wait for something bad to happen to believe in this. You will find happiness if you seek it. You will find love if you accept it with open arms. Be kind to what you are and what you’re becoming. The rest will follow. ❤️ #storiesofindia #writersofinstagram #healing #storyofmylife #trending
#Iih Reel by @doctorprosia (verified account) - Early Idiopathic Intracranial Hypertension doesn't always start with obvious symptoms. Before double vision or cranial nerve palsies appear, many ca
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@doctorprosia
Early Idiopathic Intracranial Hypertension doesn’t always start with obvious symptoms. Before double vision or cranial nerve palsies appear, many cases are first caught during a retinal exam by spotting papilledema. Catch it early → protect the optic nerve → preserve vision. #greenscreenvideo #eyes #iih #brain #eyehealth 🎥: cillia865 (tiktok)
#Iih Reel by @doctor.painkiller (verified account) - neurologist and pain doctor explains IIH idiopathic intracranial hypertension #headache #migraine #iih #idiopathicintracranialhypertension
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@doctor.painkiller
neurologist and pain doctor explains IIH idiopathic intracranial hypertension #headache #migraine #iih #idiopathicintracranialhypertension
#Iih Reel by @d.o.l.l.f.a.c.e.d - STORY TIME: I didn't talk about this much, but I was diagnosed with Idiopathic Intracranial Hypertension-basically high pressure around the brain with
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@d.o.l.l.f.a.c.e.d
STORY TIME: I didn’t talk about this much, but I was diagnosed with Idiopathic Intracranial Hypertension—basically high pressure around the brain with no clear cause. For me, it showed up as constant headaches, blurry vision, dizziness, and just not feeling like myself. I also learned that weight can be connected to it, which is a big part of why I got serious about my fitness and overall health journey. I’m sharing this to bring awareness and hopefully help someone who might be going through the same thing—because I know how isolating it can feel. Thank you for supporting me and growing with me 💜 …now I’m just focused on my health, my peace, and staying consistent—because we’re elevating, not stressing 💜💜 #IIH #HealthAwareness #MaintainFIT #HighMaintenancePilates #wellnessjourney
#Iih Reel by @_muskaan__mehra_ - Sharing my #iih journey this September since it's IIH Awareness month! 💕 Last November, three letters changed my life-IIH. High pressure in the brai
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@_muskaan__mehra_
Sharing my #iih journey this September since it’s IIH Awareness month! 💕 Last November, three letters changed my life—IIH. High pressure in the brain. Steroids. Swelling. Sleepless nights. And the fear of losing my sight. I’m still healing. Still hoping. This September, I’m sharing my story to spread IIH awareness, for every invisible battle. 💙 #IIH #InvisibleIllness #RareButReal #HealingJourney #AwarenessMatters #iihawareness #iih #silentbattles

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