70.9K
SWGrateful beyond to be on the other side of this second surgery 🙏🏻 #healthjourney #pacemaker #advocate #surgery #healing
@sweatsandthecity
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OHGod’s Plan🙂
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THIf you’re new to the pacemaker world… just know you are so so blessed. 😇
Life is beautiful ❤️ and I’m here to help support w any questions or anxiety around it.
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CHDiaphragm pacemaker?? You mean heart pacemaker, right? Today let’s answer some of the most commonly asked questions about my diaphragm pacemaker for rare disease day!
✨What does having a diaphragm pacemaker feel like? Honestly, most of the time I don’t feel it at all. Your diaphragm doesn’t actually have any feeling, so I get a sort of phantom feeling up in my collar bones if I feel it.
✨Why do you have a diaphragm pacemaker? My hypothalamus doesn’t tell me to breathe. Normally your brain tells you to breathe and you don’t really think about it. If I want to take a breath, I have to think about it.
✨How did you find out you weren’t breathing? It was caught by accident during autonomic testing at the Mayo Clinic. I then had a lot of testing to figure out exactly what was happening. For example during one test they monitored how many times I breathed a minute and discovered it was 0-2. When I did breathe it looked more like a death rattle because I truly didn’t know how to and had been trying to copy other people. They had to have everyone else leave the room so I wouldn’t try to copy them. This had been how I had survived all those years before my pacemaker. If I started talking to someone or reading, it automatically went to 0 breaths a minute.
✨Why didn’t you know you weren’t breathing? The guess is that I’ve been like this since I was very young. This is my normal. I thought everyone else had to tell themselves to breathe too.
✨Were there clues when you were younger that this was happening? Yes! Doctors found notes from visits when I was little where my mom would tell doctors I would wake up in the middle of the night purple and crying. I could stay under water as long as I wanted when I was swimming. My brain didn’t have any alarms to tell me to come back up for air.
✨I was extremely lucky. Most people who have similar conditions to me and don’t get the medical care they need don’t live very long. I received my diaphragm pacemaker at age 24. When my doctors realized what was happening, most of my symptoms started making sense for the first time ever. Everyday I wake up knowing how lucky I am to be here.
@chronicallypersevering
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SWPacemaker sub1:30 half marathon @aargau.halbmarathon
I sacrificed my voice today screaming and cheering 📣 Tomorrow I will be back.
@swissultrarunner
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NUWhen is the right time for a cardiology consult and pacemaker? #nursehumor #bedsidenurse #healthcareworker #medicalstudent #nurselife
@nursebriannaleigh
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MEBiventricular pacemaker ⚡#medical #pacemaker #heart #science #cardiology #surgeon #surgery
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MEpacemaker?
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#explore #fyp #instagood #desi #sheesha
@meerububub
✨ Guia de Descoberta #Pacemaker
O Instagram hospeda 298K postagens sob #Pacemaker, criando um dos ecossistemas visuais mais vibrantes da plataforma.
Descubra o conteúdo mais recente de #Pacemaker sem fazer login. Os reels mais impressionantes sob esta tag, especialmente de @meerububub, @nursebriannaleigh and @chronicallypersevering, estão ganhando atenção massiva.
O que está em alta em #Pacemaker? Os vídeos Reels mais assistidos e o conteúdo viral estão destacados acima.
Categorias Populares
📹 Tendências de Vídeo: Descubra os últimos Reels e vídeos virais
📈 Estratégia de Hashtag: Explore opções de hashtag em alta para seu conteúdo
🌟 Criadores em Destaque: @meerububub, @nursebriannaleigh, @chronicallypersevering e outros lideram a comunidade
Perguntas Frequentes Sobre #Pacemaker
Com o Pictame, você pode navegar por todos os reels e vídeos de #Pacemaker sem fazer login no Instagram. Nenhuma conta é necessária e sua atividade permanece privada.
Análise de Desempenho
Análise de 12 reels
💡 Posts top têm média de 2.5M visualizações (2.9x acima da média)
Publique regularmente 3-5x/semana em horários ativos
Dicas de Criação de Conteúdo e Estratégia
💡 O conteúdo de melhor desempenho recebe mais de 10K visualizações - foque nos primeiros 3 segundos
📹 Vídeos verticais de alta qualidade (9:16) funcionam melhor para #Pacemaker - use boa iluminação e áudio claro
✨ Muitos criadores verificados estão ativos (50%) - estude o estilo de conteúdo deles
✍️ Legendas detalhadas com história funcionam bem - comprimento médio 271 caracteres
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