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DA16 months. One disease. And a reality that changes faster than anyone is prepared for.
In this video, I’m showing the progression of ALS (amyotrophic lateral sclerosis) over the past 16 months. What started as subtle weakness slowly turned into something much bigger. This is what living with Lou Gehrig’s disease really looks like day by day, month by month.
ALS, also known as motor neuron disease (MND), is a progressive neurodegenerative disease that affects the nerve cells that control voluntary muscles. As the disease progresses, people living with ALS gradually lose the ability to walk, talk, eat, and eventually breathe independently.
This video documents a very real ALS progression timeline. It’s not meant to scare people. It’s meant to show the truth about this disease so that more people understand what families and patients face every day. Awareness matters because ALS is still considered a terminal illness, and research, advocacy, and community support are desperately needed.
For those who are newly diagnosed with amyotrophic lateral sclerosis, caring for someone with motor neurone disease, or supporting a loved one with Lou Gehrig’s disease, I hope this video helps you feel less alone.
My goal is simple:
to raise awareness about ALS, share the reality of living with this disease, and remind people that even in the hardest moments, it’s still possible to go find some joy.
If you are part of the ALS community, a caregiver, family member, or someone trying to understand motor neuron disease, please share this video so more people can see what ALS really looks like.
Awareness leads to understanding.
Understanding leads to compassion.
And compassion moves the world forward.
#ALS #ALSawareness #LouGehrigsDisease #MotorNeuronDisease #MND #ALSAwarenessMonth #ALScommunity
@darin_nakakihara
